Literature DB >> 26196261

The pediatric heart network: meeting the challenges to multicenter studies in pediatric heart disease.

Kristin M Burns1, Victoria L Pemberton, Gail D Pearson.   

Abstract

PURPOSE OF REVIEW: Because of the relatively small numbers of pediatric patients with congenital heart disease cared for in any individual center, there is a significant need for multicenter clinical studies to validate new medical or surgical therapies. The Pediatric Heart Network (PHN), with 15 years of experience in multicenter clinical research, has tackled numerous challenges when conducting multicenter studies. RECENT
FINDINGS: This review describes the challenges encountered and the strategies employed to conduct high-quality, collaborative research in pediatric cardiovascular disease.
SUMMARY: Sharing lessons learned from the PHN can provide guidance to investigators interested in conducting pediatric multicenter studies.

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Mesh:

Year:  2015        PMID: 26196261      PMCID: PMC5382713          DOI: 10.1097/MOP.0000000000000260

Source DB:  PubMed          Journal:  Curr Opin Pediatr        ISSN: 1040-8703            Impact factor:   2.856


  19 in total

1.  Embedding a randomized clinical trial into an ongoing registry infrastructure: unique opportunities for efficiency in design of the Study of Access site For Enhancement of Percutaneous Coronary Intervention for Women (SAFE-PCI for Women).

Authors:  Connie N Hess; Sunil V Rao; David F Kong; Laura H Aberle; Kevin J Anstrom; C Michael Gibson; Ian C Gilchrist; Alice K Jacobs; Sanjit S Jolly; Roxana Mehran; John C Messenger; L Kristin Newby; Ron Waksman; Mitchell W Krucoff
Journal:  Am Heart J       Date:  2013-07-23       Impact factor: 4.749

2.  Atenolol versus losartan in children and young adults with Marfan's syndrome.

Authors:  Ronald V Lacro; Harry C Dietz; Lynn A Sleeper; Anji T Yetman; Timothy J Bradley; Steven D Colan; Gail D Pearson; E Seda Selamet Tierney; Jami C Levine; Andrew M Atz; D Woodrow Benson; Alan C Braverman; Shan Chen; Julie De Backer; Bruce D Gelb; Paul D Grossfeld; Gloria L Klein; Wyman W Lai; Aimee Liou; Bart L Loeys; Larry W Markham; Aaron K Olson; Stephen M Paridon; Victoria L Pemberton; Mary Ella Pierpont; Reed E Pyeritz; Elizabeth Radojewski; Mary J Roman; Angela M Sharkey; Mario P Stylianou; Stephanie Burns Wechsler; Luciana T Young; Lynn Mahony
Journal:  N Engl J Med       Date:  2014-11-18       Impact factor: 91.245

3.  Lessons learned from a pediatric clinical trial: the Pediatric Heart Network angiotensin-converting enzyme inhibition in mitral regurgitation study.

Authors:  Jennifer S Li; Steven D Colan; Lynn A Sleeper; Jane W Newburger; Victoria L Pemberton; Andrew M Atz; Meryl S Cohen; Fraser Golding; Gloria L Klein; Ronald V Lacro; Elizabeth Radojewski; Marc E Richmond; L Luann Minich
Journal:  Am Heart J       Date:  2011-02       Impact factor: 4.749

4.  Design of a large cross-sectional study to facilitate future clinical trials in children with the Fontan palliation.

Authors:  Lynn A Sleeper; Page Anderson; Daphne T Hsu; Lynn Mahony; Brian W McCrindle; Stephen J Roth; J Phillip Saul; Richard V Williams; Tal Geva; Steven D Colan; Bernard J Clark
Journal:  Am Heart J       Date:  2006-09       Impact factor: 4.749

5.  Thrombus Aspiration in ST-Elevation myocardial infarction in Scandinavia (TASTE trial). A multicenter, prospective, randomized, controlled clinical registry trial based on the Swedish angiography and angioplasty registry (SCAAR) platform. Study design and rationale.

