Karin Wolf-Ostermann1, Saskia Meyer2, Annika Schmidt2, Anna Schritz3, Bernhard Holle4, Markus Wübbeler5, Susanne Schäfer-Walkmann6, Johannes Gräske2. 1. Institut für Public Health und Pflegeforschung (IPP), Universität Bremen, Grazer Str. 4, 28359, Bremen, Deutschland. wolf-ostermann@uni-bremen.de. 2. Institut für Public Health und Pflegeforschung (IPP), Universität Bremen, Grazer Str. 4, 28359, Bremen, Deutschland. 3. Kompetenzzentrum für Klinische Studien, Universität Bremen, Linzer Str. 4, 28359, Bremen, Deutschland. 4. Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE) Standort Witten, Stockumer Str. 12, 58453, Witten, Deutschland. 5. Deutsches Zentrum für Neurodegenerative Erkrankungen e.V. (DZNE) Rostock/Greifswald, Ellernholzstr. 1-2, 17489, Greifswald, Deutschland. 6. Institut für angewandte Sozialwissenschaften (IfaS), DHBW Stuttgart, Rotebühlstr. 131, 70197, Stuttgart, Deutschland.
Abstract
BACKGROUND: In Germany a growing number of community-based support services for people with dementia (PwD) and their caregivers are organized in dementia care networks (DCN), which provide a single point of entry to social facilities and offer personal care and support. OBJECTIVE: The aim of this study was to describe the health, functional and social characteristics of PwDs enrolled in DCNs throughout Germany because no data are currently available on this aspect. MATERIAL AND METHODS: As part of the multi-center, multi-professional 12-month follow-up study DemNet-D, data on functional and psychological health, sociodemographic and dementia-specific factors and social inclusion were collected in standardized interviews with PwDs living at home. RESULTS: A total of 560 PwDs with an average age of 80 years were enrolled in the study. Of the participants approximately 50 % had Alzheimer's dementia and more than 75 % demonstrated at least a challenging form of behavior. More than half of the participants lived together with a partner or relative. Instrumental activities of daily living (IADLs) were very limited; nevertheless, one in five PwDs showed no long-term care-dependency level. The participants reported having a relatively low feeling of loneliness and a high feeling of social inclusion, depending on the severity of dementia. CONCLUSION: This is one of the very first studies generating data on PwDs who receive domiciliary care within DCNs in Germany. The results suggest that the regional DCNs make a successful contribution to overcoming the interface problem and can, therefore, contribute to a more stable care situation and better social integration of PwDs.
BACKGROUND: In Germany a growing number of community-based support services for people with dementia (PwD) and their caregivers are organized in dementia care networks (DCN), which provide a single point of entry to social facilities and offer personal care and support. OBJECTIVE: The aim of this study was to describe the health, functional and social characteristics of PwDs enrolled in DCNs throughout Germany because no data are currently available on this aspect. MATERIAL AND METHODS: As part of the multi-center, multi-professional 12-month follow-up study DemNet-D, data on functional and psychological health, sociodemographic and dementia-specific factors and social inclusion were collected in standardized interviews with PwDs living at home. RESULTS: A total of 560 PwDs with an average age of 80 years were enrolled in the study. Of the participants approximately 50 % had Alzheimer's dementia and more than 75 % demonstrated at least a challenging form of behavior. More than half of the participants lived together with a partner or relative. Instrumental activities of daily living (IADLs) were very limited; nevertheless, one in five PwDs showed no long-term care-dependency level. The participants reported having a relatively low feeling of loneliness and a high feeling of social inclusion, depending on the severity of dementia. CONCLUSION: This is one of the very first studies generating data on PwDs who receive domiciliary care within DCNs in Germany. The results suggest that the regional DCNs make a successful contribution to overcoming the interface problem and can, therefore, contribute to a more stable care situation and better social integration of PwDs.
Entities:
Keywords:
Acceptance; Health care research; Loneliness; Social inclusion; Social participation
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