Helmut Ellemunter1,2, Katja Stahl3, Ulrike Smrekar4,5, Gratiana Steinkamp6,7. 1. CF Centre, Medical University of Innsbruck, Anichstraße 35, 6020, Innsbruck, Austria. helmut.ellemunter@i-med.ac.at. 2. Division of Cardiology, Pulmonology, Allergology, Cystic Fibrosis, Medical University of Innsbruck, Anichstrasse 35, 6020, Innsbruck, Austria. helmut.ellemunter@i-med.ac.at. 3. Picker Institut Deutschland gGmbH, Kieler Str. 2, 22769, Hamburg, Germany. stahl@pickerinstitut.de. 4. CF Centre, Medical University of Innsbruck, Anichstraße 35, 6020, Innsbruck, Austria. ulrike.smrekar@uki.at. 5. Department of Medical Psychology, Medical University of Innsbruck, Schöpfstraße 23a, 6020, Innsbruck, Austria. ulrike.smrekar@uki.at. 6. CF Centre, Medical University of Innsbruck, Anichstraße 35, 6020, Innsbruck, Austria. steinkamp@med-wiss.com. 7. Clinical Research, Reutzstr. 1, 19055, Schwerin, Germany. steinkamp@med-wiss.com.
Abstract
UNLABELLED: Medical care for persons with chronic diseases like cystic fibrosis (CF) is provided by multi-professional teams. We assessed the patients' perspective of care by reporting the results of two consecutive patient satisfaction surveys performed within a 2-year interval at our CF centre. The newly developed, disease-specific questionnaire for parents and adults had 104 items with up to 6 response categories each. For data analysis, responses were dichotomized into a problem score with 0 % as the ideal result. Adolescents were surveyed using a different questionnaire. Seventy-six and 89 respondents, respectively, took part in the 2009 and 2011 surveys (response rates: 72 to 84 %). In 2009, the ideal problem score of 0 % was reported for 18 and 20 % of all items in adults and parents, respectively. Thirteen items had a problem score >30 %. After the whole team had implemented quality improvement measures, the 2011 survey showed a >10 % decrease in problem scores for 11 and 21 % of items in the adults and parents groups, respectively. Adolescents also reported better experiences in 2011 than in 2009. CONCLUSION: Exploring the patients' perspectives aids to identify strengths and weaknesses and helps to provide patient-centred care, which is important for persons with chronic illness.
UNLABELLED: Medical care for persons with chronic diseases like cystic fibrosis (CF) is provided by multi-professional teams. We assessed the patients' perspective of care by reporting the results of two consecutive patient satisfaction surveys performed within a 2-year interval at our CF centre. The newly developed, disease-specific questionnaire for parents and adults had 104 items with up to 6 response categories each. For data analysis, responses were dichotomized into a problem score with 0 % as the ideal result. Adolescents were surveyed using a different questionnaire. Seventy-six and 89 respondents, respectively, took part in the 2009 and 2011 surveys (response rates: 72 to 84 %). In 2009, the ideal problem score of 0 % was reported for 18 and 20 % of all items in adults and parents, respectively. Thirteen items had a problem score >30 %. After the whole team had implemented quality improvement measures, the 2011 survey showed a >10 % decrease in problem scores for 11 and 21 % of items in the adults and parents groups, respectively. Adolescents also reported better experiences in 2011 than in 2009. CONCLUSION: Exploring the patients' perspectives aids to identify strengths and weaknesses and helps to provide patient-centred care, which is important for persons with chronic illness.
Authors: G Lyratzopoulos; M Elliott; J M Barbiere; A Henderson; L Staetsky; C Paddison; J Campbell; M Roland Journal: BMJ Qual Saf Date: 2011-09-07 Impact factor: 7.035