Deborah Hilderson1, Philip Moons2, Kristien Van der Elst3, Koen Luyckx4, Carine Wouters5, René Westhovens6. 1. Centre for Health Services and Nursing Research, Department of Public Health, KU Leuven, Belgium. 2. Centre for Health Services and Nursing Research, Department of Public Health, KU Leuven, Belgium, The Heart Centre, Copenhagen University Hospital, Copenhagen, Denmark, Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden, philip.moons@kuleuven.be. 3. Centre for Health Services and Nursing Research, Department of Public Health, KU Leuven, Belgium, Skeletal Biology and Engineering Research Centre, Department of Development and Regeneration, KU Leuven, Rheumatology, University Hospitals Leuven. 4. School Psychology and Child and Adolescent Development, KU Leuven, Leuven and. 5. Department of Paediatric Rheumatology, University Hospitals Leuven, Belgium. 6. Skeletal Biology and Engineering Research Centre, Department of Development and Regeneration, KU Leuven, Rheumatology, University Hospitals Leuven.
Abstract
OBJECTIVE: To investigate the clinical impact of a brief transition programme for young people with JIA. METHODS: The Devices for Optimization of Transfer and Transition of Adolescents with Rheumatic Disorders (DON'T RETARD) project is a mixed method project in which we first conducted a quasi-experimental study employing a one-group pre-test-post-test with a non-equivalent post-test-only comparison group design. In this quantitative study, we investigated clinical outcomes in patients with JIA and their parents who participated in the transition programme (longitudinal analyses). The post-test scores of this intervention group were compared with those of patients who received usual care (comparative analyses). Second, a qualitative study was conducted to explore the experiences of adolescents with JIA and their parents regarding their participation in the transition programme. RESULTS: The primary hypothesis of improved physical (effect size 0.11), psychosocial (effect size 0.46) and rheumatic-specific health status (effect size ranging from 0.21 to 0.33), was confirmed. With respect to the secondary outcomes, improved quality of life (effect size 0.51) and an optimized parenting climate (effect size ranging from 0.21 to 0.28) were observed. No effect was measured in medication adherence (odds ratio 1.46). CONCLUSION: Implementation of a transition programme as a brief intervention can improve the perceived health and quality of life of adolescents with JIA during the transition process, as well as the parenting behaviours of their parents. Based on the present study, a randomized controlled trial can be designed to evaluate the effectiveness of the transition programme.
RCT Entities:
OBJECTIVE: To investigate the clinical impact of a brief transition programme for young people with JIA. METHODS: The Devices for Optimization of Transfer and Transition of Adolescents with Rheumatic Disorders (DON'T RETARD) project is a mixed method project in which we first conducted a quasi-experimental study employing a one-group pre-test-post-test with a non-equivalent post-test-only comparison group design. In this quantitative study, we investigated clinical outcomes in patients with JIA and their parents who participated in the transition programme (longitudinal analyses). The post-test scores of this intervention group were compared with those of patients who received usual care (comparative analyses). Second, a qualitative study was conducted to explore the experiences of adolescents with JIA and their parents regarding their participation in the transition programme. RESULTS: The primary hypothesis of improved physical (effect size 0.11), psychosocial (effect size 0.46) and rheumatic-specific health status (effect size ranging from 0.21 to 0.33), was confirmed. With respect to the secondary outcomes, improved quality of life (effect size 0.51) and an optimized parenting climate (effect size ranging from 0.21 to 0.28) were observed. No effect was measured in medication adherence (odds ratio 1.46). CONCLUSION: Implementation of a transition programme as a brief intervention can improve the perceived health and quality of life of adolescents with JIA during the transition process, as well as the parenting behaviours of their parents. Based on the present study, a randomized controlled trial can be designed to evaluate the effectiveness of the transition programme.
Authors: Markus Saarijärvi; Lars Wallin; Philip Moons; Hanna Gyllensten; Ewa-Lena Bratt Journal: BMC Health Serv Res Date: 2021-06-10 Impact factor: 2.655
Authors: Anna Lena Brorsson; Ewa-Lena Bratt; Philip Moons; Anna Ek; Elisabeth Jelleryd; Torun Torbjörnsdotter; Carina Sparud-Lundin Journal: BMJ Open Date: 2020-04-14 Impact factor: 2.692