Literature DB >> 26137421

Multiple sclerosis in US minority populations: Clinical practice insights.

Omar Khan1, Mitzi J Williams1, Lilyana Amezcua1, Adil Javed1, Kristin E Larsen1, Jennifer M Smrtka1.   

Abstract

The heterogeneity of multiple sclerosis (MS) characteristics among various ethnic minority populations is a topic of recent interest. However, these populations are consistently underrepresented in clinical trials, leading to limited data on the effectiveness of treatments in these groups of patients and lack of an evidence-based approach to treatment. In order to achieve optimal disease management in the ethnic minority MS populations, a better understanding of the regional, socioeconomic, and cultural influences that result in underrepresentation of these groups in clinical trials is needed. Furthermore, it would be beneficial to identify the genetic factors that influence disease disparity in these minority populations. Suggestions for the identification and implementation of best practices for fostering the trust of ethnic minority patients with MS and enhancing their participation in clinical trials are offered.

Entities:  

Year:  2015        PMID: 26137421      PMCID: PMC4404283          DOI: 10.1212/CPJ.0000000000000112

Source DB:  PubMed          Journal:  Neurol Clin Pract        ISSN: 2163-0402


  20 in total

1.  Health services utilization among Latinos and white non-Latinos: results from a national survey.

Authors:  S Guendelman; T H Wagner
Journal:  J Health Care Poor Underserved       Date:  2000-05

2.  Health-related quality of life among informal caregivers assisting people with multiple sclerosis.

Authors:  R Buchanan; C Huang
Journal:  Disabil Rehabil       Date:  2010-05-07       Impact factor: 3.033

3.  Does multiple sclerosis-associated disability differ between races?

Authors:  R A Marrie; G Cutter; T Tyry; T Vollmer; D Campagnolo
Journal:  Neurology       Date:  2006-04-25       Impact factor: 9.910

4.  Encouraging participation of minorities in research studies.

Authors:  Vanessa Diaz
Journal:  Ann Fam Med       Date:  2012 Jul-Aug       Impact factor: 5.166

5.  Rapid disease course in African Americans with multiple sclerosis.

Authors:  I Kister; E Chamot; J H Bacon; P M Niewczyk; R A De Guzman; B Apatoff; P Coyle; A D Goodman; M Gottesman; C Granger; B Jubelt; L Krupp; M Lenihan; F Lublin; C Mihai; A Miller; F E Munschauer; A B Perel; B E Teter; B Weinstock-Guttman; R Zivadinov; J Herbert
Journal:  Neurology       Date:  2010-07-20       Impact factor: 9.910

6.  Multiple sclerosis in Hispanics: a study of clinical disease expression.

Authors:  L Amezcua; B T Lund; L P Weiner; T Islam
Journal:  Mult Scler       Date:  2011-04-05       Impact factor: 6.312

7.  Response to disease modifying therapies in African Americans with multiple sclerosis.

Authors:  Sylvia Klineova; Joyce Nicholas; Aljoeson Walker
Journal:  Ethn Dis       Date:  2012       Impact factor: 1.847

Review 8.  The genetics of multiple sclerosis: review of current and emerging candidates.

Authors:  Maider Muñoz-Culla; Haritz Irizar; David Otaegui
Journal:  Appl Clin Genet       Date:  2013-08-08

Review 9.  Incidence and prevalence of multiple sclerosis in Europe: a systematic review.

