Janet K Williams1, Maria C Katapodi2, Angela Starkweather3, Laurie Badzek4, Ann K Cashion5, Bernice Coleman6, Mei R Fu7, Debra Lyon8, Michael T Weaver8, Kathleen T Hickey9. 1. School of Nursing, The University of Iowa, Iowa City, IA. Electronic address: janet-williams@uiowa.edu. 2. Institute of Nursing Science, University of Basel, Basel, Switzerland. 3. School of Nursing, University of Connecticut, Storrs, CT. 4. College of Health and Human Services, University of North Carolina, Wilmington, NC. 5. NINR/NIH, Bethesda, MD. 6. Nursing Research and Development, Cedars-Sinai Medical Center, Los Angeles, CA. 7. College of Nursing, New York University, New York, NY. 8. College of Nursing, University of Florida, Gainesville, FL. 9. School of Nursing, Columbia University, New York, NY.
Abstract
BACKGROUND: Genomic discoveries in the era of precision medicine hold the promise for tailoring healthcare, symptom management, and research efforts including targeting rare and common diseases through the identification and implementation of genomic-based risk assessment, treatment, and management. However, the translation of these discoveries into tangible benefits for the health of individuals, families, and the public is evolving. PURPOSE: In this article, members of the Genetics Expert Panel identify opportunities for action to increase advanced practice nursing and research contributions toward improving genomic health for all individuals and populations. DISCUSSION: Identified opportunities are within the areas of: bolstering genomic focused advanced practice registered nurse practice, research and education efforts; deriving new knowledge about disease biology, risk assessment, treatment efficacy, drug safety and self-management; improving resources and systems that combine genomic information with other healthcare data; and advocating for patient and family benefits and equitable access to genomic healthcare resources.
BACKGROUND: Genomic discoveries in the era of precision medicine hold the promise for tailoring healthcare, symptom management, and research efforts including targeting rare and common diseases through the identification and implementation of genomic-based risk assessment, treatment, and management. However, the translation of these discoveries into tangible benefits for the health of individuals, families, and the public is evolving. PURPOSE: In this article, members of the Genetics Expert Panel identify opportunities for action to increase advanced practice nursing and research contributions toward improving genomic health for all individuals and populations. DISCUSSION: Identified opportunities are within the areas of: bolstering genomic focused advanced practice registered nurse practice, research and education efforts; deriving new knowledge about disease biology, risk assessment, treatment efficacy, drug safety and self-management; improving resources and systems that combine genomic information with other healthcare data; and advocating for patient and family benefits and equitable access to genomic healthcare resources.
Authors: Emma Kurnat-Thoma; Mei R Fu; Wendy A Henderson; Joachim G Voss; Marilyn J Hammer; Janet K Williams; Kathleen Calzone; Yvette P Conley; Angela Starkweather; Michael T Weaver; S Pamela K Shiao; Bernice Coleman Journal: Nurs Outlook Date: 2021-01-22 Impact factor: 3.250
Authors: Mei R Fu; Emma Kurnat-Thoma; Angela Starkweather; Wendy A Henderson; Ann K Cashion; Janet K Williams; Maria C Katapodi; Karin Reuter-Rice; Kathleen T Hickey; Veronica Barcelona de Mendoza; Kathleen Calzone; Yvette P Conley; Cindy M Anderson; Debra E Lyon; Michael T Weaver; Pamela K Shiao; Rose E Constantino; Shu-Fen Wung; Marilyn J Hammer; Joachim G Voss; Bernice Coleman Journal: Int J Nurs Sci Date: 2019-12-24