Literature DB >> 26002492

Perception of Value and the Minimally Conscious State.

Stephen Napier1.   

Abstract

The "disability paradox" is the idea that for those who become severely disabled, their own quality of life (QoL) assessment remains at or slightly below the QoL assessments of normal controls. This is a source of skepticism regarding third-person QoL judgments of the disabled. I argue here that this skepticism applies as well to those who are in the minimally conscious state (MCS). For rather simple means of sustaining an MCS patient's life (for example, tube feeding), the cost of being wrong that the patient would not want further support is high. Pair this cost with the reason to be skeptical of third-person judgments, and my argument suggests not withholding food and water from MCS patients.

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Year:  2015        PMID: 26002492     DOI: 10.1007/s10730-015-9281-9

Source DB:  PubMed          Journal:  HEC Forum        ISSN: 0956-2737


  18 in total

Review 1.  The locked-in syndrome: a syndrome looking for a therapy.

Authors:  José León-Carrión; Philippe van Eeckhout; María Del Rosario Domínguez-Morales
Journal:  Brain Inj       Date:  2002-07       Impact factor: 2.311

Review 2.  Threats to "informed" advance directives for the severely physically challenged?

Authors:  John R Bach
Journal:  Arch Phys Med Rehabil       Date:  2003-04       Impact factor: 3.966

3.  Hypothetical autonomy and actual autonomy: some problem cases involving advance directives.

Authors:  Michael J Wreen
Journal:  J Clin Ethics       Date:  2004

Review 4.  The locked-in syndrome : what is it like to be conscious but paralyzed and voiceless?

Authors:  Steven Laureys; Frédéric Pellas; Philippe Van Eeckhout; Sofiane Ghorbel; Caroline Schnakers; Fabien Perrin; Jacques Berré; Marie-Elisabeth Faymonville; Karl-Heinz Pantke; Francois Damas; Maurice Lamy; Gustave Moonen; Serge Goldman
Journal:  Prog Brain Res       Date:  2005       Impact factor: 2.453

Review 5.  The minimally conscious state: definition and diagnostic criteria.

Authors:  Joseph T Giacino; S Ashwal; N Childs; R Cranford; B Jennett; D I Katz; J P Kelly; J H Rosenberg; J Whyte; R D Zafonte; N D Zasler
Journal:  Neurology       Date:  2002-02-12       Impact factor: 9.910

6.  fMRI reveals large-scale network activation in minimally conscious patients.

Authors:  N D Schiff; D Rodriguez-Moreno; A Kamal; K H S Kim; J T Giacino; F Plum; J Hirsch
Journal:  Neurology       Date:  2005-02-08       Impact factor: 9.910

7.  Impairment, activity, participation, life satisfaction, and survival in persons with locked-in syndrome for over a decade: follow-up on a previously reported cohort.

Authors:  Jennifer E Doble; Andrew J Haig; Christopher Anderson; Richard Katz
Journal:  J Head Trauma Rehabil       Date:  2003 Sep-Oct       Impact factor: 2.710

8.  Quality of life following spinal cord injury: knowledge and attitudes of emergency care providers.

Authors:  K A Gerhart; J Koziol-McLain; S R Lowenstein; G G Whiteneck
Journal:  Ann Emerg Med       Date:  1994-04       Impact factor: 5.721

Review 9.  Detecting consciousness: a unique role for neuroimaging.

Authors:  Adrian M Owen
Journal:  Annu Rev Psychol       Date:  2012-10-02       Impact factor: 24.137

10.  A survey on self-assessed well-being in a cohort of chronic locked-in syndrome patients: happy majority, miserable minority.

Authors:  Marie-Aurélie Bruno; Jan L Bernheim; Didier Ledoux; Frédéric Pellas; Athena Demertzi; Steven Laureys
Journal:  BMJ Open       Date:  2011-02-23       Impact factor: 2.692

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