Authors:  Elaine Kingwell; James J Marriott; Nathalie Jetté; Tamara Pringsheim; Naila Makhani; Sarah A Morrow; John D Fisk; Charity Evans; Sarah Gabrielle Béland; Sophie Kulaga; Jonathan Dykeman; Christina Wolfson; Marcus W Koch; Ruth Ann Marrie
Journal:  BMC Neurol       Date:  2013-09-26       Impact factor: 2.474

10.  Pathway and network-based analysis of genome-wide association studies in multiple sclerosis.

Authors:  Sergio E Baranzini; Nicholas W Galwey; Joanne Wang; Pouya Khankhanian; Raija Lindberg; Daniel Pelletier; Wen Wu; Bernard M J Uitdehaag; Ludwig Kappos; Chris H Polman; Paul M Matthews; Stephen L Hauser; Rachel A Gibson; Jorge R Oksenberg; Michael R Barnes
Journal:  Hum Mol Genet       Date:  2009-03-13       Impact factor: 6.150

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  33 in total

Review 1.  Ethical Considerations of Patient-Funded Research for Multiple Sclerosis Therapeutics.

Authors:  Lilyana Amezcua; Flavia Nelson
Journal:  Neurotherapeutics       Date:  2017-10       Impact factor: 7.620

2.  Multiple sclerosis in US minority populations: Clinical practice insights.

Authors:  Jagannadha Avasarala
Journal:  Neurol Clin Pract       Date:  2015-06

3.  Brain and retinal atrophy in African-Americans versus Caucasian-Americans with multiple sclerosis: a longitudinal study.

Authors:  Natalia Gonzalez Caldito; Shiv Saidha; Elias S Sotirchos; Blake E Dewey; Norah J Cowley; Jeffrey Glaister; Kathryn C Fitzgerald; Omar Al-Louzi; James Nguyen; Alissa Rothman; Esther Ogbuokiri; Nicholas Fioravante; Sydney Feldman; Ohemaa Kwakyi; Hunter Risher; Dorlan Kimbrough; Teresa C Frohman; Elliot Frohman; Laura Balcer; Ciprian Crainiceanu; Peter C M Van Zijl; Ellen M Mowry; Daniel S Reich; Jiwon Oh; Dzung L Pham; Jerry Prince; Peter A Calabresi
Journal:  Brain       Date:  2018-11-01       Impact factor: 13.501

4.  Racial Disparities in Medicaid Home and Community-Based Service Utilization among White, Black, and Hispanic Adults with Multiple Sclerosis: Implications of State Policy.

Authors:  Chanee D Fabius; Jessica Ogarek; Theresa I Shireman
Journal:  J Racial Ethn Health Disparities       Date:  2019-07-29

Review 5.  Clinical Characteristics of Multiple Sclerosis in African-Americans.

Authors:  Veronica P Cipriani; Sara Klein
Journal:  Curr Neurol Neurosci Rep       Date:  2019-11-13       Impact factor: 5.081

6.  Depressive symptoms and fatigue as predictors of objective-subjective discrepancies in cognitive function in multiple sclerosis.

Authors:  Abbey J Hughes; Jagriti Jackie Bhattarai; Samira Paul; Meghan Beier
Journal:  Mult Scler Relat Disord       Date:  2019-01-31       Impact factor: 4.339

7.  Perceptions of Multiple Sclerosis in Hispanic Americans: Need for Targeted Messaging.

Authors:  Ozioma Obiwuru; Sarah Joseph; Lihua Liu; Ana Palomeque; Leslie Tarlow; Annette M Langer-Gould; Lilyana Amezcua
Journal:  Int J MS Care       Date:  2017 May-Jun

Review 8.  Race and ethnicity on MS presentation and disease course.

Authors:  Lilyana Amezcua; Jacob L McCauley
Journal:  Mult Scler       Date:  2020-01-22       Impact factor: 6.312

9.  Pseudobulbar affect: Prevalence and association with symptoms in multiple sclerosis.

Authors:  Kathryn C Fitzgerald; Amber Salter; Tuula Tyry; Robert J Fox; Gary Cutter; Ruth Ann Marrie
Journal:  Neurol Clin Pract       Date:  2018-12

10.  Muscle Dysfunction and Walking Impairment in Women with Multiple Sclerosis.

Authors:  T Bradley Willingham; Deborah Backus; Kevin K McCully
Journal:  Int J MS Care       Date:  2019 Nov-Dec
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