Literature DB >> 26414775

Poverty, Depression, or Lost in Translation? Ethnic and Language Variation in Patient-Reported Outcomes in Rheumatoid Arthritis.

Patricia P Katz1, Jennifer Barton2, Laura Trupin1, Gabriela Schmajuk1, Jinoos Yazdany1, Pedro J Ruiz3, Edward Yelin1.   

Abstract

OBJECTIVE: Despite advances in therapies, disparities in outcomes have been documented for rheumatoid arthritis (RA) patients for both ethnicity and English language proficiency. The goals of these analyses were to compare differences in RA patient-reported outcomes, by both self-identification of ethnicity and English language proficiency, and to identify factors that might explain differences among groups.
METHODS: Data were collected through structured telephone interviews of a longitudinal cohort with physician-diagnosed RA (n = 438); only women were included (n = 335). Three groups were defined based on self-reported ethnicity and English proficiency: white/English (n = 219), Hispanic/English (n = 39), and Hispanic/Spanish (n = 77). Outcomes examined were patient-reported physical functioning, pain, and presence of moderate or severe fatigue. Multivariate regression analyses compared outcomes among groups, adjusting for sociodemographic characteristics, health and disease factors, and depression.
RESULTS: Hispanic/Spanish women had worse function, pain, and fatigue than either English-proficient group. Depression was associated with all outcomes (P < 0.0001), and accounted for greater differentials in scores than ethnicity/language proficiency. In interaction analyses, differences between women who were and were not depressed were greater for Hispanic/English than for Hispanic/Spanish. Nondepressed Hispanic/Spanish scores were significantly worse than nondepressed Hispanic/English, i.e., the impact of depression was less for Hispanic/Spanish women because both depressed and nondepressed women in this group reported worse outcomes. After adjustment for sociodemographic factors and depression, language remained significantly associated with outcomes.
CONCLUSION: Disparities in patient-reported outcomes may be driven less by ethnicity than by sociodemographic or psychological factors. Measurement instruments that are not culturally appropriate and equivalent may also hamper meaningful analyses of disparities.
© 2016, American College of Rheumatology.

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Year:  2016        PMID: 26414775      PMCID: PMC4809778          DOI: 10.1002/acr.22748

Source DB:  PubMed          Journal:  Arthritis Care Res (Hoboken)        ISSN: 2151-464X            Impact factor:   4.794


  30 in total

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3.  Racial and ethnic disparities in disease activity and function among persons with rheumatoid arthritis from university-affiliated clinics.

Authors:  J L Barton; L Trupin; D Schillinger; S A Gansky; C Tonner; M Margaretten; V Chernitskiy; J Graf; J Imboden; E Yelin
Journal:  Arthritis Care Res (Hoboken)       Date:  2011-09       Impact factor: 4.794

4.  Contributors to self-reported health in a racially and ethnically diverse population: focus on Hispanics.

Authors:  Jessica V V Brewer; Gavin S Miyasato; Margaret A Gates; Teresa M Curto; Susan A Hall; John B McKinlay
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5.  Correlates and predictors of disability in vulnerable US Hispanics with rheumatoid arthritis.

Authors:  George A Karpouzas; Soha Dolatabadi; Rosalinda Moran; Ning Li; Perry M Nicassio; Michael H Weisman
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6.  Limited health literacy is a common finding in a public health hospital's rheumatology clinic and is predictive of disease severity.

Authors:  Joel M Hirsh; Dennis J Boyle; David H Collier; Abbey J Oxenfeld; Alyssa Nash; Itziar Quinzanos; Liron Caplan
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7.  Measuring disparities: bias in the Short Form-36v2 among Spanish-speaking medical patients.

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8.  Evolving self-rated health in middle and old age: how does it differ across Black, Hispanic, and White Americans?

Authors:  Jersey Liang; Ana R Quiñones; Joan M Bennett; Wen Ye; Xiao Xu; Benjamin A Shaw; Mary Beth Ofstedal
Journal:  J Aging Health       Date:  2009-12-01

9.  Racial and ethnic disparities in disease activity in patients with rheumatoid arthritis.

Authors:  Jeffrey D Greenberg; Tanya M Spruill; Ying Shan; George Reed; Joel M Kremer; Jeffrey Potter; Yusuf Yazici; Gbenga Ogedegbe; Leslie R Harrold
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Authors:  Lis Cordingley; Rita Prajapati; Darren Plant; Deborah Maskell; Catharine Morgan; Faisal R Ali; Ann W Morgan; Anthony G Wilson; John D Isaacs; Anne Barton
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Authors:  Caroline McCulley; Patricia Katz; Laura Trupin; Edward H Yelin; Jennifer L Barton
Journal:  J Rheumatol       Date:  2018-09-15       Impact factor: 4.666

2.  The Association Between Yoga Use, Physical Function, and Employment in Adults With Rheumatoid Arthritis.

Authors:  Heather M Greysen; Oi Saeng Hong; Patricia Katz
Journal:  Holist Nurs Pract       Date:  2019 Mar/Apr       Impact factor: 1.000

3.  Health Equity Considerations for Developing and Reporting Patient-reported Outcomes in Clinical Trials: A Report from the OMERACT Equity Special Interest Group.

Authors:  Jennifer Petkovic; Jennifer L Barton; Caroline Flurey; Niti Goel; Christie M Bartels; Cheryl Barnabe; Maarten P T de Wit; Anne Lyddiatt; Diane Lacaille; Vivian Welch; Annelies Boonen; Beverley Shea; Robin Christensen; Lara J Maxwell; Willemina Campbell; Janet Jull; Karine Toupin-April; Jasvinder A Singh; Charles H Goldsmith; Antoine G Sreih; Christoph Pohl; Catherine Hofstetter; Dorcas E Beaton; Rachelle Buchbinder; Francis Guillemin; Peter S Tugwell
Journal:  J Rheumatol       Date:  2017-02-15       Impact factor: 4.666

4.  Validity and Responsiveness of a 10-Item Patient-Reported Measure of Physical Function in a Rheumatoid Arthritis Clinic Population.

Authors:  Elizabeth Wahl; Andrew Gross; Vladimir Chernitskiy; Laura Trupin; Lianne Gensler; Krishna Chaganti; Kaleb Michaud; Patricia Katz; Jinoos Yazdany
Journal:  Arthritis Care Res (Hoboken)       Date:  2017-03       Impact factor: 4.794

5.  The revised Bristol Rheumatoid Arthritis Fatigue measures and the Rheumatoid Arthritis Impact of Disease scale: validation in six countries.

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Journal:  Rheumatology (Oxford)       Date:  2018-02-01       Impact factor: 7.580

6.  Identification and Treatment Optimization of Comorbid Depression in Rheumatoid Arthritis.

Authors:  Mellissa H Withers; Louella T Gonzalez; George A Karpouzas
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7.  Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions.

Authors:  W Benjamin Nowell; Peter A Merkel; Robert N McBurney; Kalen Young; Shilpa Venkatachalam; Dianne G Shaw; Angela Dobes; Emily Cerciello; Laura Kolaczkowski; Jeffrey R Curtis; Michael D Kappelman
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8.  Socioeconomic Disparities in Functional Status in a National Sample of Patients With Rheumatoid Arthritis.

Authors:  Zara Izadi; Jing Li; Michael Evans; Nevin Hammam; Patricia Katz; Alexis Ogdie; Lisa G Suter; Jinoos Yazdany; Gabriela Schmajuk
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  8 in total

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