Literature DB >> 26071681

Adopting the sensemaking perspective for chronic disease self-management.

Lena Mamykina1, Arlene M Smaldone2, Suzanne R Bakken3.   

Abstract

BACKGROUND: Self-monitoring is an integral component of many chronic diseases; however few theoretical frameworks address how individuals understand self-monitoring data and use it to guide self-management.
PURPOSE: To articulate a theoretical framework of sensemaking in diabetes self-management that integrates existing scholarship with empirical data.
METHODS: The proposed framework is grounded in theories of sensemaking adopted from organizational behavior, education, and human-computer interaction. To empirically validate the framework the researchers reviewed and analyzed reports on qualitative studies of diabetes self-management practices published in peer-reviewed journals from 2000 to 2015.
RESULTS: The proposed framework distinguishes between sensemaking and habitual modes of self-management and identifies three essential sensemaking activities: perception of new information related to health and wellness, development of inferences that inform selection of actions, and carrying out daily activities in response to new information. The analysis of qualitative findings from 50 published reports provided ample empirical evidence for the proposed framework; however, it also identified a number of barriers to engaging in sensemaking in diabetes self-management.
CONCLUSIONS: The proposed framework suggests new directions for research in diabetes self-management and for design of new informatics interventions for data-driven self-management.
Copyright © 2015 The Authors. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Chronic disease; Diabetes; Framework; Self-care

Mesh:

Year:  2015        PMID: 26071681      PMCID: PMC4626451          DOI: 10.1016/j.jbi.2015.06.006

Source DB:  PubMed          Journal:  J Biomed Inform        ISSN: 1532-0464            Impact factor:   6.317


  76 in total

Review 1.  Problem solving in diabetes self-management: a model of chronic illness self-management behavior.

Authors:  Felicia Hill-Briggs
Journal:  Ann Behav Med       Date:  2003

Review 2.  Self-monitoring of blood glucose in patients with type 2 diabetes who are not using insulin: a systematic review.

Authors:  Laura M C Welschen; Evelien Bloemendal; Giel Nijpels; Jacqueline M Dekker; Robert J Heine; Wim A B Stalman; Lex M Bouter
Journal:  Diabetes Care       Date:  2005-06       Impact factor: 19.112

3.  Association of social problem solving with glycemic control in a sample of urban African Americans with type 2 diabetes.

Authors:  Felicia Hill-Briggs; Tiffany L Gary; Hsin-Chieh Yeh; Marian Batts-Turner; Neil R Powe; Christopher D Saudek; Frederick L Brancati
Journal:  J Behav Med       Date:  2006-01-06

4.  Effect of problem-solving-based diabetes self-management training on diabetes control in a low income patient sample.

Authors:  Felicia Hill-Briggs; Mariana Lazo; Mark Peyrot; Angela Doswell; Yi-Ting Chang; Martha N Hill; David Levine; Nae-Yuh Wang; Frederick L Brancati
Journal:  J Gen Intern Med       Date:  2011-03-29       Impact factor: 5.128

5.  The lived experiences of young people (13-16 years) with Type 1 diabetes mellitus and their parents--a qualitative phenomenological study.

Authors:  J E Spencer; H C Cooper; B Milton
Journal:  Diabet Med       Date:  2013-01       Impact factor: 4.359

6.  Expert decision making in relation to unanticipated blood glucose levels.

Authors:  B Paterson; S Thorne
Journal:  Res Nurs Health       Date:  2000-04       Impact factor: 2.228

7.  A qualitative study of problem solving and diabetes control in type 2 diabetes self-management.

Authors:  Felicia Hill-Briggs; Denise C Cooper; Kimberly Loman; Frederick L Brancati; Lisa A Cooper
Journal:  Diabetes Educ       Date:  2003 Nov-Dec       Impact factor: 2.140

8.  A multimedia mobile phone-based youth smoking cessation intervention: findings from content development and piloting studies.

Authors:  Robyn Whittaker; Ralph Maddison; Hayden McRobbie; Chris Bullen; Simon Denny; Enid Dorey; Mary Ellis-Pegler; Jaco van Rooyen; Anthony Rodgers
Journal:  J Med Internet Res       Date:  2008-11-25       Impact factor: 5.428

9.  Type 2 diabetes patients' perspectives on lifestyle counselling and weight management in general practice: a qualitative study.

