Sarah E Cohen1, Stephen R Hooper1, Karina Javalkar2, Cara Haberman3, Nicole Fenton1, Hsiao Lai4, John D Mahan5, Susan Massengill6, Maureen Kelly7, Guillermo Cantú8, Mara Medeiros9, Alexandra Phillips10, Gregory Sawicki11, David Wood12, Meredith Johnson1, Mary H Benton10, Maria Ferris13. 1. The University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC. 2. The University of North Carolina at Chapel Hill School of Public Health, 135 Dauer Dr, Chapel Hill, NC. 3. Wake Forest University, 1834 Wake Forest Rd, Winston-Salem, NC; Victory Junction Camp, 4500 Adam's Way, Randleman, NC. 4. The Brody School of Medicine at East Carolina University, 600 Moye Blvd, Greenville, NC. 5. Nationwide Children's Hospital, 700 Children's Dr, Columbus, OH; The Ohio State University, Columbus, OH. 6. Levine Children's Hospital at Carolinas Medical Center, 1000 Blythe Blvd, Charlotte, NC. 7. The University of North Carolina at Chapel Hill School of Nursing, Carrington Hall, CB#7460, Chapel Hill, NC. 8. Escuela de Medicina, Universidad Panamericana, Puerto Vallarta, Mexico. 9. Hospital Infantil de México Federico Gómez, Calle Dr. Márquez 162, Cuahtemoc, Doctores, Ciudad de México, D.F., Mexico. 10. The University of North Carolina at Chapel Hill, Chapel Hill, NC. 11. Boston Children's Hospital, 300 Longwood Ave, Boston, MA. 12. East Tennessee State University James H. Quillen College of Medicine, 178 Maple Avenue, Mountain Home, TN. 13. The University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC. Electronic address: maria_ferris@med.unc.edu.
Abstract
INTRODUCTION: The STARx Questionnaire was designed with patient and provider input, to measure self-management and transition skills in adolescents and young adults (AYA) with chronic health conditions. With proven reliability and an empirically-based factor structure, the self-report STARx Questionnaire requires further validation to demonstrate its clinical and research utility. In this study we examine the concurrent, predictive, and discriminant validity of the STARx Questionnaire. METHODS: To examine concurrent validity, the STARx Questionnaire was compared to two other published transition readiness tools. Predictive validity was examined using linear regressions between the STARx Total Score and literacy, medication adherence, quality of life, and health services use. Discriminant validity was examined by comparing the performance of three chronic illness conditions on the STARx Total Score and associated subscales. RESULTS: The STARx Questionnaire and its subscales positively correlated with the scores for both transition readiness tools reflecting strong concurrent validity. The STARx Questionnaire also correlated positively with the literacy, self-efficacy, and adherence measures indicating strong predictive validity; however, it did not correlate with either quality of life or health care utilization. The performance of AYA across three different clinical conditions was not significant, indicating the clinical utility of this HCT tool for a variety of chronic health conditions. CONCLUSION: The strong validity of the STARx Questionnaire, in tandem with its strong reliability, indicated adequate psychometric properties for this generic self-report measure. These strong psychometric properties should contribute to the STARx being a viable measure of health care transition for both research and clinical purposes.
INTRODUCTION: The STARx Questionnaire was designed with patient and provider input, to measure self-management and transition skills in adolescents and young adults (AYA) with chronic health conditions. With proven reliability and an empirically-based factor structure, the self-report STARx Questionnaire requires further validation to demonstrate its clinical and research utility. In this study we examine the concurrent, predictive, and discriminant validity of the STARx Questionnaire. METHODS: To examine concurrent validity, the STARx Questionnaire was compared to two other published transition readiness tools. Predictive validity was examined using linear regressions between the STARx Total Score and literacy, medication adherence, quality of life, and health services use. Discriminant validity was examined by comparing the performance of three chronic illness conditions on the STARx Total Score and associated subscales. RESULTS: The STARx Questionnaire and its subscales positively correlated with the scores for both transition readiness tools reflecting strong concurrent validity. The STARx Questionnaire also correlated positively with the literacy, self-efficacy, and adherence measures indicating strong predictive validity; however, it did not correlate with either quality of life or health care utilization. The performance of AYA across three different clinical conditions was not significant, indicating the clinical utility of this HCT tool for a variety of chronic health conditions. CONCLUSION: The strong validity of the STARx Questionnaire, in tandem with its strong reliability, indicated adequate psychometric properties for this generic self-report measure. These strong psychometric properties should contribute to the STARx being a viable measure of health care transition for both research and clinical purposes.
Authors: Rachel H F Margolis; Melissa H Bellin; Jaclyn R MacFarlane Bookman; Kathryn S Collins; Mary Elizabeth Bollinger; Cassia Lewis-Land; Arlene M Butz Journal: J Pediatr Health Care Date: 2019-06-26 Impact factor: 1.812
Authors: Swathi Eluri; Wendy M Book; Ellyn Kodroff; Mary Jo Strobel; Jessica H Gebhart; Patricia D Jones; Paul Menard-Katcher; Maria E Ferris; Evan S Dellon Journal: J Pediatr Gastroenterol Nutr Date: 2017-07 Impact factor: 2.839
Authors: Deena J Chisolm; Hannah E Keedy; Laura C Hart; Laura J Chavez; Millie Dolce; Jennifer Morack; Connor Grannis; Kelly Kelleher Journal: J Adolesc Health Date: 2021-05-02 Impact factor: 7.830
Authors: Brian C Zanoni; Moherndran Archary; Thobekile Sibaya; Nicholas Musinguzi; Mary E Kelley; Shauna McManus; Jessica E Haberer Journal: J Int AIDS Soc Date: 2021-07 Impact factor: 5.396
Authors: Meaghan Nazareth; Jordan Richards; Karina Javalkar; Cara Haberman; Yi Zhong; Eniko Rak; Nina Jain; Maria Ferris; Miranda A L van Tilburg Journal: Prev Chronic Dis Date: 2016-07-21 Impact factor: 2.830