Literature DB >> 26612885

An Auto-Ethnographic Study of the Disembodied Experience of a Novice Researcher Doing Qualitative Cancer Research.

Charlotte Benoot1, Johan Bilsen2.   

Abstract

Qualitative health researchers who explore individuals' experiences of illness are exposed to an emotionally demanding work environment. After doing 49 interviews with cancer patients living alone, I was confronted with serious emotional distress that kept me from my work for almost 6 months. Because there is a need for discussion within academia about the emotional risks encountered by researchers, I used auto-ethnography to explore what I call the "three disembodied experiences" I encountered during the research: disembodiment linked with suppression of emotions, disembodiment linked with distal traumatization, and disembodiment linked with overidentification with the participant. I illustrate these concepts with personal stories of doing research with cancer patients living alone. I conclude that writing down experiences of doing qualitative research in an embodied and reflexive way holds two advantages: It can protect the researcher and enhance the quality of research.
© The Author(s) 2015.

Entities:  

Keywords:  Belgium; auto-ethnography; bodily experiences; burnout; cancer; embodiment; emotion work; emotions; empathy; qualitative; reflexivity

Year:  2015        PMID: 26612885     DOI: 10.1177/1049732315616625

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  2 in total

1.  Moving towards a more inclusive patient and public involvement in health research paradigm: the incorporation of a trauma-informed intersectional analysis.

Authors:  Carolyn Shimmin; Kristy D M Wittmeier; Josée G Lavoie; Evan D Wicklund; Kathryn M Sibley
Journal:  BMC Health Serv Res       Date:  2017-08-07       Impact factor: 2.655

2.  Secondary Trauma: Emotional Safety in Sensitive Research.

Authors:  Emma Williamson; Alison Gregory; Hilary Abrahams; Nadia Aghtaie; Sarah-Jane Walker; Marianne Hester
Journal:  J Acad Ethics       Date:  2020-01-07
  2 in total

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