Literature DB >> 26412232

Predicting Later Study Withdrawal in Participants Active in a Longitudinal Birth Cohort Study for 1 Year: The TEDDY Study.

Suzanne Bennett Johnson1, Kristian F Lynch2, Judith Baxter3, Barbro Lernmark4, Roswith Roth5, Tuula Simell6, Laura Smith2.   

Abstract

OBJECTIVE: To identify predictors of later study withdrawal among participants active in The Environmental Determinants of Diabetes in the Young (TEDDY) for 1 year.
METHODS: Multiple logistic regression was used to discriminate 3,042 children active in TEDDY for the first 3 years from 432 children who withdrew in Years 2 or 3. Predictor variables were tested in blocks-demographic, maternal lifestyle behaviors, stress and child illness, maternal reactions to child's increased diabetes risk, in-study behaviors-and a final best model developed.
RESULTS: Few demographic factors predicted study withdrawal. Maternal lifestyle behaviors, accuracy of the mother's risk perception, and in-study behaviors were more important. Frequent child illnesses were associated with greater study retention.
CONCLUSIONS: Demographic measures are insufficient predictors of later study withdrawal among those active in a study for at least 1 year; behavioral/psychological factors offer improved prediction and guidance for the development of retention strategies.
© The Author 2015. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

Entities:  

Keywords:  adherence; diabetes; genetics and genetic disorders; longitudinal research; prevention/control; research design and methods

Mesh:

Year:  2015        PMID: 26412232      PMCID: PMC5013835          DOI: 10.1093/jpepsy/jsv092

Source DB:  PubMed          Journal:  J Pediatr Psychol        ISSN: 0146-8693


  31 in total

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Authors:  Angela D Liese; Ralph B D'Agostino; Richard F Hamman; Patrick D Kilgo; Jean M Lawrence; Lenna L Liu; Beth Loots; Barbara Linder; Santica Marcovina; Beatriz Rodriguez; Debra Standiford; Desmond E Williams
Journal:  Pediatrics       Date:  2006-10       Impact factor: 7.124

2.  Estimating bias from loss to follow-up in the Danish National Birth Cohort.

Authors:  Naomi Greene; Sander Greenland; Jørn Olsen; Ellen Aagaard Nohr
Journal:  Epidemiology       Date:  2011-11       Impact factor: 4.822

Review 3.  Psychological impact of screening and prediction in type 1 diabetes.

Authors:  Suzanne Bennett Johnson
Journal:  Curr Diab Rep       Date:  2011-10       Impact factor: 4.810

4.  A Candidate-Pathway Approach to Identify Gene-Environment Interactions: Analyses of Colon Cancer Risk and Survival.

Authors:  Noha Sharafeldin; Martha L Slattery; Qi Liu; Conrado Franco-Villalobos; Bette J Caan; John D Potter; Yutaka Yasui
Journal:  J Natl Cancer Inst       Date:  2015-06-13       Impact factor: 13.506

5.  Prospective assessment in newborns of diabetes autoimmunity (PANDA): maternal understanding of infant diabetes risk.

Authors:  Stacy K Carmichael; Suzanne Bennett Johnson; Amy Baughcum; Kerri North; Diane Hopkins; Margaret G Dukes; Jin-Xiong She; Desmond A Schatz
Journal:  Genet Med       Date:  2003 Mar-Apr       Impact factor: 8.822

6.  Spirometric lung function in school-age children: effect of intrauterine growth retardation and catch-up growth.

Authors:  Sarah J Kotecha; W John Watkins; Jonathan Heron; John Henderson; Frank D Dunstan; Sailesh Kotecha
Journal:  Am J Respir Crit Care Med       Date:  2010-01-21       Impact factor: 21.405

7.  Impact of anxiety in the puerperium on breast-feeding outcomes: role of parity.

Authors:  Vincenzo Zanardo; Sara Gasparetto; Arturo Giustardi; Agnese Suppiej; Daniele Trevisanuto; Irene Pascoli; Federica Freato
Journal:  J Pediatr Gastroenterol Nutr       Date:  2009-11       Impact factor: 2.839

8.  Recruitment and retention in a clinical trial for low birth weight, premature infants.

Authors:  W L Constantine; C W Haynes; D Spiker; K Kendall-Tackett; N A Constantine
Journal:  J Dev Behav Pediatr       Date:  1993-02       Impact factor: 2.225

9.  Predictors of drop-out in a multi-centre longitudinal study of participation and quality of life of children with cerebral palsy.

