Literature DB >> 26916987

Unpacking the impact of older adults' home death on family care-givers' experiences of home.

Christine Milligan1, Mary Turner2, Susan Blake3, Sarah Brearley4, David Seamark5, Carol Thomas6, Xu Wang7, Sheila Payne8.   

Abstract

Public Health England (2013) survey data indicates that while the place of death is geographically uneven across England, given a choice, many older people nearing end of life would prefer to die at home. There is, however, a growing critique that policies designed to support home death fail to understand the needs and preferences of older people and the impact on family carers. Such policies also make assumption about within whose home the home death takes place. Hence, there are major gaps in our understanding of firstly, where and how care work undertaken by family members within domestic settings takes place; and secondly, how it can create tensions between home and care that fundamentally disrupt the physical and socio-emotional meaning of home for family carers, impacting on their sense of home post-death. This can have consequences for their own well-being. In this paper we draw on interview data from our 'Unpacking the Home' study to elicit an in-depth understanding of how facilitating a home death can create an ambiguity of place for family carers, where the issues faced by them in caring for a dying older person at home, and the home death itself, can fundamentally reshape the meaning and sense of home.
Copyright © 2016 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Family carers; Meaning of home; Older adults; Palliative care; Place of death

Mesh:

Year:  2016        PMID: 26916987      PMCID: PMC6611724          DOI: 10.1016/j.healthplace.2016.01.005

Source DB:  PubMed          Journal:  Health Place        ISSN: 1353-8292            Impact factor:   4.078


  22 in total

Review 1.  Palliative care in hospital, hospice, at home: results from a systematic review.

Authors:  I G Finlay; I J Higginson; D M Goodwin; A M Cook; A G K Edwards; K Hood; H-R Douglas; C E Normand
Journal:  Ann Oncol       Date:  2002       Impact factor: 32.976

2.  Shaping the practice of home care: critical case studies of the significance of the meaning of home.

Authors:  Allison M Williams
Journal:  Int J Palliat Nurs       Date:  2004-07

3.  The influence of culture on home-based family caregiving at end-of-life: a case study of Dutch reformed family care givers in Ontario, Canada.

Authors:  Rhonda Donovan; Allison Williams; Kelli Stajduhar; Kevin Brazil; Denise Marshall
Journal:  Soc Sci Med       Date:  2010-10-28       Impact factor: 4.634

4.  The personal significance of home: habitus and the experience of receiving long-term home care.

Authors:  Jan Angus; Pia Kontos; Isabel Dyck; Patricia McKeever; Blake Poland
Journal:  Sociol Health Illn       Date:  2005-03

Review 5.  Factors influencing death at home in terminally ill patients with cancer: systematic review.

Authors:  Barbara Gomes; Irene J Higginson
Journal:  BMJ       Date:  2006-02-08

6.  Factors affecting place of death in Western Australia.

Authors:  Beverley McNamara; Loma Rosenwax
Journal:  Health Place       Date:  2006-06-02       Impact factor: 4.078

7.  Hospice or home? Expectations of end-of-life care among white and Chinese older people in the UK.

Authors:  Jane Seymour; Sheila Payne; Alice Chapman; Margaret Holloway
Journal:  Sociol Health Illn       Date:  2007-09

8.  Older people's views about home as a place of care at the end of life.

Authors:  Merryn Gott; Jane Seymour; Gary Bellamy; David Clark; Sam Ahmedzai
Journal:  Palliat Med       Date:  2004-07       Impact factor: 4.762

9.  Population-based study of dying in hospital in six European countries.

Authors:  J Cohen; J Bilsen; J Addington-Hall; R Löfmark; G Miccinesi; S Kaasa; B Onwuteaka-Philipsen; L Deliens
Journal:  Palliat Med       Date:  2008-09       Impact factor: 4.762

10.  Living arrangements and place of death of older people with cancer in England and Wales: a record linkage study.

Authors:  E Grundy; D Mayer; H Young; A Sloggett
Journal:  Br J Cancer       Date:  2004-08-31       Impact factor: 7.640

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  4 in total

1.  Haematology nurses' perspectives of their patients' places of care and death: A UK qualitative interview study.

Authors:  Dorothy McCaughan; Eve Roman; Alexandra G Smith; Anne C Garry; Miriam J Johnson; Russell D Patmore; Martin R Howard; Debra A Howell
Journal:  Eur J Oncol Nurs       Date:  2019-02-07       Impact factor: 2.398

2.  Perspectives of bereaved relatives of patients with haematological malignancies concerning preferred place of care and death: A qualitative study.

Authors:  Dorothy McCaughan; Eve Roman; Alexandra G Smith; Anne C Garry; Miriam J Johnson; Russell D Patmore; Martin R Howard; Debra A Howell
Journal:  Palliat Med       Date:  2019-01-30       Impact factor: 4.762

3.  Managing medicines at the end of life: a position paper for health policy and practice.

Authors:  Asam Latif; Christina Faull; Justin Waring; Eleanor Wilson; Claire Anderson; Anthony Avery; Kristian Pollock
Journal:  J Health Organ Manag       Date:  2021-11-18

4.  Experiences of oldest-old caregivers whose partner is approaching end-of-life: A mixed-method systematic review and narrative synthesis.

Authors:  Tessa Morgan; Aamena Bharmal; Robbie Duschinsky; Stephen Barclay
Journal:  PLoS One       Date:  2020-06-09       Impact factor: 3.240

  4 in total

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