Literature DB >> 26523713

Global Data Sharing in Alzheimer Disease Research.

Naveen Ashish1, Priya Bhatt, Arthur W Toga.   

Abstract

Many investigators recognize the importance of data sharing; however, they lack the capability to share data. Research efforts could be vastly expanded if Alzheimer disease data from around the world was linked by a global infrastructure that would enable scientists to access and utilize a secure network of data with thousands of study participants at risk for or already suffering from the disease. We discuss the benefits of data sharing, impediments today, and solutions to achieving this on a global scale. We introduce the Global Alzheimer's Association Interactive Network (GAAIN), a novel approach to create a global network of Alzheimer disease data, researchers, analytical tools, and computational resources to better our understanding of this debilitating condition. GAAIN has addressed the key impediments to Alzheimer disease data sharing with its model and approach. It presents practical, promising, yet, data owner-sensitive data-sharing solutions.

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Mesh:

Year:  2016        PMID: 26523713      PMCID: PMC4851599          DOI: 10.1097/WAD.0000000000000121

Source DB:  PubMed          Journal:  Alzheimer Dis Assoc Disord        ISSN: 0893-0341            Impact factor:   2.703


  19 in total

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2.  The Extensible Neuroimaging Archive Toolkit: an informatics platform for managing, exploring, and sharing neuroimaging data.

Authors:  Daniel S Marcus; Timothy R Olsen; Mohana Ramaratnam; Randy L Buckner
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3.  CDISC standard-based electronic archiving of clinical trials.

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4.  Federated web-accessible clinical data management within an extensible neuroimaging database.

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5.  Contemporary outcomes after the Fontan procedure: a Pediatric Heart Network multicenter study.

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Journal:  J Am Coll Cardiol       Date:  2008-07-08       Impact factor: 24.094

6.  The clinical translation gap in child health exercise research: a call for disruptive innovation.

Authors:  Naveen Ashish; Marcas M Bamman; Frank J Cerny; Dan M Cooper; Pierre D'Hemecourt; Joey C Eisenmann; Dawn Ericson; John Fahey; Bareket Falk; Davera Gabriel; Michael G Kahn; Han C G Kemper; Szu-Yun Leu; Robert I Liem; Robert McMurray; Patricia A Nixon; J Tod Olin; Paolo T Pianosi; Mary Purucker; Shlomit Radom-Aizik; Amy Taylor
Journal:  Clin Transl Sci       Date:  2014-08-11       Impact factor: 4.689

7.  Towards structured sharing of raw and derived neuroimaging data across existing resources.

Authors:  D B Keator; K Helmer; J Steffener; J A Turner; T G M Van Erp; S Gadde; N Ashish; G A Burns; B N Nichols
Journal:  Neuroimage       Date:  2013-05-30       Impact factor: 6.556

8.  Neuroscience Data Integration through Mediation: An (F)BIRN Case Study.

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9.  AlzPharm: integration of neurodegeneration data using RDF.

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Journal:  BMC Bioinformatics       Date:  2007-05-09       Impact factor: 3.169

Review 10.  Forty years of SNOMED: a literature review.

Authors:  Ronald Cornet; Nicolette de Keizer
Journal:  BMC Med Inform Decis Mak       Date:  2008-10-27       Impact factor: 2.796

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  8 in total

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Authors:  Arthur W Toga; Ian Foster; Carl Kesselman; Ravi Madduri; Kyle Chard; Eric W Deutsch; Nathan D Price; Gustavo Glusman; Benjamin D Heavner; Ivo D Dinov; Joseph Ames; John Van Horn; Roger Kramer; Leroy Hood
Journal:  J Am Med Inform Assoc       Date:  2015-07-21       Impact factor: 4.497

2.  Using Digital Tools to Advance Alzheimer's Drug Trials During a Pandemic: The EU/US CTAD Task Force.

Authors:  J Kaye; P Aisen; R Amariglio; R Au; C Ballard; M Carrillo; H Fillit; T Iwatsubo; G Jimenez-Maggiora; S Lovestone; F Natanegara; K Papp; M E Soto; M Weiner; B Vellas
Journal:  J Prev Alzheimers Dis       Date:  2021

3.  Deep Learning in Alzheimer's Disease: Diagnostic Classification and Prognostic Prediction Using Neuroimaging Data.

Authors:  Taeho Jo; Kwangsik Nho; Andrew J Saykin
Journal:  Front Aging Neurosci       Date:  2019-08-20       Impact factor: 5.750

Review 4.  The Application of Artificial Intelligence in the Genetic Study of Alzheimer's Disease.

Authors:  Rohan Mishra; Bin Li
Journal:  Aging Dis       Date:  2020-12-01       Impact factor: 6.745

5.  On Improved 3D-CNN-Based Binary and Multiclass Classification of Alzheimer's Disease Using Neuroimaging Modalities and Data Augmentation Methods.

Authors:  Ahsan Bin Tufail; Kalim Ullah; Rehan Ali Khan; Mustafa Shakir; Muhammad Abbas Khan; Inam Ullah; Yong-Kui Ma; Md Sadek Ali
Journal:  J Healthc Eng       Date:  2022-02-11       Impact factor: 2.682

Review 6.  Applications of Phyto-Nanotechnology for the Treatment of Neurodegenerative Disorders.

Authors:  Tanima Bhattacharya; Giselle Amanda Borges E Soares; Hitesh Chopra; Md Mominur Rahman; Ziaul Hasan; Shasank S Swain; Simona Cavalu
Journal:  Materials (Basel)       Date:  2022-01-21       Impact factor: 3.623

7.  Publishing descriptions of non-public clinical datasets: proposed guidance for researchers, repositories, editors and funding organisations.

Authors:  Iain Hrynaszkiewicz; Varsha Khodiyar; Andrew L Hufton; Susanna-Assunta Sansone
Journal:  Res Integr Peer Rev       Date:  2016-06-22

8.  Accelerating drug development for Alzheimer's disease through the use of data standards.

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Journal:  Alzheimers Dement (N Y)       Date:  2017-04-15
  8 in total

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