Jennifer Petkovic1, Jonathan Epstein1, Rachelle Buchbinder1, Vivian Welch1, Tamara Rader1, Anne Lyddiatt1, Rosemary Clerehan1, Robin Christensen1, Annelies Boonen1, Niti Goel1, Lara J Maxwell1, Karine Toupin-April1, Maarten De Wit1, Jennifer Barton1, Caroline Flurey1, Janet Jull1, Cheryl Barnabe1, Antoine G Sreih1, Willemina Campbell1, Christoph Pohl1, Mehmet Tuncay Duruöz1, Jasvinder A Singh1, Peter S Tugwell1, Francis Guillemin1. 1. From the Centre for Global Health, University of Ottawa, Ottawa, Ontario, Canada; University of Lorraine, EA 4360 Apemac, Nancy, France; Cabrini Institute and Monash University, Melbourne, Australia; Bruyère Research Institute, and the Institute of Population Health, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Medicine, Nursing and Health Sciences, Monash University, Australia; Musculoskeletal Statistics Unit, The Parker Institute, Department of Rheumatology, Copenhagen University Hospitals, Bispebjerg and Frederiksberg, Denmark; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht University, Maastricht, The Netherlands; Quintiles Inc.; Division of Rheumatology, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, USA; Children's Hospital of Eastern Ontario Research Institute, Department of Pediatrics, University of Ottawa, Ottawa, Ontario, Canada; VU Medical Centre, Amsterdam, The Netherlands; University of California at San Francisco, San Francisco, California, USA; Faculty of Health and Applied Sciences, University of the West of England, Bristol, UK; Departments of Medicine and Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada; Department of Internal Medicine II Rheumatology, Clinical Immunology, Osteology, Physical Therapy and Sports Medicine, Schlosspark-Klinik, Teaching Hospital of the Charité, University Medicine Berlin, Berlin, Germany; University of Marmara, Faculty of Medicine, Department of Physical and Rehabilitation Medicine, Rheumatology Clinics, Istanbul, Turkey; Birmingham Veterans Affairs Medical Center and University of Alabama at Birmingham, Birmingham, Alabama; Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA; Ottawa Hospital Research Institute, Ottawa; University Health Network (UHN)-Toronto Western Hospital, Toronto, Ontario
Abstract
OBJECTIVE: The goal of the Outcome Measures in Rheumatology (OMERACT) 12 (2014) equity working group was to determine whether and how comprehensibility of patient-reported outcome measures (PROM) should be assessed, to ensure suitability for people with low literacy and differing cultures. METHODS: The English, Dutch, French, and Turkish Health Assessment Questionnaires and English and French Osteoarthritis Knee and Hip Quality of Life questionnaires were evaluated by applying 3 readability formulas: Flesch Reading Ease, Flesch-Kincaid grade level, and Simple Measure of Gobbledygook; and a new tool, the Evaluative Linguistic Framework for Questionnaires, developed to assess text quality of questionnaires. We also considered a study assessing cross-cultural adaptation with/without back-translation and/or expert committee. The results of this preconference work were presented to the equity working group participants to gain their perspectives on the importance of comprehensibility and cross-cultural adaptation for PROM. RESULTS: Thirty-one OMERACT delegates attended the equity session. Twenty-six participants agreed that PROM should be assessed for comprehensibility and for use of suitable methods (4 abstained, 1 no). Twenty-two participants agreed that cultural equivalency of PROM should be assessed and suitable methods used (7 abstained, 2 no). Special interest group participants identified challenges with cross-cultural adaptation including resources required, and suggested patient involvement for improving translation and adaptation. CONCLUSION: Future work will include consensus exercises on what methods are required to ensure PROM are appropriate for people with low literacy and different cultures.
OBJECTIVE: The goal of the Outcome Measures in Rheumatology (OMERACT) 12 (2014) equity working group was to determine whether and how comprehensibility of patient-reported outcome measures (PROM) should be assessed, to ensure suitability for people with low literacy and differing cultures. METHODS: The English, Dutch, French, and Turkish Health Assessment Questionnaires and English and French Osteoarthritis Knee and Hip Quality of Life questionnaires were evaluated by applying 3 readability formulas: Flesch Reading Ease, Flesch-Kincaid grade level, and Simple Measure of Gobbledygook; and a new tool, the Evaluative Linguistic Framework for Questionnaires, developed to assess text quality of questionnaires. We also considered a study assessing cross-cultural adaptation with/without back-translation and/or expert committee. The results of this preconference work were presented to the equity working group participants to gain their perspectives on the importance of comprehensibility and cross-cultural adaptation for PROM. RESULTS: Thirty-one OMERACT delegates attended the equity session. Twenty-six participants agreed that PROM should be assessed for comprehensibility and for use of suitable methods (4 abstained, 1 no). Twenty-two participants agreed that cultural equivalency of PROM should be assessed and suitable methods used (7 abstained, 2 no). Special interest group participants identified challenges with cross-cultural adaptation including resources required, and suggested patient involvement for improving translation and adaptation. CONCLUSION: Future work will include consensus exercises on what methods are required to ensure PROM are appropriate for people with low literacy and different cultures.
Entities:
Keywords:
CULTURAL ADAPTATION; HEALTH EQUITY; LITERACY; MUSCULOSKELETAL CONDITIONS; RHEUMATOLOGY
Authors: Jonathan Epstein; Richard H Osborne; Gerald R Elsworth; Dorcas E Beaton; Francis Guillemin Journal: J Clin Epidemiol Date: 2013-09-29 Impact factor: 6.437
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