Literature DB >> 31788455

[Between Huxley and Orwell: Big Data and Health].

Jorge Alberto Álvarez Díaz1, Eduardo Alfredo Duro2, Ida Cristina Gubert3, Carmen Alicia Cardozo de Martínez4, María Angélica Sotomayor5, Luis López6, Alejandro Duro7, Rosa Niño Moya8, Patricia Sorokin9.   

Abstract

When in 1966 the United Nations stated in its International Covenant on Civil and Political Rights, the ideal of a free human being with respect to his privacy through the prohibition of arbitrary interference in his private life, it was not possible to imagine the impact of global unlimited connectivity, autonomy of new information technologies, the development of huge interconnected databases, the independent and unrestricted circulation of data, which have led to ethical and legal questions arising from this to treat personal and health data.

Entities:  

Keywords:  Big Data; Ethics; Health; Internet; Privacy; Security

Year:  2018        PMID： 31788455      PMCID： PMC6884319          DOI： 10.17979/relaso.2018.8.2.2951

Source DB:  PubMed          Journal:  Rev Lat Sociol        ISSN： 2253-6469


  17 in total

1.  Ethical Issues in Big Data Health Research: Currents in Contemporary Bioethics.

Authors:  Mark A Rothstein
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

2.  Big Data Clinical Research: Validity, Ethics, and Regulation.

Authors:  E Andrew Balas; Marlo Vernon; Farah Magrabi; Lynne Thomas Gordon; Joanne Sexton
Journal:  Stud Health Technol Inform       Date:  2015

3.  Reforming the HIPAA Privacy Rule: safeguarding privacy and promoting research.

Authors:  Lawrence O Gostin; Sharyl Nass
Journal:  JAMA       Date:  2009-04-01       Impact factor: 56.272

4.  Big data opportunities for social behavioral and mental health research.

Authors:  Oliver Gruebner; Martin Sykora; Sarah R Lowe; Ketan Shankardass; Sandro Galea; S V Subramanian
Journal:  Soc Sci Med       Date:  2017-07-22       Impact factor: 4.634

5.  The Hippocratic bargain and health information technology.

Authors:  Mark A Rothstein
Journal:  J Law Med Ethics       Date:  2010       Impact factor: 1.718

6.  How Should Health Data Be Used?

Authors:  Bonnie Kaplan
Journal:  Camb Q Healthc Ethics       Date:  2016-04       Impact factor: 1.284

7.  Detecting influenza epidemics using search engine query data.

Authors:  Jeremy Ginsberg; Matthew H Mohebbi; Rajan S Patel; Lynnette Brammer; Mark S Smolinski; Larry Brilliant
Journal:  Nature       Date:  2009-02-19       Impact factor: 49.962

8.  Ethical challenges of big data in public health.

Authors:  Effy Vayena; Marcel Salathé; Lawrence C Madoff; John S Brownstein
Journal:  PLoS Comput Biol       Date:  2015-02-09       Impact factor: 4.475

9.  Protecting the confidentiality and security of personal health information in low- and middle-income countries in the era of SDGs and Big Data.

Authors:  Eduard J Beck; Wayne Gill; Paul R De Lay
Journal:  Glob Health Action       Date:  2016-11-23       Impact factor: 2.640

Review 10.  Social media and internet-based data in global systems for public health surveillance: a systematic review.

Authors:  Edward Velasco; Tumacha Agheneza; Kerstin Denecke; Göran Kirchner; Tim Eckmanns
Journal:  Milbank Q       Date:  2014-03       Impact factor: 4.911
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