Authors:  Ole Fröbert; Bo Lagerqvist; Thórarinn Gudnason; Leif Thuesen; Roger Svensson; Göran K Olivecrona; Stefan K James
Journal:  Am Heart J       Date:  2010-12       Impact factor: 4.749

6.  Randomized trial of pulsed corticosteroid therapy for primary treatment of Kawasaki disease.

Authors:  Jane W Newburger; Lynn A Sleeper; Brian W McCrindle; L LuAnn Minich; Welton Gersony; Victoria L Vetter; Andrew M Atz; Jennifer S Li; Masato Takahashi; Annette L Baker; Steven D Colan; Paul D Mitchell; Gloria L Klein; Robert P Sundel
Journal:  N Engl J Med       Date:  2007-02-15       Impact factor: 91.245

7.  The Pediatric Heart Network: a primer for the conduct of multicenter studies in children with congenital and acquired heart disease.

Authors:  L Mahony; L A Sleeper; P A W Anderson; W M Gersony; B W McCrindle; L L Minich; J W Newburger; J P Saul; V L Vetter; G D Pearson
Journal:  Pediatr Cardiol       Date:  2006 Mar-Apr       Impact factor: 1.655

8.  Reporting adverse events in a surgical trial for complex congenital heart disease: the Pediatric Heart Network experience.

Authors:  Lisa Virzi; Victoria Pemberton; Richard G Ohye; Sarah Tabbutt; Minmin Lu; Teresa C Atz; Teresa Barnard; Carolyn Dunbar-Masterson; Nancy S Ghanayem; Jeffrey P Jacobs; Linda M Lambert; Alan Lewis; Nancy Pike; Christian Pizarro; Elizabeth Radojewski; David Teitel; Mingfen Xu; Gail D Pearson
Journal:  J Thorac Cardiovasc Surg       Date:  2011-03-12       Impact factor: 5.209

9.  Design and rationale of a randomized trial comparing the Blalock-Taussig and right ventricle-pulmonary artery shunts in the Norwood procedure.

Authors:  Richard G Ohye; J William Gaynor; Nancy S Ghanayem; Caren S Goldberg; Peter C Laussen; Peter C Frommelt; Jane W Newburger; Gail D Pearson; Sarah Tabbutt; Gil Wernovsky; Lisa M Wruck; Andrew M Atz; Steve D Colan; James Jaggers; Brian W McCrindle; Ashwin Prakash; Michael D Puchalski; Lynn A Sleeper; Mario P Stylianou; Lynn Mahony
Journal:  J Thorac Cardiovasc Surg       Date:  2008-05-19       Impact factor: 5.209

10.  Rationale and design of a trial of angiotensin-converting enzyme inhibition in infants with single ventricle.

Authors:  Daphne T Hsu; Seema Mital; Chitra Ravishankar; Renee Margossian; Jennifer S Li; Lynn A Sleeper; Richard V Williams; Jami C Levine; Brian W McCrindle; Andrew M Atz; Darlene Servedio; Lynn Mahony
Journal:  Am Heart J       Date:  2009-01       Impact factor: 4.749

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  3 in total

1.  The Pediatric Heart Network Scholar Award programme: a unique mentored award embedded within a multicentre network.

Authors:  L LuAnn Minich; Victoria L Pemberton; Lara S Shekerdemian; Morgan M Millar; Jane W Newburger; Andrew C Glatz; Eric M Graham; Richard J Czosek; Sara K Pasquali; Mike Seed; William L Border
Journal:  Cardiol Young       Date:  2018-04-16       Impact factor: 1.093

2.  Recruitment, retention, and adherence in a clinical trial: The Pediatric Heart Network's Marfan Trial experience.

Authors:  Michelle S Hamstra; Victoria L Pemberton; Nicholas Dagincourt; Danielle Hollenbeck-Pringle; Felicia L Trachtenberg; James F Cnota; Andrew M Atz; Elizabeth Cappella; Sylvia De Nobele; Josephine Grima; Martha King; Rosalind Korsin; Linda M Lambert; Meghan K MacNeal; Larry W Markham; Gretchen MacCarrick; Donna M Sylvester; Patricia Walter; Mingfen Xu; Ronald V Lacro
Journal:  Clin Trials       Date:  2020-08-21       Impact factor: 2.486

3.  Visualization and Quantification of the Unrepaired Complete Atrioventricular Canal Valve Using Open-Source Software.

Authors:  Hannah H Nam; Christian Herz; Andras Lasso; Alana Cianciulli; Maura Flynn; Jing Huang; Zi Wang; Beatriz Paniagua; Jared Vicory; Saleha Kabir; John Simpson; David Harrild; Gerald Marx; Meryl S Cohen; Andrew C Glatz; Matthew A Jolley
Journal:  J Am Soc Echocardiogr       Date:  2022-05-07       Impact factor: 7.722

  3 in total

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