Authors:  Matthias Wermeling; Ulrike Thiele-Manjali; Janka Koschack; Gabriele Lucius-Hoene; Wolfgang Himmel
Journal:  BMC Fam Pract       Date:  2014-05-15       Impact factor: 2.497

Review 10.  Theory of reasoned action and theory of planned behavior-based dietary interventions in adolescents and young adults: a systematic review.

Authors:  Christine L Hackman; Adam P Knowlden
Journal:  Adolesc Health Med Ther       Date:  2014-06-06
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  25 in total

1.  Divided We Stand: The Collaborative Work of Patients and Providers in an Enigmatic Chronic Disease.

Authors:  Adrienne Pichon; Kayla Schiffer; Emma Horan; Bria Massey; Suzanne Bakken; Lena Mamykina; Noémie Elhadad
Journal:  Proc ACM Hum Comput Interact       Date:  2021-01

2.  A First Step Towards Behavioral Coaching for Managing Stress: A Case Study on Optimal Policy Estimation with Multi-stage Threshold Q-learning.

Authors:  Xinyu Hu; Pei-Yun S Hsueh; Ching-Hua Chen; Keith M Diaz; Ying-Kuen K Cheung; Min Qian
Journal:  AMIA Annu Symp Proc       Date:  2018-04-16

3.  Are Nomothetic or Ideographic Approaches Superior in Predicting Daily Exercise Behaviors?

Authors:  Ying Kuen Cheung; Pei-Yun Sabrina Hsueh; Min Qian; Sunmoo Yoon; Laura Meli; Keith M Diaz; Joseph E Schwartz; Ian M Kronish; Karina W Davidson
Journal:  Methods Inf Med       Date:  2018-02-10       Impact factor: 2.176

Review 4.  Present and Future Trends in Consumer Health Informatics and Patient-Generated Health Data.

Authors:  A M Lai; P-Y S Hsueh; Y K Choi; R R Austin
Journal:  Yearb Med Inform       Date:  2017-09-11

5.  Designing for engagement with self-monitoring: A user-centered approach with low-income, Latino adults with Type 2 Diabetes.

Authors:  Meghan Reading Turchioe; Elizabeth M Heitkemper; Maichou Lor; Marissa Burgermaster; Lena Mamykina
Journal:  Int J Med Inform       Date:  2019-08-02       Impact factor: 4.046

6.  Boundary Negotiating Artifacts in Personal Informatics: Patient-Provider Collaboration with Patient-Generated Data.

Authors:  Chia-Fang Chung; Kristin Dew; Allison Cole; Jasmine Zia; James Fogarty; Julie A Kientz; Sean A Munson
Journal:  CSCW Conf Comput Support Coop Work       Date:  2016-02-27

7.  Closing the Gap: Supporting Patients' Transition to Self-Management after Hospitalization.

Authors:  Ari H Pollack; Uba Backonja; Andrew D Miller; Sonali R Mishra; Maher Khelifi; Logan Kendall; Wanda Pratt
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2016-05

8.  Personal discovery in diabetes self-management: Discovering cause and effect using self-monitoring data.

Authors:  Lena Mamykina; Elizabeth M Heitkemper; Arlene M Smaldone; Rita Kukafka; Heather J Cole-Lewis; Patricia G Davidson; Elizabeth D Mynatt; Andrea Cassells; Jonathan N Tobin; George Hripcsak
Journal:  J Biomed Inform       Date:  2017-09-30       Impact factor: 6.317

9.  Structured scaffolding for reflection and problem solving in diabetes self-management: qualitative study of mobile diabetes detective.

Authors:  Lena Mamykina; Elizabeth M Heitkemper; Arlene M Smaldone; Rita Kukafka; Heather Cole-Lewis; Patricia G Davidson; Elizabeth D Mynatt; Jonathan N Tobin; Andrea Cassells; Carrie Goodman; George Hripcsak
Journal:  J Am Med Inform Assoc       Date:  2016-01-14       Impact factor: 4.497

10.  A Patient-Centered Proposal for Bayesian Analysis of Self-Experiments for Health.

Authors:  Jessica Schroeder; Ravi Karkar; James Fogarty; Julie A Kientz; Sean A Munson; Matthew Kay
Journal:  J Healthc Inform Res       Date:  2018-09-25
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