Anne Norup1, Paul B Perrin2, Gustavo Cuberos-Urbano3, Audny Anke4,5, Nada Andelic6,7, Sarah T Doyle2, Maria Cristina Quijano8, Alfonso Caracuel9, Dulce Mar, Irma Guadalupe Espinosa Jove10, Juan Carlos Arango-Lasprilla11. 1. RUBRIC Research Unit on Brain Injury Rehabilitation Copenhagen, Department of Neurorehabilitation, Traumatic Brain Injury Unit, Copenhagen University Hospital, Glostrup, Denmark. 2. Department of Psychology, Virginia Commonwealth University, Richmond, VA, USA. 3. Department of Personality, Assessment and Psychological Treatment, University of Granada, Granada, Spain. 4. Department of Rehabilitation, University Hospital of North Norway, Tromso, Norway. 5. Faculty of Health Sciences, Department of Clinical Medicine, University Tromso, Norway. 6. Department of Physical Medicine and Rehabilitation, Oslo University Hospital, Ulleval, Oslo, Norway. 7. Institute of Health and Society, CHARM (Research Centre for Habilitation and Rehabilitation Models and Services), Faculty of Medicine, University of Oslo, Oslo, Norway. 8. Javeriana University, Cali, Colombia. 9. Department of Developmental and Educational Psychology-Mind, Brain and Behavior Research Center, University of Granada, Granada, Spain. 10. Instituto Nacional de Rehabilitación de México, México City, México. 11. IKERBASQUE, Basque Foundation for Science, University of Deusto, Bilbao, Spain.
Abstract
OBJECTIVE: The objective of this study was to explore differences by country in the importance of family needs after traumatic brain injury (TBI), as well as differences in met/unmet needs. METHOD: Two hundred and seventy-one family members of an individual with TBI in Mexico, Colombia, Spain, Denmark, and Norway completed the Family Needs Questionnaire. RESULTS: Eight of the ten needs rated as most important globally were from the Health Information subscale. Importance ratings on the Health Information, Professional Support, and Involvement With Care subscales were similar across countries, but Mexican family members rated Instrumental Support needs as less important than Colombian, Spanish, and Danish family members, and also rated their Community Support needs as less important than Danish and Spanish family members. Mexican family member's rated emotional support needs as less important than Colombian, Spanish, and Danish family members. Globally, the needs rated as most often met were from the Health Information subscale, and the most unmet needs were from the Emotional Support subscale. CONCLUSION: Despite some similarities across countries several differences were identified, and these can help professionals to provide more culturally appropriate rehabilitation services for family members in order to improve informal care for TBI.
OBJECTIVE: The objective of this study was to explore differences by country in the importance of family needs after traumatic brain injury (TBI), as well as differences in met/unmet needs. METHOD: Two hundred and seventy-one family members of an individual with TBI in Mexico, Colombia, Spain, Denmark, and Norway completed the Family Needs Questionnaire. RESULTS: Eight of the ten needs rated as most important globally were from the Health Information subscale. Importance ratings on the Health Information, Professional Support, and Involvement With Care subscales were similar across countries, but Mexican family members rated Instrumental Support needs as less important than Colombian, Spanish, and Danish family members, and also rated their Community Support needs as less important than Danish and Spanish family members. Mexican family member's rated emotional support needs as less important than Colombian, Spanish, and Danish family members. Globally, the needs rated as most often met were from the Health Information subscale, and the most unmet needs were from the Emotional Support subscale. CONCLUSION: Despite some similarities across countries several differences were identified, and these can help professionals to provide more culturally appropriate rehabilitation services for family members in order to improve informal care for TBI.
Entities:
Keywords:
Traumatic brain injury; caregivers; cultural differences; family needs; global regions
Authors: Pernille Langer Soendergaard; Mia Moth Wolffbrandt; Fin Biering-Sørensen; Malin Nordin; Trine Schow; Juan Carlos Arango-Lasprilla; Anne Norup Journal: Trials Date: 2019-11-27 Impact factor: 2.279
Authors: Annahir N Cariello; Paul B Perrin; Yaneth Rodríguez-Agudelo; Silvia Leonor Olivera Plaza; Maria Cristina Quijano-Martinez; Juan Carlos Arango-Lasprilla Journal: Int J Environ Res Public Health Date: 2020-08-20 Impact factor: 3.390