Literature DB >> 26580414

Addressing Methodological Challenges in Large Communication Data Sets: Collecting and Coding Longitudinal Interactions in Home Hospice Cancer Care.

Maija Reblin1, Margaret F Clayton2, Kevin K John3, Lee Ellington2.   

Abstract

In this article, we present strategies for collecting and coding a large longitudinal communication data set collected across multiple sites, consisting of more than 2000 hours of digital audio recordings from approximately 300 families. We describe our methods within the context of implementing a large-scale study of communication during cancer home hospice nurse visits, but this procedure could be adapted to communication data sets across a wide variety of settings. This research is the first study designed to capture home hospice nurse-caregiver communication, a highly understudied location and type of communication event. We present a detailed example protocol encompassing data collection in the home environment, large-scale, multisite secure data management, the development of theoretically-based communication coding, and strategies for preventing coder drift and ensuring reliability of analyses. Although each of these challenges has the potential to undermine the utility of the data, reliability between coders is often the only issue consistently reported and addressed in the literature. Overall, our approach demonstrates rigor and provides a "how-to" example for managing large, digitally recorded data sets from collection through analysis. These strategies can inform other large-scale health communication research.

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Year:  2015        PMID: 26580414      PMCID: PMC4853241          DOI: 10.1080/10410236.2014.1000480

Source DB:  PubMed          Journal:  Health Commun        ISSN: 1041-0236


  53 in total

1.  A special report: spiritual care at the end of life.

Authors:  Edwin R DuBose
Journal:  Second Opin (Chic)       Date:  2002-04

2.  The psychological and physical health of hospice caregivers.

Authors:  Y Chentsova-Dutton; S Shuchter; S Hutchin; L Strause; K Burns; S Zisook
Journal:  Ann Clin Psychiatry       Date:  2000-03       Impact factor: 1.567

3.  Patient participation in medical consultations: why some patients are more involved than others.

Authors:  Richard L Street; Howard S Gordon; Michael M Ward; Edward Krupat; Richard L Kravitz
Journal:  Med Care       Date:  2005-10       Impact factor: 2.983

4.  Experts practice what they preach: A descriptive study of best and normative practices in end-of-life discussions.

Authors:  D L Roter; S Larson; G S Fischer; R M Arnold; J A Tulsky
Journal:  Arch Intern Med       Date:  2000 Dec 11-25

5.  The impact of patient-centered care on outcomes.

Authors:  M Stewart; J B Brown; A Donner; I R McWhinney; J Oates; W W Weston; J Jordan
Journal:  J Fam Pract       Date:  2000-09       Impact factor: 0.493

6.  The effects of two continuing medical education programs on communication skills of practicing primary care physicians.

Authors:  W Levinson; D Roter
Journal:  J Gen Intern Med       Date:  1993-06       Impact factor: 5.128

7.  Dentists evaluate their patients: an empirical investigation of preferences.

Authors:  R A Rouse; M A Hamilton
Journal:  J Behav Med       Date:  1991-12

Review 8.  A literature review on the mutual impact of the spousal caregiver-cancer patients dyads: 'communication', 'reciprocal influence', and 'caregiver-patient congruence'.

Authors:  Qiuping Li; Alice Yuen Loke
Journal:  Eur J Oncol Nurs       Date:  2013-10-04       Impact factor: 2.398

9.  Improving physicians' interviewing skills and reducing patients' emotional distress. A randomized clinical trial.

Authors:  D L Roter; J A Hall; D E Kern; L R Barker; K A Cole; R P Roca
Journal:  Arch Intern Med       Date:  1995-09-25

Review 10.  Spirituality, religion, and healing in palliative care.

Authors:  Christina M Puchalski; Rabbi Elliot Dorff; Imam Yahya Hendi
Journal:  Clin Geriatr Med       Date:  2004-11       Impact factor: 3.076

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  12 in total

1.  Hospice nurse identification of comfortable and difficult discussion topics: Associations among self-perceived communication effectiveness, nursing stress, life events, and burnout.

Authors:  Margaret F Clayton; Eli Iacob; Maija Reblin; Lee Ellington
Journal:  Patient Educ Couns       Date:  2019-06-14

2.  Caregiver Activation and Home Hospice Nurse Communication in Advanced Cancer Care.

Authors:  Catherine E Dingley; Margaret Clayton; Djin Lai; Katherine Doyon; Maija Reblin; Lee Ellington
Journal:  Cancer Nurs       Date:  2017 Sep/Oct       Impact factor: 2.592

3.  Shared Decision Making in Home Hospice Nursing Visits: A Qualitative Study.

Authors:  Debra Parker Oliver; Karla Washington; George Demiris; Audrey Wallace; Marc R Propst; Aisha M Uraizee; Kevin Craig; Margaret F Clayton; Maija Reblin; Lee Ellington
Journal:  J Pain Symptom Manage       Date:  2017-11-09       Impact factor: 3.612

4.  Behind the doors of home hospice patients: A secondary qualitative analysis of hospice nurse communication with patients and families.

Authors:  Debra Parker Oliver; Jessica Tappana; Karla T Washington; Abigail Rolbiecki; Kevin Craig; George Demiris; Collyn Schafer; Mumeenat Winjobi; Margaret F Clayton; Maija Reblin; Lee Ellington
Journal:  Palliat Support Care       Date:  2019-10

5.  Measuring Communication Similarity Between Hospice Nurses and Cancer Caregivers Using Latent Semantic Analysis.

Authors:  Lauren Kane; Margaret F Clayton; Brian R Baucom; Lee Ellington; Maija Reblin
Journal:  Cancer Nurs       Date:  2020 Nov/Dec       Impact factor: 2.592

6.  Caregiver, patient, and nurse visit communication patterns in cancer home hospice.

Authors:  Maija Reblin; Margaret F Clayton; Jiayun Xu; Jennifer M Hulett; Seth Latimer; Gary W Donaldson; Lee Ellington
Journal:  Psychooncology       Date:  2017-02-10       Impact factor: 3.894

7.  Using Social Network Analysis to Investigate Positive EOL Communication.

Authors:  Jiayun Xu; Rumei Yang; Andrew Wilson; Maija Reblin; Margaret F Clayton; Lee Ellington
Journal:  J Pain Symptom Manage       Date:  2018-05-01       Impact factor: 3.612

8.  Missed Opportunity: Hospice Care and the Family.

Authors:  Jennifer Tabler; Rebecca L Utz; Lee Ellington; Maija Reblin; Michael Caserta; Margaret Clayton; Dale Lund
Journal:  J Soc Work End Life Palliat Care       Date:  2015

9.  Addressing cancer patient and caregiver role transitions during home hospice nursing care.

Authors:  Janella Hudson; Maija Reblin; Margaret F Clayton; Lee Ellington
Journal:  Palliat Support Care       Date:  2019-10

10.  Positive emotion communication: Fostering well-being at end of life.

Authors:  Alexandra L Terrill; Lee Ellington; Kevin K John; Seth Latimer; Jiayun Xu; Maija Reblin; Margaret F Clayton
Journal:  Patient Educ Couns       Date:  2017-11-28
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