Literature DB >> 26059952

Selling health data: de-identification, privacy, and speech.

Bonnie Kaplan.   

Abstract

Two court cases that involve selling prescription data for pharmaceutical marketing affect biomedical informatics, patient and clinician privacy, and regulation. Sorrell v. IMS Health Inc. et al. in the United States and R v. Department of Health, Ex Parte Source Informatics Ltd. in the United Kingdom concern privacy and health data protection, data de-identification and reidentification, drug detailing (marketing), commercial benefit from the required disclosure of personal information, clinician privacy and the duty of confidentiality, beneficial and unsavory uses of health data, regulating health technologies, and considering data as speech. Individuals should, at the very least, be aware of how data about them are collected and used. Taking account of how those data are used is needed so societal norms and law evolve ethically as new technologies affect health data privacy and protection.

Entities:  

Keywords:  EU Data Protection Directive; Ex Parte Source Informatics Ltd.; HIPPA; R v. Department of Health; Sorrell v. IMS Health Inc.; big data; confidentiality; data mining; de-identification; health data privacy; health data sale; health records; pharmaceutical marketing

Mesh:

Year:  2015        PMID: 26059952     DOI: 10.1017/S0963180114000589

Source DB:  PubMed          Journal:  Camb Q Healthc Ethics        ISSN: 0963-1801            Impact factor:   1.284


  10 in total

Review 1.  Consumer Health Informatics: Past, Present, and Future of a Rapidly Evolving Domain.

Authors:  G Demiris
Journal:  Yearb Med Inform       Date:  2016-05-20

2.  [Between Huxley and Orwell: Big Data and Health].

Authors:  Jorge Alberto Álvarez Díaz; Eduardo Alfredo Duro; Ida Cristina Gubert; Carmen Alicia Cardozo de Martínez; María Angélica Sotomayor; Luis López; Alejandro Duro; Rosa Niño Moya; Patricia Sorokin
Journal:  Rev Lat Sociol       Date:  2018-10-23

3.  Privacy versus Convenience: A Historical Perspective, Analysis of Risks, and an Informatics Call to Action.

Authors:  Larry Ozeran; Anthony Solomonides; Richard Schreiber
Journal:  Appl Clin Inform       Date:  2021-05-05       Impact factor: 2.342

4.  Data Safe Havens and Trust: Toward a Common Understanding of Trusted Research Platforms for Governing Secure and Ethical Health Research.

Authors:  Nathan Christopher Lea; Jacqueline Nicholls; Christine Dobbs; Nayha Sethi; James Cunningham; John Ainsworth; Martin Heaven; Trevor Peacock; Anthony Peacock; Kerina Jones; Graeme Laurie; Dipak Kalra
Journal:  JMIR Med Inform       Date:  2016-06-21

5.  Stigma, biomarkers, and algorithmic bias: recommendations for precision behavioral health with artificial intelligence.

Authors:  Colin G Walsh; Beenish Chaudhry; Prerna Dua; Kenneth W Goodman; Bonnie Kaplan; Ramakanth Kavuluru; Anthony Solomonides; Vignesh Subbian
Journal:  JAMIA Open       Date:  2020-01-22

6.  Implementing the FAIR Data Principles in precision oncology: review of supporting initiatives.

Authors:  Charles Vesteghem; Rasmus Froberg Brøndum; Mads Sønderkær; Mia Sommer; Alexander Schmitz; Julie Støve Bødker; Karen Dybkær; Tarec Christoffer El-Galaly; Martin Bøgsted
Journal:  Brief Bioinform       Date:  2020-05-21       Impact factor: 11.622

Review 7.  Selecting Privacy-Enhancing Technologies for Managing Health Data Use.

Authors:  Sara Jordan; Clara Fontaine; Rachele Hendricks-Sturrup
Journal:  Front Public Health       Date:  2022-03-16

8.  The patient perspective in health care networks.

Authors:  Kasper Raus; Eric Mortier; Kristof Eeckloo
Journal:  BMC Med Ethics       Date:  2018-06-05       Impact factor: 2.652

9.  Is there a duty to participate in digital epidemiology?

Authors:  Brent Mittelstadt; Justus Benzler; Lukas Engelmann; Barbara Prainsack; Effy Vayena
Journal:  Life Sci Soc Policy       Date:  2018-05-09

Review 10.  The Academic Viewpoint on Patient Data Ownership in the Context of Big Data: Scoping Review.

Authors:  Martin Mirchev; Iskra Mircheva; Albena Kerekovska
Journal:  J Med Internet Res       Date:  2020-08-18       Impact factor: 5.428

  10 in total

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