Literature DB >> 26407522

Success rates for consent and collection of prenatal biological specimens in an epidemiologic survey of child health.

Omar A Abdul-Rahman1, Beatriz Rodriguez2, Sandra R Wadlinger3, Julia Slutsman4, Elizabeth B Boyle5, Lori S Merrill5, Jeffrey Botkin6, Jack Moye4.   

Abstract

BACKGROUND: The National Children's Study (NCS) Vanguard Study began enrollment in January 2009 as an initial pilot study for a planned large-scale, longitudinal U.S. cohort study of the effect of environmental influences on child health and development, with biological and environmental sample collection conducted in seven locations from April 2009 to October 2010. We sought to determine rates of consent for, and success of collection of, maternal and paternal biospecimens before and during pregnancy in the NCS Vanguard Study.
METHODS: Samples of blood, saliva, vaginal swabs, urine, hair, and nails were collected before and during pregnancy. All specimens were sent to a central repository for processing, storage, and quality assessment.
RESULTS: Of 780 pregnant women asked to consent to sample collection, 773 (>99%) agreed, and of 295 nonpregnant women, 292 (99%) agreed. Of 440 fathers asked to consent to sample collection, 435 (99%) agreed. Frequency of successful collection of biospecimens varied depending on sample and visit type. In descending order, the ranges over all visit types of the proportion of expected samples successfully collected from women were: urine, 92.5 to 95.7%; hair, 89.6 to 92.5%; vaginal swab, 84.2 to 88.5%; blood, 74.9 to 78.5%; 2-day saliva, 65.8 to 81.6%; and nails, 76.4 to 76.7%. For fathers, rates were highest for urine (94.9%) and lowest for hair (63.0%).
CONCLUSION: High rates of consent for and collection of a wide variety of biospecimens can be achieved in prospective epidemiologic cohort studies of pregnant women. Ease of sample collection may be a primary factor influencing successful biospecimen collection.
© 2015 Wiley Periodicals, Inc.

Entities:  

Keywords:  biological specimens; biospecimens; consent rate; epidemiologic research methods; genetic samples

Mesh:

Year:  2015        PMID: 26407522      PMCID: PMC4718757          DOI: 10.1002/bdra.23455

Source DB:  PubMed          Journal:  Birth Defects Res A Clin Mol Teratol        ISSN: 1542-0752


  28 in total

1.  Informed Consent in cross-cultural perspective: clinical research in the Tibetan Autonomous Region, PRC.

Authors:  Vincanne Adams; Suellen Miller; Sienna Craig; Phuoc V Le; Micheal Varner
Journal:  Cult Med Psychiatry       Date:  2007-12

2.  Ethics and governance of a longitudinal birth cohort.

Authors:  Karen Birmingham; Alan Doyle
Journal:  Paediatr Perinat Epidemiol       Date:  2009-07       Impact factor: 3.980

3.  Prenatal mercury concentration is associated with changes in DNA methylation at TCEANC2 in newborns.

Authors:  Kelly M Bakulski; HwaJin Lee; Jason I Feinberg; Ellen M Wells; Shannon Brown; Julie B Herbstman; Frank R Witter; Rolf U Halden; Kathleen Caldwell; Mary Ellen Mortensen; Andrew E Jaffe; John Moye; Laura E Caulfield; Yi Pan; Lynn R Goldman; Andrew P Feinberg; M Daniele Fallin
Journal:  Int J Epidemiol       Date:  2015-04-22       Impact factor: 7.196

Review 4.  Children's health and the environment: an overview.

Authors:  Philip J Landrigan; Amir Miodovnik
Journal:  Mt Sinai J Med       Date:  2011 Jan-Feb

5.  Vulnerable populations in research.

Authors:  Vickie A Miracle
Journal:  Dimens Crit Care Nurs       Date:  2010 Sep-Oct

Review 6.  Informed consent: providing information about prenatal examinations.

Authors:  Katja Dahl; Ulrik Kesmodel; Lone Hvidman; Frede Olesen
Journal:  Acta Obstet Gynecol Scand       Date:  2006       Impact factor: 3.636

7.  Updating protections for human subjects involved in research. Project on Informed Consent, Human Research Ethics Group.

Authors:  J Moreno; A L Caplan; P R Wolpe
Journal:  JAMA       Date:  1998-12-09       Impact factor: 56.272

8.  Fetal origins of adult disease: strength of effects and biological basis.

Authors:  D J P Barker; J G Eriksson; T Forsén; C Osmond
Journal:  Int J Epidemiol       Date:  2002-12       Impact factor: 7.196

9.  Offspring of women exposed in utero to diethylstilbestrol (DES): a preliminary report of benign and malignant pathology in the third generation.

Authors:  Linda Titus-Ernstoff; Rebecca Troisi; Elizabeth E Hatch; Marianne Hyer; Lauren A Wise; Julie R Palmer; Raymond Kaufman; Ervin Adam; Kenneth Noller; Arthur L Herbst; William Strohsnitter; Bernard F Cole; Patricia Hartge; Robert N Hoover
Journal:  Epidemiology       Date:  2008-03       Impact factor: 4.822

10.  Privacy and ethics in pediatric environmental health research-part I: genetic and prenatal testing.

Authors:  Celia B Fisher
Journal:  Environ Health Perspect       Date:  2006-10       Impact factor: 9.031

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  4 in total

1.  Willingness of women to participate in obstetrical and pediatric research involving biobanks.

Authors:  Renate D Savich; Beth B Tigges; Lisbeth Iglesias Rios; Joanne McCloskey; Kristine Tollestrup; Robert D Annett
Journal:  J Community Genet       Date:  2019-11-28

2.  Characteristics of Environmental influences on Child Health Outcomes (ECHO) Cohorts Recruited During Pregnancy.

Authors:  Elissa Z Faro; Katherine A Sauder; Amber L Anderson; Anne L Dunlop; Jean M Kerver; Monica McGrath; Mary Roary; Carolyn W Roman; Cara Weidinger; Kathi C Huddleston
Journal:  MCN Am J Matern Child Nurs       Date:  2021 Jul-Aug 01       Impact factor: 1.753

3.  The National Children's Study Archive Model: A 3-Tier Framework for Dissemination of Data and Specimens for General Use and Secondary Analysis.

Authors:  Peter K Gilbertson; Susan Forrester; Linda Andrews; Kathleen McCann; Lydia Rogers; Christina Park; Jack Moye
Journal:  Front Public Health       Date:  2021-03-05

4.  Assessment of Exposure to VOCs among Pregnant Women in the National Children's Study.

Authors:  Elizabeth Barksdale Boyle; Susan M Viet; David J Wright; Lori S Merrill; K Udeni Alwis; Benjamin C Blount; Mary E Mortensen; John Moye; Michael Dellarco
Journal:  Int J Environ Res Public Health       Date:  2016-03-29       Impact factor: 3.390

  4 in total

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