Literature DB >> 26454430

In the Know and in the News: How Science and the Media Communicate About Stem Cells, Autism and Cerebral Palsy.

Kimberly Sharpe1, Nina Di Pietro1, Judy Illes2,3.   

Abstract

Stem cell research has generated considerable attention for its potential to remediate many disorders of the central nervous system including neurodevelopmental disorders such as autism spectrum disorder (ASD) and cerebral palsy (CP) that place a high burden on individual children, families and society. Here we characterized messaging about the use of stem cells for ASD and CP in news media articles and concurrent dissemination of discoveries through conventional science discourse. We searched LexisNexis and Canadian Newsstand for news articles from the US, UK, Canada and Australia in the period between 2000 and 2014, and PubMed for peer reviewed articles for the same 10 years. Using in-depth content analysis methods, we found less cautionary messaging about stem cells for ASD and CP in the resulting sample of 73 media articles than in the sample of 87 science papers, and a privileging of benefits over risk. News media also present stem cells as ready for clinical application to treat these neurodevelopmental disorders, even while the science literature calls for further research. Investigative news reports that explicitly quote researchers, however, provide the most accurate information to actual science news. The hope, hype, and promise of stem cell interventions for neurodevelopmental disorders, combined with the extreme vulnerability of these children and their families, creates a perfect storm in which journalists and stem cell scientists must commit to a continued, if not even more robust, partnership to promote balanced and accurate messaging.

Entities:  

Keywords:  Autism spectrum disorder; Cerebral palsy; Media; Newspaper reporting; Stem cells

Mesh:

Year:  2016        PMID: 26454430     DOI: 10.1007/s12015-015-9627-3

Source DB:  PubMed          Journal:  Stem Cell Rev Rep        ISSN: 2629-3277            Impact factor:   5.739


  14 in total

1.  In pursuit of "informed hope" in the stem cell discourse.

Authors:  Joanne Reimer; Emily Borgelt; Judy Illes
Journal:  Am J Bioeth       Date:  2010-05       Impact factor: 11.229

2.  What's next for science communication? Promising directions and lingering distractions.

Authors:  Matthew C Nisbet; Dietram A Scheufele
Journal:  Am J Bot       Date:  2009-09-03       Impact factor: 3.844

3.  Fueling Hope: Stem Cells in Social Media.

Authors:  Julie M Robillard; Emanuel Cabral; Craig Hennessey; Brian K Kwon; Judy Illes
Journal:  Stem Cell Rev Rep       Date:  2015-08       Impact factor: 5.739

4.  Communicating the promise for ocular gene therapies: challenges and recommendations.

Authors:  Shelly Benjaminy; Stephanie P Kowal; Ian M MacDonald; Tania Bubela
Journal:  Am J Ophthalmol       Date:  2015-05-30       Impact factor: 5.258

5.  Stem cell tourism and the power of hope.

Authors:  Charles E Murdoch; Christopher Thomas Scott
Journal:  Am J Bioeth       Date:  2010-05       Impact factor: 11.229

6.  Stem cell tourism and doctors' duties to minors--a view from Canada.

Authors:  Amy Zarzeczny; Timothy Caulfield
Journal:  Am J Bioeth       Date:  2010-05       Impact factor: 11.229

7.  Therapeutic hope, spiritual distress, and the problem of stem cell tourism.

Authors:  Insoo Hyun
Journal:  Cell Stem Cell       Date:  2013-05-02       Impact factor: 24.633

8.  "I didn't even know what I was looking for": A qualitative study of the decision-making processes of Canadian medical tourists.

Authors:  Rory Johnston; Valorie A Crooks; Jeremy Snyder
Journal:  Global Health       Date:  2012-07-07       Impact factor: 4.185

9.  Aging 2.0: health information about dementia on Twitter.

Authors:  Julie M Robillard; Thomas W Johnson; Craig Hennessey; B Lynn Beattie; Judy Illes
Journal:  PLoS One       Date:  2013-07-26       Impact factor: 3.240

10.  Social media use in the United States: implications for health communication.

Authors:  Wen-ying Sylvia Chou; Yvonne M Hunt; Ellen Burke Beckjord; Richard P Moser; Bradford W Hesse
Journal:  J Med Internet Res       Date:  2009-11-27       Impact factor: 5.428

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  6 in total

Review 1.  The Role of Stem Cells in the Treatment of Cerebral Palsy: a Review.

Authors:  Anahita Kiasatdolatabadi; Nasrin Lotfibakhshaiesh; Meysam Yazdankhah; Somayeh Ebrahimi-Barough; Mina Jafarabadi; Arman Ai; Esmaeil Sadroddiny; Jafar Ai
Journal:  Mol Neurobiol       Date:  2016-08-13       Impact factor: 5.590

2.  A Dichotomy of Information-Seeking and Information-Trusting: Stem Cell Interventions and Children with Neurodevelopmental Disorders.

Authors:  Kimberly Sharpe; Nina Di Pietro; Karen J Jacob; Judy Illes
Journal:  Stem Cell Rev Rep       Date:  2016-08       Impact factor: 5.739

3.  Clinician views on and ethics priorities for authorizing medical cannabis in the care of children and youth in Canada: a qualitative study.

Authors:  Margot Gunning; Ari D Rotenberg; Lauren E Kelly; Bruce Crooks; Sapna Oberoi; Adam L Rapoport; S Rod Rassekh; Judy Illes
Journal:  CMAJ Open       Date:  2022-03-15

4.  Choice and Trade-offs: Parent Decision Making for Neurotechnologies for Pediatric Drug-Resistant Epilepsy.

Authors:  Viorica Hrincu; Patrick J McDonald; Mary B Connolly; Mark J Harrison; George M Ibrahim; Robert P Naftel; Winston Chiong; Armaghan Alam; Urs Ribary; Judy Illes
Journal:  J Child Neurol       Date:  2021-06-02       Impact factor: 1.987

5.  Application of protection motivation theory to clinical trial enrolment for pediatric chronic conditions.

Authors:  Stephanie P Brooks; Tania Bubela
Journal:  BMC Pediatr       Date:  2020-03-16       Impact factor: 2.125

6.  Effectiveness of interactive teaching intervention on medical students' knowledge and attitudes toward stem cells, their therapeutic uses, and potential research applications.

Authors:  Fayez Abdulrazeq; Khalid A Kheirallah; Abdel-Hameed Al-Mistarehi; Samir Al Bashir; Mohammad A ALQudah; Abdallah Alzoubi; Jomana Alsulaiman; Mazhar S Al Zoubi; Abdulwahab Al-Maamari
Journal:  PeerJ       Date:  2022-01-21       Impact factor: 2.984

  6 in total

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