Colleen R Bennett1, Ann Christine Frankowski1, Robert L Rubinstein1, Amanda D Peeples2, Rosa Perez3, Mary Nemec1, Gretchen G Tucker1. 1. Center for Aging Studies, Department of Sociology and Anthropology, University of Maryland, Baltimore County, Baltimore, Maryland. 2. VA Capitol Health Care Network (VISN 5) Mental Illness Research, Education, and Clinical Center, Baltimore VA Medical Center, Baltimore, Maryland. 3. Perez Consulting, Crofton, Maryland.
Abstract
Purpose of the Study: This article explores resident autonomy in assisted living (AL) and the effects that visitors and visiting the AL have on that autonomy. We examine formal and informal policies that govern visiting in AL, stakeholders' views and enforcement of these policies, and the complex arrangements that visiting often entails in everyday life in the setting. Design and Methods: Data are drawn from a multiyear ethnographic study of autonomy in AL. Research from multiple sites included participant observation, informal and in-depth, open-ended interviews of various stakeholders, and the writing of field notes. Research team biweekly discussions and the Atlas.ti software program facilitated coding and analysis of interview transcripts and fieldnotes. Results: Our ethnographic data highlight complicated factors related to visitors and visiting in AL. We discuss two important aspects of visiting: (a) formal and informal policies at each setting; and (b) how resident autonomy is expressed or suppressed through rules about visiting in AL. Implications: Our data underscore the importance of resident autonomy and quality of care in relation to visitors and visiting, especially how this relationship is affected by inconsistent and confusing formal and informal visiting policies in AL.
Purpose of the Study: This article explores resident autonomy in assisted living (AL) and the effects that visitors and visiting the AL have on that autonomy. We examine formal and informal policies that govern visiting in AL, stakeholders' views and enforcement of these policies, and the complex arrangements that visiting often entails in everyday life in the setting. Design and Methods: Data are drawn from a multiyear ethnographic study of autonomy in AL. Research from multiple sites included participant observation, informal and in-depth, open-ended interviews of various stakeholders, and the writing of field notes. Research team biweekly discussions and the Atlas.ti software program facilitated coding and analysis of interview transcripts and fieldnotes. Results: Our ethnographic data highlight complicated factors related to visitors and visiting in AL. We discuss two important aspects of visiting: (a) formal and informal policies at each setting; and (b) how resident autonomy is expressed or suppressed through rules about visiting in AL. Implications: Our data underscore the importance of resident autonomy and quality of care in relation to visitors and visiting, especially how this relationship is affected by inconsistent and confusing formal and informal visiting policies in AL.
Authors: Daniel J Burdick; Adam Rosenblatt; Quincy M Samus; Cynthia Steele; Alva Baker; Michael Harper; Lawrence Mayer; Jason Brandt; Peter Rabins; Constantine G Lyketsos Journal: J Gerontol A Biol Sci Med Sci Date: 2005-02 Impact factor: 6.053