INTRODUCTION: To be able to provide patients with a chronic illness personalised care, it is necessary to know how they live with their disorder. Today, there is no validated scale that assesses this aspect. AIM: To present the pilot study of the preliminary version of the living with a chronic process scale (EC-PC, from the name in Spanish) carried out in patients with Parkinson's disease (PD) in Spain. PATIENTS AND METHODS: A preliminary version of the scale was produced from a literature review and the participation of experts in chronic processes and in PD. Fifteen patients, in all the different stages of PD, answered the preliminary version of the EC-PC (39 items) and a questionnaire about the EC-PC. The viability/acceptability and preliminary aspects of internal consistency were analysed. RESULTS: No domain showed any floor or ceiling effects, but 43.6% of the items had a ceiling effect. The corrected item-total correlation was satisfactory, except in five items. The internal consistency of the five domains was satisfactory, with alpha indexes of 0.81-0.92 and item homogeneity coefficients of 0.19-0.43. The patients identified three items as ambiguous and difficult to answer. Based on these results, 12 items were eliminated and the final version of the EC-PC was drafted, its content being considered satisfactory following its evaluation by expert professionals. CONCLUSIONS: The EC-PC, pending validation, is a viable scale of potential interest in the clinical and community healthcare setting for assessing the ability to live with a chronic process like PD.
INTRODUCTION: To be able to provide patients with a chronic illness personalised care, it is necessary to know how they live with their disorder. Today, there is no validated scale that assesses this aspect. AIM: To present the pilot study of the preliminary version of the living with a chronic process scale (EC-PC, from the name in Spanish) carried out in patients with Parkinson's disease (PD) in Spain. PATIENTS AND METHODS: A preliminary version of the scale was produced from a literature review and the participation of experts in chronic processes and in PD. Fifteen patients, in all the different stages of PD, answered the preliminary version of the EC-PC (39 items) and a questionnaire about the EC-PC. The viability/acceptability and preliminary aspects of internal consistency were analysed. RESULTS: No domain showed any floor or ceiling effects, but 43.6% of the items had a ceiling effect. The corrected item-total correlation was satisfactory, except in five items. The internal consistency of the five domains was satisfactory, with alpha indexes of 0.81-0.92 and item homogeneity coefficients of 0.19-0.43. The patients identified three items as ambiguous and difficult to answer. Based on these results, 12 items were eliminated and the final version of the EC-PC was drafted, its content being considered satisfactory following its evaluation by expert professionals. CONCLUSIONS: The EC-PC, pending validation, is a viable scale of potential interest in the clinical and community healthcare setting for assessing the ability to live with a chronic process like PD.
Authors: Leire Ambrosio; María Victoria Navarta-Sánchez; Alfonso Meneses; Carmen Rodríguez-Blázquez Journal: Aten Primaria Date: 2018-12-07 Impact factor: 1.137
Authors: Carmen Rodriguez-Blazquez; Maria João Forjaz; Alba Ayala; Mari Carmen Portillo; Leire Ambrosio Journal: Health Expect Date: 2021-09-07 Impact factor: 3.377
Authors: Leire Ambrosio; Mari Carmen Portillo; Carmen Rodríguez-Blázquez; Mayela Rodriguez-Violante; Juan Carlos Martínez Castrillo; Víctor Campos Arillo; Nélida Susana Garretto; Tomoko Arakaki; Marcos Serrano Dueñas; Mario Álvarez; Ivonne Pedroso Ibáñez; Ana Carvajal; Pablo Martínez-Martín Journal: NPJ Parkinsons Dis Date: 2016-10-20