Literature DB >> 26307530

Disease disclosure, treatment adherence, and behavioural profile in a cohort of vertically acquired HIV-infected adolescents. NeuroCoRISpeS study.

Gabriela Medin1, Cristina García-Navarro1, Marisa Navarro Gomez2, Jose Tomás Ramos Amador3, María José Mellado4, Santiago Jimenez5, María Angeles Muñoz-Fernández5, Pablo Rojo Conejo1, Jesús Saavedra2, Milagros García Hortelano4, Sara Guillén6, María Isabel González-Tomé1.   

Abstract

UNLABELLED: Advances in care and antiretroviral treatment, improved life expectancy and quality of life in children with perinatally-acquired human immunodeficiency virus (HIV) infection. There is increasing interest in the chronic effects of growing up with HIV. The aim of this study was to assess the psychosocial, emotional and behavioural functioning in a cohort of perinatally-acquired HIV-infected adolescents. Data were obtained through semi-structured interviews and the Strengths and Difficulties Questionnaire (SDQ) for emotional and behavioural disorders screening.
RESULTS: A total of 95 patients (58% women) were assessed with a median age of 15 years (11-19.1) and a median age at diagnosis of 1.7 years (0-12.2). The median CD4 count, at the inclusion, was 626 cells/mm(3) (132-998), with 34% (10-52%). Viral load was <50 copies/ml in 72% of patients. Eighty-one per cent knew their diagnosis and optimal adherence was achieved in 53%. Passive coping was reported in 58.4% of the adolescents. Only 7.7% of teenagers had a complete and adequate knowledge of their disease and only 18.2% had shared it with their friends. Six unwanted pregnancies occurred (11% of women). Most of them (90%) attended school but 60% had been held back one or more school years. Overall, SDQ scored a risk of behavioural and emotional problems in 24.5%. The report of behaviours associated with hyperactivity was high in 14.9% of the population and borderline in 18.1%. Adolescents with encephalopathy accounted for 44% of those whose total scores fell in either the abnormal and borderline ranges for emotional difficulties (p = .038).
CONCLUSION: Perinatally-acquired HIV-infected adolescents showed significant psychosocial and behavioural health risks that should bring attention to prevention and health care programmes. An earlier disclosure to children could favour a better psychological adjustment and a better treatment adherence. Future studies are needed to assess the relationship between vertically acquired HIV-infection and hyperactivity.

Entities:  

Keywords:  HIV; adherence; adolescence; disclosure; psychosocial; vertical transmission

Mesh:

Year:  2015        PMID: 26307530     DOI: 10.1080/09540121.2015.1071768

Source DB:  PubMed          Journal:  AIDS Care        ISSN: 0954-0121


  7 in total

1.  Impact of HIV on the health-related quality of life in youth with perinatally acquired HIV.

Authors:  Isabel Cuéllar-Flores; Talía Saínz; Carlos Velo; María Isabel González-Tomé; Cristina García-Navarro; Carolina Fernández-Mcphee; Sara Guillén; José Tomás Ramos; Pilar Miralles; Rafael Rubio; José Ignacio Bernardino; Luis Prieto; Pablo Rojo; Santiago Jiménez de Ory; Maria Luisa Navarro
Journal:  World J Pediatr       Date:  2019-07-08       Impact factor: 2.764

2.  Pregnancy outcomes in perinatally HIV-infected young women in Madrid, Spain: 2000-2015.

Authors:  Luis M Prieto; Carolina Fernández McPhee; Patricia Rojas; Diana Mazariegos; Eloy Muñoz; Maria José Mellado; África Holguín; María Luisa Navarro; María Isabel González-Tomé; José Tomás Ramos
Journal:  PLoS One       Date:  2017-08-25       Impact factor: 3.240

3.  Significant differences between verbal and non-verbal intellectual scales on a perinatally HIV-infected cohort: from pediatrics to young adults.

Authors:  C García-Navarro; S Jimenez de Ory; C Velo Higueras; B Zamora; L Prieto; J T Ramos; M L Navarro; L Escosa-García; R Jurado-Barba; Dolores Falcón; David Moreno; M I González-Tomé
Journal:  Heliyon       Date:  2020-04-25

Review 4.  Adolescents and young adults with early acquired HIV infection in the united states: unique challenges in treatment and secondary prevention.

Authors:  Hasiya Yusuf; Allison Agwu
Journal:  Expert Rev Anti Infect Ther       Date:  2020-11-01       Impact factor: 5.091

5.  Behavioral Functioning and Quality of Life in South African Children Living with HIV on Antiretroviral Therapy.

Authors:  Stephanie Shiau; Henry Evans; Renate Strehlau; Yanhan Shen; Megan Burke; Afaaf Liberty; Ashraf Coovadia; Elaine J Abrams; Michael T Yin; Avy Violari; Louise Kuhn; Stephen M Arpadi
Journal:  J Pediatr       Date:  2020-07-23       Impact factor: 4.406

6.  "When Should I Tell?": Perspectives on Disclosure to Their Children among Parents with Perinatally Acquired HIV.

Authors:  Cynthia D Fair; Hannah Allen; Constance Trexler; Janet Osherow; Lawrence D'Angelo
Journal:  Front Public Health       Date:  2016-06-30

7.  Neuropsychological and Psychosocial Functioning of Children with Perinatal HIV-Infection in The Netherlands.

Authors:  Stefanie E M van Opstal; Emma J Dogterom; Marlies N Wagener; Femke K Aarsen; Harald S Miedema; Pepijn D D M Roelofs; Linda C van der Knaap; Pieter L A Fraaij; Kim Stol; André B Rietman; Eric C M van Gorp; Annemarie M C van Rossum; Elisabeth M W J Utens
Journal:  Viruses       Date:  2021-09-28       Impact factor: 5.048

  7 in total

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