Literature DB >> 26802108

Public and patient involvement in paediatric research.

Jessica Bate1, Neil Ranasinghe2, Rebecca Ling3, Jennifer Preston4, Ruth Nightingale5, Simon Denegri6.   

Abstract

Entities:  

Keywords:  Paediatric Practice; Patient perspective

Mesh：

Year:  2016        PMID： 26802108     DOI： 10.1136/archdischild-2015-309500

Source DB:  PubMed          Journal:  Arch Dis Child Educ Pract Ed        ISSN： 1743-0585            Impact factor:   1.309


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  15 in total

1.  The Your Rheum story: involvement of young people in rheumatology research.

Authors:  Ecem Esen; Suruthi Gnanenthiran; Laura Lunt; Janet E McDonagh
Journal:  BMC Rheumatol       Date:  2022-07-05

2.  Parent engagement in co-design of clinical trials: the PARENT trial.

Authors:  Leigh M Vanderloo; Shelley M Vanderhout; Erika Tavares; Jonathon Maguire; Sharon Straus; Catherine S Birken
Journal:  Trials       Date:  2021-05-17       Impact factor: 2.279

3.  The attitudes of healthy children and researchers towards the challenges of involving children in research: an exploratory study.

Authors:  Laura Postma; Malou L Luchtenberg; A A Eduard Verhagen; Els L M Maeckelberghe
Journal:  Res Involv Engagem       Date:  2021-05-14

4.  What do young people with rheumatic conditions in the UK think about research involvement? A qualitative study.

Authors:  Suzanne Parsons; Wendy Thomson; Katharine Cresswell; Bella Starling; Janet E McDonagh
Journal:  Pediatr Rheumatol Online J       Date:  2018-05-24       Impact factor: 3.054

5.  Public and patient involvement in child health research and service improvements: a survey of hospital doctors.

Authors:  Rachel Winch; Martin Patrick McColgan; Emma Sparrow; Neena Modi; Anne Greenough
Journal:  BMJ Paediatr Open       Date:  2018-04-17

Review 6.  Dutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method: a study protocol.

Authors:  Casper G Schoemaker; Wineke Armbrust; Joost F Swart; Sebastiaan J Vastert; Jorg van Loosdregt; Anouk Verwoerd; Caroline Whiting; Katherine Cowan; Wendy Olsder; Els Versluis; Rens van Vliet; Marlous J Fernhout; Sanne L Bookelman; Jeannette Cappon; J Merlijn van den Berg; Ellen Schatorjé; Petra C E Hissink Muller; Sylvia Kamphuis; Joke de Boer; Otto T H M Lelieveld; Janjaap van der Net; Karin R Jongsma; Annemiek van Rensen; Christine Dedding; Nico M Wulffraat
Journal:  Pediatr Rheumatol Online J       Date:  2018-09-15       Impact factor: 3.054

7.  'A group of totally awesome people who do stuff' - a qualitative descriptive study of a children and young people's patient and public involvement endeavour.

Authors:  Faye Forsyth; Caroline Saunders; Anne Elmer; Shirlene Badger
Journal:  Res Involv Engagem       Date:  2019-03-12

8.  An evaluation of the experiences of young people in Patient and Public Involvement for palliative care research.

Authors:  Sarah J Mitchell; Anne-Marie Slowther; Jane Coad; Dena Khan; Mohini Samani; Jeremy Dale
Journal:  Palliat Med       Date:  2021-03-17       Impact factor: 4.762

9.  Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis.

Authors:  Anouk Verwoerd; Wineke Armbrust; Katherine Cowan; Lotte van den Berg; Joke de Boer; Sanne Bookelman; Marjan Britstra; Jeannette Cappon; Maria Certan; Christine Dedding; Karin van den Haspel; Petra Hissink Muller; Karin Jongsma; Otto Lelieveld; Jorg van Loosdregt; Wendy Olsder; Johanna Rocha; Ellen Schatorjé; Natasja Schouten; Joost F Swart; Sebastiaan Vastert; Margot Walter; Casper G Schoemaker
Journal:  Pediatr Rheumatol Online J       Date:  2021-04-07       Impact factor: 3.054

10.  What do young people with rheumatic disease believe to be important to research about their condition? A UK-wide study.

Authors:  Suzanne Parsons; Wendy Thomson; Katharine Cresswell; Bella Starling; Janet E McDonagh
Journal:  Pediatr Rheumatol Online J       Date:  2017-07-03       Impact factor: 3.054
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