Literature DB >> 26563948

Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents.

Clara M Lajonchere1,2, Barbara Y Wheeler3,4, Thomas W Valente5, Cary Kreutzer6,7,8, Aron Munson5,9, Shrikanth Narayanan1, Abe Kazemzadeh1,10, Roxana Cruz6,11,12, Irene Martinez11,13, Sheree M Schrager14, Lisa Schweitzer15, Tara Chklovski16, Darryl Hwang1,16,17.   

Abstract

Low income Hispanic families experience multiple barriers to accessing evidence-based information on Autism Spectrum Disorders (ASD). This study utilized a mixed-strategy intervention to create access to information in published bio-medical research articles on ASD by distilling the content into parent-friendly English- and Spanish-language ASD Science Briefs and presenting them to participants using two socially-oriented dissemination methods. There was a main effect for short-term knowledge gains associated with the Science Briefs but no effect for the dissemination method. After 5 months, participants reported utilizing the information learned and 90% wanted to read more Science Briefs. These preliminary findings highlight the potential benefits of distilling biomedical research articles on ASD into parent-friendly educational products for currently underserved Hispanic parents.

Entities:  

Keywords:  Biomedical research on Autism; Health literacy; Hispanic/Latino; Racial disparities

Mesh:

Year:  2016        PMID: 26563948      PMCID: PMC5030774          DOI: 10.1007/s10803-015-2649-5

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  30 in total

Review 1.  Designing and evaluating interventions to eliminate racial and ethnic disparities in health care.

Authors:  Lisa A Cooper; Martha N Hill; Neil R Powe
Journal:  J Gen Intern Med       Date:  2002-06       Impact factor: 5.128

2.  Cultural influences on health care use: differences in perceived unmet needs and expectations of providers by Latino and Euro-American parents of children with special health care needs.

Authors:  Mary E Gannotti; Lawrence C Kaplan; W Penn Handwerker; Nora Ellen Groce
Journal:  J Dev Behav Pediatr       Date:  2004-06       Impact factor: 2.225

Review 3.  Interventions for individuals with low health literacy: a systematic review.

Authors:  Stacey L Sheridan; David J Halpern; Anthony J Viera; Nancy D Berkman; Katrina E Donahue; Karen Crotty
Journal:  J Health Commun       Date:  2011

4.  Effects of limited English proficiency and physician language on health care comprehension.

Authors:  Elisabeth Wilson; Alice H M Chen; Kevin Grumbach; Frances Wang; Alicia Fernandez
Journal:  J Gen Intern Med       Date:  2005-09       Impact factor: 5.128

5.  Integrating literacy, culture, and language to improve health care quality for diverse populations.

Authors:  Dennis P Andrulis; Cindy Brach
Journal:  Am J Health Behav       Date:  2007 Sep-Oct

Review 6.  Health literacy and health actions: a review and a framework from health psychology.

Authors:  Christian von Wagner; Andrew Steptoe; Michael S Wolf; Jane Wardle
Journal:  Health Educ Behav       Date:  2008-08-26

7.  Health care of Latino children with autism and other developmental disabilities: quality of provider interaction mediates utilization.

Authors:  Susan Parish; Sandra Magaña; Roderick Rose; Maria Timberlake; Jamie G Swaine
Journal:  Am J Intellect Dev Disabil       Date:  2012-07

8.  Access to care for autism-related services.

Authors:  Kathleen C Thomas; Alan R Ellis; Carolyn McLaurin; Julie Daniels; Joseph P Morrissey
Journal:  J Autism Dev Disord       Date:  2007-03-19

9.  Health literacy and the disenfranchised: the importance of collaboration between limited English proficiency and health literacy researchers.

Authors:  Michael M McKee; Michael K Paasche-Orlow
Journal:  J Health Commun       Date:  2012

10.  Access barriers to health care for Latino children.

Authors:  G Flores; M Abreu; M A Olivar; B Kastner
Journal:  Arch Pediatr Adolesc Med       Date:  1998-11
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  4 in total

1.  It's time for a change!: The appreciative inquiry/bootcamp translation to address disparities in the Latino community with autism spectrum disorders.

Authors:  Eric J Moody; Bryn Harris; Linda Zittleman; Donald E Nease; John M Westfall
Journal:  Cultur Divers Ethnic Minor Psychol       Date:  2019-01

2.  Parental Perceptions of Autism Spectrum Disorder in Latinx and Black Sociocultural Contexts: A Systematic Review.

Authors:  Karla Rivera-Figueroa; Nana Yaa A Marfo; Inge-Marie Eigsti
Journal:  Am J Intellect Dev Disabil       Date:  2022-01-01

3.  Athletes for life: Rationale and methodology of a community- and family-based randomized controlled trial to promote cardiovascular fitness among primarily Latino families.

Authors:  Jacob Szeszulski; Sonia Vega-López; Michael Todd; Frank Ray; Alma Behar; Maria Campbell; Adrian Chavez; Ryan Eckert; Anabell Lorenzo-Quintero; Leopoldo Hartmann Manrique; Noe C Crespo
Journal:  Contemp Clin Trials       Date:  2020-02-13       Impact factor: 2.226

4.  Engaging Study Participants in Research Dissemination at a Center for Population Health and Health Disparities.

Authors:  Sarah Knerr; Sarah D Hohl; Yamile Molina; Marian L Neuhouser; Christopher I Li; Gloria D Coronado; Stephanie M Fullerton; Beti Thompson
Journal:  Prog Community Health Partnersh       Date:  2016
  4 in total

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