Literature DB >> 26658234

The Liminal and the Parallax: Living and Dying at the End of Life.

John I MacArtney1, Alex Broom2, Emma Kirby2, Phillip Good3, Julia Wootton3.   

Abstract

Transitions to palliative care can involve a shift in philosophy from life-prolonging to life-enhancing care. People living with a life-limiting illness will often receive palliative care through specialist outpatient clinics, while also being cared for by another medical specialty. Experiences of this point of care have been described as being liminal in character, that is, somewhere between living and dying. Drawing on experiences of illness and care taken from semistructured interviews with 30 palliative care outpatients in Australia, we found that this phase was frequently understood as concurrently living and dying. We suggest that this is a "parallax experience" involving narratives of a coherent linear self that is able to understand both realities, in a way that acknowledges the benefits of being multiple. These findings have significant implications for the ways in which palliative care is understood and how the self and subjectivity might be conceptualized at the end of life.

Entities:  

Keywords:  Australia, Australians; cancer; death and dying; end-of-life issues; experiences; health care, users’; narrative inquiry, storytelling; qualitative conceptual analysis; sociology

Mesh:

Year:  2016        PMID: 26658234     DOI: 10.1177/1049732315618938

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  5 in total

1.  An Integrative Framework of Appraisal and Adaptation in Serious Medical Illness.

Authors:  Kathleen E Bickel; Cari Levy; Edward R MacPhee; Keri Brenner; Jennifer S Temel; Joanna J Arch; Joseph A Greer
Journal:  J Pain Symptom Manage       Date:  2020-05-21       Impact factor: 3.612

2.  People With Advanced Cancer: The Process of Living Well With Awareness of Dying.

Authors:  Maria Arantzamendi; Noelia García-Rueda; Ana Carvajal; Carole A Robinson
Journal:  Qual Health Res       Date:  2018-12-12

3.  Development of a psychoeducational intervention for people affected by pancreatic cancer.

Authors:  Eryn Tong; Chris Lo; Shari Moura; Kelly Antes; Sarah Buchanan; Venissa Kamtapersaud; Gerald M Devins; Camilla Zimmermann; Steven Gallinger; Gary Rodin
Journal:  Pilot Feasibility Stud       Date:  2019-06-20

4.  Exploring a New Model of End-of-Life Care for Older People That Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study.

Authors:  Steven Dodd; Nancy Preston; Sheila Payne; Catherine Walshe
Journal:  Int J Health Policy Manag       Date:  2020-08-01

5.  The Time Moving exhibit: Exploring perceptions of time in end-of-life experiences.

Authors:  Kate Sellen; Molly McGovern; Emma MacGregor; Laura Halleran; Lawrence Ly
Journal:  Health Expect       Date:  2022-01-15       Impact factor: 3.318

  5 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.