Literature DB >> 27444620

[Transition from pediatric to adult rheumatological care].

K Minden1,2, S Schalm3,4.   

Abstract

Childhood onset rheumatic and musculoskeletal diseases often continue into adulthood. These diseases are associated with a high risk of permanent disability and impairment in the quality of life of people affected. Adolescence and young adulthood represent a particular risk phase for an unfavorable long-term outcome. During this challenging and future health-determining phase at least one in three patients stops seeking regular specialized healthcare and the health status of these people deteriorates after having left pediatric care. The key principles of transitional care have been defined, are generally accepted and are presented in this article. There is emerging evidence of the effectiveness of transitional care programs. The implementation of a structured transition into the routine care of adolescents and young adults with rheumatic diseases is necessary.

Entities:  

Keywords:  Healthcare; Musculoskeletal diseases; Outcome; Quality of life; Rheumatic diseases

Mesh:

Year:  2016        PMID: 27444620     DOI: 10.1007/s00393-016-0140-0

Source DB:  PubMed          Journal:  Z Rheumatol        ISSN: 0340-1855            Impact factor:   1.372


  36 in total

1.  Adolescents with chronic disease. Transition to adult health care.

Authors:  P Rettig; B H Athreya
Journal:  Arthritis Care Res       Date:  1991-12

2.  Disease progression into adulthood and predictors of long-term active disease in juvenile idiopathic arthritis.

Authors:  Anne M Selvaag; Hanne A Aulie; Vibke Lilleby; Berit Flatø
Journal:  Ann Rheum Dis       Date:  2014-10-31       Impact factor: 19.103

Review 3.  Young people first, juvenile idiopathic arthritis second: transitional care in rheumatology.

Authors:  Janet E McDonagh
Journal:  Arthritis Rheum       Date:  2008-08-15

4.  Disease course, outcome, and predictors of outcome in a population-based juvenile chronic arthritis cohort followed for 17 years.

Authors:  Lennart Bertilsson; Boel Andersson-Gäre; Anders Fasth; Ingemar F Petersson; Helena Forsblad-D'elia
Journal:  J Rheumatol       Date:  2013-02-15       Impact factor: 4.666

5.  Supporting the health care transition from adolescence to adulthood in the medical home.

Authors:  W Carl Cooley; Paul J Sagerman
Journal:  Pediatrics       Date:  2011-06-27       Impact factor: 7.124

6.  Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine.

Authors:  R W Blum; D Garell; C H Hodgman; T W Jorissen; N A Okinow; D P Orr; G B Slap
Journal:  J Adolesc Health       Date:  1993-11       Impact factor: 5.012

7.  Cumulative organ damage and prognostic factors in juvenile dermatomyositis: a cross-sectional study median 16.8 years after symptom onset.

Authors:  Helga Sanner; Jan-Tore Gran; Ivar Sjaastad; Berit Flatø
Journal:  Rheumatology (Oxford)       Date:  2009-09-23       Impact factor: 7.580

8.  Young people's satisfaction of transitional care in adolescent rheumatology in the UK.

Authors:  K L Shaw; T R Southwood; J E McDonagh
Journal:  Child Care Health Dev       Date:  2007-07       Impact factor: 2.508

9.  Differences in long-term disease activity and treatment of adult patients with childhood- and adult-onset systemic lupus erythematosus.

Authors:  Aimee O Hersh; Emily von Scheven; Jinoos Yazdany; Pantelis Panopalis; Laura Trupin; Laura Julian; Patricia Katz; Lindsey A Criswell; Edward Yelin
Journal:  Arthritis Rheum       Date:  2009-01-15

Review 10.  A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease.

Authors:  Lorena F Zhang; Jane S W Ho; Sean E Kennedy
Journal:  BMC Pediatr       Date:  2014-01-09       Impact factor: 2.125

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