Literature DB >> 26812430

An Innovative Website in the United States for Meeting the Emotional and Supportive Care Needs of Young Adults with Cancer.

Karen M Fasciano1,2,3, Phoebe M Souza1, Ilana Braun1,2,3, Kelly Trevino4.   

Abstract

This paper describes the development of an institution-specific website designed to meet the supportive and emotional needs of young adults (18-39 years old) with cancer in the United States. The website contains information about topics of particular interest to young adults, coping skills education, and resources; and has social networking capacity. In a survey of website users, participants reported increased "connectedness" and variable impact on feelings of sadness, fear, and worry. Recommendations are made for fostering peer interactions, encouraging staff to educate website users around self-monitoring for distress, and incorporating relevant content on the website.

Entities:  

Keywords:  information; mental health; peer support; social networking; supportive care; technology

Mesh:

Year:  2015        PMID: 26812430     DOI: 10.1089/jayao.2014.0035

Source DB:  PubMed          Journal:  J Adolesc Young Adult Oncol        ISSN: 2156-5333            Impact factor:   2.223


  4 in total

1.  Online support groups for young women with breast cancer: a proof-of-concept study.

Authors:  Joanne Stephen; Adina Rojubally; Wolfgang Linden; Lihong Zhong; Gina Mackenzie; Sahar Mahmoud; Janine Giese-Davis
Journal:  Support Care Cancer       Date:  2017-03-09       Impact factor: 3.603

2.  Online support community for adolescents and young adults (AYAs) with cancer: user statistics, evaluation, and content analysis.

Authors:  Suzanne Ej Kaal; Olga Husson; Fleur van Dartel; Karin Hermans; Rosemarie Jansen; Eveliene Manten-Horst; Petra Servaes; Tom H van de Belt; Lucien Jlpg Engelen; Judith B Prins; Suzan Verberne; Winette Ta van der Graaf
Journal:  Patient Prefer Adherence       Date:  2018-12-06       Impact factor: 2.711

Review 3.  Web-Based Peer Support Interventions for Adults Living With Chronic Conditions: Scoping Review.

Authors:  Saima N Hossain; Susan B Jaglal; John Shepherd; Laure Perrier; Jennifer R Tomasone; Shane N Sweet; Dorothy Luong; Sonya Allin; Michelle L A Nelson; Sarah E P Munce; Sara J T Guilcher
Journal:  JMIR Rehabil Assist Technol       Date:  2021-05-25

4.  Development and Evaluation of the Canteen Connect Online Health Community: Using a Participatory Design Approach in Meeting the Needs of Young People Impacted by Cancer.

Authors:  Jennifer Cohen; Pandora Patterson; Melissa Noke; Kristina Clarke; Olga Husson
Journal:  Cancers (Basel)       Date:  2021-12-23       Impact factor: 6.639

  4 in total

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