Claudia Bausewein1, Barbara A Daveson2, David C Currow3, Julia Downing4, Luc Deliens5, Lukas Radbruch6, Kath Defilippi7, Pedro Lopes Ferreira8, Massimo Costantini9, Richard Harding2, Irene J Higginson2. 1. Department of Palliative Medicine, Munich University Hospital, Munich, Germany Claudia.bausewein@med.uni-muenchen.de. 2. King's College London, Cicely Saunders Institute, London, UK. 3. Flinders University, Adelaide, SA, Australia. 4. Makerere University, Kampala, Uganda. 5. Vrije Universiteit Brussel, Brussels, Belgium. 6. University Hospital Bonn, Bonn, Germany. 7. Hospice Palliative Care Association of South Africa, Cape Town, South Africa. 8. University of Coimbra, Coimbra, Portugal. 9. Azienda Ospedaliera Santa Maria Nuova di Reggio Emilia, Italy.
Abstract
BACKGROUND: Outcome measurement plays an increasing role in improving the quality, effectiveness, efficiency and availability of palliative care. AIM: To provide expert recommendations on outcome measurement in palliative care in clinical practice and research. METHODS: Developed by a European Association for Palliative Care Task Force, based on literature searches, international expert workshop, development of outcome measurement guidance and international online survey. A subgroup drafted a first version and circulated it twice to the task force. The preliminary final version was circulated to wider expert panel and 28 international experts across 20 European Association for Palliative Care member associations and the European Association for Palliative Care Board of Directors and revised according to their feedback. The final version was approved by the European Association for Palliative Care Board for adoption as an official European Association for Palliative Care position paper. RESULTS: In all, 12 recommendations are proposed covering key parameters of measures, adequate measures for the task, introduction of outcome measurement into practice, and national and international outcome comparisons and benchmarking. Compared to other recommendations, the White Paper covers similar aspects but focuses more on outcome measurement in clinical care and the wider policy impact of implementing outcome measurement in clinical palliative care. Patient-reported outcome measure feedback improves awareness of unmet need and allows professionals to act to address patients' needs. However, barriers and facilitators have been identified when implementing outcome measurement in clinical care that should be addressed. CONCLUSION: The White Paper recommends the introduction of outcome measurement into practice and outcomes that allow for national and international comparisons. Outcome measurement is key to understanding different models of care across countries and, ultimately, patient outcome having controlled for differing patients characteristics.
BACKGROUND: Outcome measurement plays an increasing role in improving the quality, effectiveness, efficiency and availability of palliative care. AIM: To provide expert recommendations on outcome measurement in palliative care in clinical practice and research. METHODS: Developed by a European Association for Palliative Care Task Force, based on literature searches, international expert workshop, development of outcome measurement guidance and international online survey. A subgroup drafted a first version and circulated it twice to the task force. The preliminary final version was circulated to wider expert panel and 28 international experts across 20 European Association for Palliative Care member associations and the European Association for Palliative Care Board of Directors and revised according to their feedback. The final version was approved by the European Association for Palliative Care Board for adoption as an official European Association for Palliative Care position paper. RESULTS: In all, 12 recommendations are proposed covering key parameters of measures, adequate measures for the task, introduction of outcome measurement into practice, and national and international outcome comparisons and benchmarking. Compared to other recommendations, the White Paper covers similar aspects but focuses more on outcome measurement in clinical care and the wider policy impact of implementing outcome measurement in clinical palliative care. Patient-reported outcome measure feedback improves awareness of unmet need and allows professionals to act to address patients' needs. However, barriers and facilitators have been identified when implementing outcome measurement in clinical care that should be addressed. CONCLUSION: The White Paper recommends the introduction of outcome measurement into practice and outcomes that allow for national and international comparisons. Outcome measurement is key to understanding different models of care across countries and, ultimately, patient outcome having controlled for differing patients characteristics.
Authors: Debra Parker Oliver; George Demiris; Karla Washington; Robin L Kruse; Greg Petroski Journal: Am J Hosp Palliat Care Date: 2016-07-27 Impact factor: 2.500
Authors: Melanie Calvert; Madeleine King; Rebecca Mercieca-Bebber; Olalekan Aiyegbusi; Derek Kyte; Anita Slade; An-Wen Chan; E Basch; Jill Bell; Antonia Bennett; Vishal Bhatnagar; Jane Blazeby; Andrew Bottomley; Julia Brown; Michael Brundage; Lisa Campbell; Joseph C Cappelleri; Heather Draper; Amylou C Dueck; Carolyn Ells; Lori Frank; Robert M Golub; Ingolf Griebsch; Kirstie Haywood; Amanda Hunn; Bellinda King-Kallimanis; Laura Martin; Sandra Mitchell; Thomas Morel; Linda Nelson; Josephine Norquist; Daniel O'Connor; Michael Palmer; Donald Patrick; Gary Price; Antoine Regnault; Ameeta Retzer; Dennis Revicki; Jane Scott; Richard Stephens; Grace Turner; Antonia Valakas; Galina Velikova; Maria von Hildebrand; Anita Walker; Lari Wenzel Journal: BMJ Open Date: 2021-06-30 Impact factor: 2.692