Literature DB >> 26820067

Predictive genetic testing of minors: evidence and experience with families.

Barbara B Biesecker1.   

Abstract

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Mesh：

Year:  2016        PMID： 26820067      PMCID： PMC5198838          DOI： 10.1038/gim.2015.191

Source DB:  PubMed          Journal:  Genet Med        ISSN： 1098-3600            Impact factor:   8.822


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  8 in total

Review 1.  Genetic dilemmas and the child's right to an open future.

Authors:  D S Davis
Journal:  Hastings Cent Rep       Date:  1997 Mar-Apr       Impact factor: 2.683

2.  Resolving the impasse on predictive genetic testing in minors: will more evidence be the solution?

Authors:  Stephen P Robertson; Nicola Kerruish
Journal:  J Med Ethics       Date:  2012-04-19       Impact factor: 2.903

Review 3.  Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents.

Authors:  Jeffrey R Botkin; John W Belmont; Jonathan S Berg; Benjamin E Berkman; Yvonne Bombard; Ingrid A Holm; Howard P Levy; Kelly E Ormond; Howard M Saal; Nancy B Spinner; Benjamin S Wilfond; Joseph D McInerney
Journal:  Am J Hum Genet       Date:  2015-07-02       Impact factor: 11.025

4.  Collaborative deliberation: a model for patient care.

Authors:  Glyn Elwyn; Amy Lloyd; Carl May; Trudy van der Weijden; Anne Stiggelbout; Adrian Edwards; Dominick L Frosch; Tim Rapley; Paul Barr; Thom Walsh; Stuart W Grande; Victor Montori; Ronald Epstein
Journal:  Patient Educ Couns       Date:  2014-08-13

5.  Aversion to ambiguity regarding medical tests and treatments: measurement, prevalence, and relationship to sociodemographic factors.

Authors:  Paul K J Han; Bryce B Reeve; Richard P Moser; William M P Klein
Journal:  J Health Commun       Date:  2009-09

6.  The influence of dispositional optimism on post-visit anxiety and risk perception accuracy among breast cancer genetic counselees.

Authors:  B M Wiering; A Albada; J M Bensing; M G E M Ausems; A M van Dulmen
Journal:  Psychooncology       Date:  2013-04-29       Impact factor: 3.894

7.  Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors.

Authors: 
Journal:  Am J Hum Genet       Date:  1995-11       Impact factor: 11.025

Review 8.  The psychological impact of genetic information on children: a systematic review.

Authors:  Claire E Wakefield; Lucy V Hanlon; Katherine M Tucker; Andrea F Patenaude; Christina Signorelli; Jordana K McLoone; Richard J Cohn
Journal:  Genet Med       Date:  2016-01-07       Impact factor: 8.822
  8 in total
  5 in total

Review 1.  Genetic Basis for Congenital Heart Disease: Revisited: A Scientific Statement From the American Heart Association.

Authors:  Mary Ella Pierpont; Martina Brueckner; Wendy K Chung; Vidu Garg; Ronald V Lacro; Amy L McGuire; Seema Mital; James R Priest; William T Pu; Amy Roberts; Stephanie M Ware; Bruce D Gelb; Mark W Russell
Journal:  Circulation       Date:  2018-11-20       Impact factor: 29.690

2.  Parental attitudes and expectations towards receiving genomic test results in healthy children.

Authors:  Alanna Kulchak Rahm; Lindsay Bailey; Kara Fultz; Audrey Fan; Janet L Williams; Adam Buchanan; F Daniel Davis; Michael F Murray; Marc S Williams
Journal:  Transl Behav Med       Date:  2018-01-29       Impact factor: 3.046

Review 3.  Discouraging Elective Genetic Testing of Minors: A Norm under Siege in a New Era of Genomic Medicine.

Authors:  Laura Hercher
Journal:  Cold Spring Harb Perspect Med       Date:  2020-05-01       Impact factor: 6.915

4.  Not just carriers: experiences of X-linked female heterozygotes.

Authors:  Jennifer Choi; Taylor Kane; Lauren Propst; Sara Spencer; Jamie Kostialik; Aishwarya Arjunan
Journal:  J Assist Reprod Genet       Date:  2021-07-31       Impact factor: 3.357

5.  Pediatric reporting of genomic results study (PROGRESS): a mixed-methods, longitudinal, observational cohort study protocol to explore disclosure of actionable adult- and pediatric-onset genomic variants to minors and their parents.

Authors:  Juliann M Savatt; Jennifer K Wagner; Steven Joffe; Alanna Kulchak Rahm; Marc S Williams; Angela R Bradbury; F Daniel Davis; Julie Hergenrather; Yirui Hu; Melissa A Kelly; H Lester Kirchner; Michelle N Meyer; Jessica Mozersky; Sean M O'Dell; Josie Pervola; Andrea Seeley; Amy C Sturm; Adam H Buchanan
Journal:  BMC Pediatr       Date:  2020-05-15       Impact factor: 2.125
  5 in total

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