Esther C Ilmer1, Suzanne A M Lambregts2, Monique A M Berger3, Arend J de Kloet4, Sander R Hilberink5, Marij E Roebroeck6. 1. Erasmus MC University Medical Centre, Department of Rehabilitation Medicine, Rotterdam, The Netherlands; Rijndam Rehabilitation Institute, Rotterdam, The Netherlands. Electronic address: eilmer@rijndam.nl. 2. Erasmus MC University Medical Centre, Department of Rehabilitation Medicine, Rotterdam, The Netherlands; Revant Rehabilitation Centre, Breda, The Netherlands. 3. The Hague University of Applied Sciences, The Hague, The Netherlands. 4. The Hague University of Applied Sciences, The Hague, The Netherlands; Sophia Rehabilitation, The Hague, The Netherlands. 5. Erasmus MC University Medical Centre, Department of Rehabilitation Medicine, Rotterdam, The Netherlands. 6. Erasmus MC University Medical Centre, Department of Rehabilitation Medicine, Rotterdam, The Netherlands; Rijndam Rehabilitation Institute, Rotterdam, The Netherlands.
Abstract
OBJECTIVE: To determine health-related quality of life (HRQoL) in children and youth with acquired brain injury (ABI) two years post-injury and explore associated factors. DESIGN: Cross-sectional. SUBJECTS: Children and youth (n = 72; aged 6-22 years) with mild to severe ABI (87% mild). METHODS: The primary outcome measures self-reported and parent-reported HRQoL were assessed with the Paediatric Quality of Life Inventory (PedsQL) and compared with age-appropriate reference values of the Dutch population. Spearman correlation coefficients (Rs) were used to explore relationships between HRQoL and sociodemographic and ABI characteristics, severity of impairments and presence of post-injury problems. RESULTS: Children and youth with ABI and the reference population had similar self-reported HRQoL. However, as reported by parents, children with ABI aged 6-7 years and youth aged 13-18 years had poorer HRQoL regarding psychosocial health. Children's post-injury cognitive, behavioural and social problems were moderately associated with poorer HRQoL, especially psychosocial health (Rs ≥ 0.40). Severity nor type of injury were associated with children's HRQoL. CONCLUSION: Two years post-injury, in children and youth with mild to severe ABI, reported HRQoL is similar to that in the general population, whereas parents reported less favourable outcomes. Post-injury cognitive, behavioural and social problems require ongoing attention during long-term follow-up.
OBJECTIVE: To determine health-related quality of life (HRQoL) in children and youth with acquired brain injury (ABI) two years post-injury and explore associated factors. DESIGN: Cross-sectional. SUBJECTS:Children and youth (n = 72; aged 6-22 years) with mild to severe ABI (87% mild). METHODS: The primary outcome measures self-reported and parent-reported HRQoL were assessed with the Paediatric Quality of Life Inventory (PedsQL) and compared with age-appropriate reference values of the Dutch population. Spearman correlation coefficients (Rs) were used to explore relationships between HRQoL and sociodemographic and ABI characteristics, severity of impairments and presence of post-injury problems. RESULTS:Children and youth with ABI and the reference population had similar self-reported HRQoL. However, as reported by parents, children with ABI aged 6-7 years and youth aged 13-18 years had poorer HRQoL regarding psychosocial health. Children's post-injury cognitive, behavioural and social problems were moderately associated with poorer HRQoL, especially psychosocial health (Rs ≥ 0.40). Severity nor type of injury were associated with children's HRQoL. CONCLUSION: Two years post-injury, in children and youth with mild to severe ABI, reported HRQoL is similar to that in the general population, whereas parents reported less favourable outcomes. Post-injury cognitive, behavioural and social problems require ongoing attention during long-term follow-up.
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Authors: Florian Allonsius; Arend de Kloet; Gary Bedell; Frederike van Markus-Doornbosch; Stefanie Rosema; Jorit Meesters; Thea Vliet Vlieland; Menno van der Holst Journal: Int J Environ Res Public Health Date: 2021-02-08 Impact factor: 3.390
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