Sarah Hohl1,2, Yamile Molina3, Lisel Koepl4, Kerri Lopez5, Eric Vinson5, Hannah Linden4,6,7, Scott Ramsey4,7. 1. Fred Hutchinson Cancer Research Center, Public Health Sciences Division, 1100 Fairview Avenue N.M3-B232, Seattle, WA, 98109, USA. shohl@fredhutch.org. 2. School of Public Health, Department of Health Services, University of Washington, Seattle, WA, USA. shohl@fredhutch.org. 3. School of Public Health, Center for Research on Women and Gender, Cancer Center, University of Illinois-Chicago, Chicago, IL, USA. 4. Fred Hutchinson Cancer Research Center, Public Health Sciences Division, 1100 Fairview Avenue N.M3-B232, Seattle, WA, 98109, USA. 5. Northwest Portland Area Indian Health Board, Portland, OR, USA. 6. Seattle Cancer Care Alliance, Seattle, WA, USA. 7. School of Medicine, University of Washington, Seattle, WA, USA.
Abstract
PURPOSE: To better understand satisfaction with care among American Indian and Alaska Native (AI/AN) persons with cancer, we explored dimensions of the provider relationship that contributed to satisfaction among caregivers and survivors who received cancer treatment in Oregon and Washington State. METHODS: Between November 2011 and April 2013, the project team interviewed 11 caregivers and 71 AI/AN cancer survivors residing in Oregon and Washington State. Interview questions aimed to elicit participant experiences with care providers and factors associated with cancer care satisfaction. Interviews were analyzed using an inductive content analysis approach in which concepts were identified and themes derived from interview data. RESULTS: Three overarching themes, each with two sub-themes, emerged from the data: (1) universal factors: bolstering understanding, involvement, and empathy in care; (2) minority-specific factors: incorporating culture and community into care; and (3) AI/AN-unique factors: interacting with Indian health clinics and Indian Health Service (IHS). CONCLUSIONS: The results of our study suggest that satisfaction with care among survivors and their caregivers must be examined within the context of culture and community, particularly among minority patients. Our study demonstrates providers' critical role in ensuring AI/AN patients emerge satisfied with cancer treatment by honoring their AI/AN-specific needs, such as respect for integration of traditional healing modalities and navigation of specialty care coordination.
PURPOSE: To better understand satisfaction with care among American Indian and Alaska Native (AI/AN) persons with cancer, we explored dimensions of the provider relationship that contributed to satisfaction among caregivers and survivors who received cancer treatment in Oregon and Washington State. METHODS: Between November 2011 and April 2013, the project team interviewed 11 caregivers and 71 AI/AN cancer survivors residing in Oregon and Washington State. Interview questions aimed to elicit participant experiences with care providers and factors associated with cancer care satisfaction. Interviews were analyzed using an inductive content analysis approach in which concepts were identified and themes derived from interview data. RESULTS: Three overarching themes, each with two sub-themes, emerged from the data: (1) universal factors: bolstering understanding, involvement, and empathy in care; (2) minority-specific factors: incorporating culture and community into care; and (3) AI/AN-unique factors: interacting with Indian health clinics and Indian Health Service (IHS). CONCLUSIONS: The results of our study suggest that satisfaction with care among survivors and their caregivers must be examined within the context of culture and community, particularly among minority patients. Our study demonstrates providers' critical role in ensuring AI/AN patients emerge satisfied with cancer treatment by honoring their AI/AN-specific needs, such as respect for integration of traditional healing modalities and navigation of specialty care coordination.
Entities:
Keywords:
Cancer health disparities; Cultural competence; Patient-provider relationship; Race/ethnicity; Satisfaction with care; Survivorship
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