Authors:  Heather O Dickinson; Marion Rapp; Catherine Arnaud; Malin Carlsson; Allan F Colver; Jérôme Fauconnier; Alan Lyons; Marco Marcelli; Susan I Michelsen; Jackie Parkes; Kathryn Parkinson
Journal:  BMC Res Notes       Date:  2012-06-15

10.  Loss to follow-up in cohort studies: bias in estimates of socioeconomic inequalities.

Authors:  Laura D Howe; Kate Tilling; Bruna Galobardes; Debbie A Lawlor
Journal:  Epidemiology       Date:  2013-01       Impact factor: 4.822

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  10 in total

1.  Who Is Enrolling? The Path to Monitoring in Type 1 Diabetes TrialNet's Pathway to Prevention.

Authors:  Emily K Sims; Susan Geyer; Suzanne Bennett Johnson; Ingrid Libman; Laura M Jacobsen; David Boulware; Lisa E Rafkin; Della Matheson; Mark A Atkinson; Henry Rodriguez; Maria Spall; Helena Elding Larsson; Diane K Wherrett; Carla J Greenbaum; Jeffrey Krischer; Linda A DiMeglio
Journal:  Diabetes Care       Date:  2019-09-26       Impact factor: 19.112

2.  Nested case-control data analysis using weighted conditional logistic regression in The Environmental Determinants of Diabetes in the Young (TEDDY) study: A novel approach.

Authors:  Hye-Seung Lee; Kristian F Lynch; Jeffrey P Krischer
Journal:  Diabetes Metab Res Rev       Date:  2019-07-31       Impact factor: 4.876

3.  The feasibility of salivary sample collection in an international pediatric cohort: The the TEDDY study.

Authors:  Roswith Roth; Judith Baxter; Kendra Vehik; Diane Hopkins; Michael Killian; Patricia Gesualdo; Jessica Melin; Barbara Simell; Elisabeth Strauss; Åke Lernmark; Suzanne Bennett Johnson
Journal:  Dev Psychobiol       Date:  2017-05-26       Impact factor: 2.531

4.  The association between stressful life events and respiratory infections during the first 4 years of life: The Environmental Determinants of Diabetes in the Young study.

Authors:  Roswith Roth; Kristian Lynch; Heikki Hyöty; Maria Lönnrot; Kimberly A Driscoll; Suzanne Bennett Johnson
Journal:  Stress Health       Date:  2019-04-04       Impact factor: 3.454

5.  Retention strategies in longitudinal cohort studies: a systematic review and meta-analysis.

Authors:  Samantha Teague; George J Youssef; Jacqui A Macdonald; Emma Sciberras; Adrian Shatte; Matthew Fuller-Tyszkiewicz; Chris Greenwood; Jennifer McIntosh; Craig A Olsson; Delyse Hutchinson
Journal:  BMC Med Res Methodol       Date:  2018-11-26       Impact factor: 4.615

6.  Is staff consistency important to parents' satisfaction in a longitudinal study of children at risk for type 1 diabetes: the TEDDY study.

Authors:  Jessica Melin; Kristian F Lynch; Markus Lundgren; Carin Andrén Aronsson; Helena Elding Larsson; Suzanne Bennett Johnson
Journal:  BMC Endocr Disord       Date:  2022-01-10       Impact factor: 3.263

7.  Respiratory infections are temporally associated with initiation of type 1 diabetes autoimmunity: the TEDDY study.

Authors:  Maria Lönnrot; Kristian F Lynch; Helena Elding Larsson; Åke Lernmark; Marian J Rewers; Carina Törn; Brant R Burkhardt; Thomas Briese; William A Hagopian; Jin-Xiong She; Olli G Simell; Jorma Toppari; Anette-G Ziegler; Beena Akolkar; Jeffrey P Krischer; Heikki Hyöty
Journal:  Diabetologia       Date:  2017-08-02       Impact factor: 10.460

8.  Why do participants drop-out: findings from a prospective pediatric cohort for fever surveillance established at Vellore, southern India.

Authors:  Kulandaipalayam Natarajan Sindhu; Manikandan Srinivasan; Sathyapriya Subramaniam; Anita Shirley David; Venkata Raghava Mohan; Jacob John; Gagandeep Kang
Journal:  BMC Med Res Methodol       Date:  2019-12-30       Impact factor: 4.615

Review 9.  The Environmental Determinants of Diabetes in the Young (TEDDY) Study: 2018 Update.

Authors:  Marian Rewers; Heikki Hyöty; Åke Lernmark; William Hagopian; Jin-Xiong She; Desmond Schatz; Anette-G Ziegler; Jorma Toppari; Beena Akolkar; Jeffrey Krischer
Journal:  Curr Diab Rep       Date:  2018-10-23       Impact factor: 5.430

10.  Vitamin D and probiotics supplement use in young children with genetic risk for type 1 diabetes.

Authors:  J Yang; R N Tamura; U M Uusitalo; C A Aronsson; K Silvis; A Riikonen; N Frank; G Joslowski; C Winkler; J M Norris; S M Virtanen
Journal:  Eur J Clin Nutr       Date:  2017-09-13       Impact factor: 4.884

  10 in total

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