| Literature DB >> 25896033 |
Yi-Chia Wang1, Robert E Kraut, John M Levine.
Abstract
BACKGROUND: Although many people with serious diseases participate in online support communities, little research has investigated how participants elicit and provide social support on these sites.Entities:
Keywords: emotions; health communication; natural language processing; self-disclosure; social media; social support; support groups
Mesh:
Year: 2015 PMID: 25896033 PMCID: PMC4419194 DOI: 10.2196/jmir.3558
Source DB: PubMed Journal: J Med Internet Res ISSN: 1438-8871 Impact factor: 5.428
Figure 1Conceptual model of social support elicitation and provision.
The tasks Turkers performed and the resulting intraclass correlation (ICC) for each construct.
| Construct | ICC | Definition for Turkers | Prompt for Turkers | |
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| Emotional self-disclosure is concerned with the extent to which the writer has discussed her feelings and emotions with others, such as happiness, fears, sadness, and anger. |
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| Positive emotional self-disclosure | 0.90 | Example of positive emotional self-disclosure: “Now that chemo is done, I find myself waking up in the morning feeling a huge burden has been lifted from my shoulders.” | To what extent does this message contain positive emotional self-disclosure? |
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| Negative emotional self-disclosure | 0.94 | Example of negative emotional self-disclosure: “I am freaked out after reading my mammogram report.” | To what extent does this message contain negative emotional self-disclosure? |
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| Informational self-disclosure is concerned with the extent to which the writer has discussed her personal information with others, such as health conditions, diagnosis results, and family status. Informational self-disclosure can be related to the positive, negative, or neutral life events of the writer. |
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| Positive informational self-disclosure | 0.85 | Example of positive informational self-disclosure: “Took family to Cleveland Zoo for the first time in years and years.” | To what extent does this message contain positive informational self-disclosure? |
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| Negative informational self-disclosure | 0.91 | Example of negative informational self-disclosure: “I found a lump in my armpit about 5 weeks ago. It’s not fixed, but moveable. I have periodic tingling or single sharp pains in my left breast every once in a while.” | To what extent does this message contain negative informational self-disclosure? |
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| 0.91 | When asking a question, the writer is requesting a response from the group. Questions can be asked directly and indirectly. Examples of questions: | To what extent is this message asking a question? | |
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| Emotional support elicitation | 0.91 | When seeking emotional support, the writer is trying to get understanding, encouragement, affirmation, sympathy, or caring. | To what extent is this message seeking emotional support? |
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| Informational support elicitation | 0.95 | When seeking informational support, the writer is trying to get advice, referrals, or knowledge. | To what extent is this message seeking informational support? |
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| There are 2 kinds of social support: emotional support and informational support. |
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| Provide emotional support | 0.92 | Emotional support messages provide understanding, encouragement, affirmation, sympathy, or caring. | How much emotional support does this message provide? |
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| Provide informational support | 0.92 | Informational support messages provide advice, referrals, or knowledge. | How much informational support does this message provide? |
Descriptive statistics and correlations among constructs coded by Turkers.
| Variable | Mean (SD) | 1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 |
| 1. Positive emotional disclosure | 1.55 (0.96) | 1 |
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| 2. Negative emotional disclosure | 2.39 (1.52) | –.06 | 1 |
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| 3. Positive informational disclosure | 1.89 (1.09) | .76 | –.09 | 1 |
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| 4. Negative informational disclosure | 3.58 (1.72) | –.17 | .68 | –.24 | 1 |
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| 5. Question asking | 4.94 (2.17) | –.35 | .06 | –.34 | .31 | 1 |
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| 6. Emotional support elicitation | 2.75 (1.66) | .13 | .79 | .09 | .58 | –.11 | 1 |
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| 7. Informational support elicitation | 4.21 (2.01) | –.36 | –.06 | –.37 | .26 | .88 | –.28 | 1 |
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| 8. Provide emotional support | 2.68 (1.43) | .16 | .39 | .14 | .32 | –.17 | .49 | –.24 | 1 |
| 9. Provide informational support | 2.93 (1.47) | –.23 | –.01 | –.23 | .17 | .42 | –.13 | .49 | –.17 |
Figure 2Path model showing the analysis of the social support communication process based on Turker-coded data. Values represent standardized regression coefficients. ε1 and ε2 represent error terms. * P<05; ** P<01; *** P<001.
Figure 3Direct effects of language features in a thread-starting post on the perception that the poster was seeking emotional and informational support and on the receipt of emotional and informational support. Values represent standardized regression coefficients. ε1, ε2, ε3, and ε4 indicate error terms. * P<.05; ** P<.01; *** P<.001.
Samples of vocabulary in latent Dirichlet allocation (LDA) topic dictionaries.
| LDA topic | Sample vocabulary |
| Prediagnosis | Told, appointment, wait, back |
| Treatment plan | Clinical, risk, medicine, therapy |
| Forum communication | Post, read, help, thread |
| Adjusting to diagnosis | Understand, trying, experience |
| Financial concerns | Insurance, plan, company, pay |
| Lymphedema | Arm, pain, swelling, fluid, area |
| Diet | Eat, weight, food, exercise, body |
| Family/friends | Daughter, sister, wife |
| Positive life events | Love, nice, happy, enjoy, fun |
| Surgery | Breast, surgeon, mastectomy |
| Thoughts/feelings | Think, remember, believe |
| Chemoradiation | Chemo, radiation, treatment |
| Family history | Mom, children, age, young |
| Emotional reaction | Better, lucky, scared |
| Tumor treatment | Biopsy, nodes, positive, report |
| Spiritual | Love, god, prayer, bless, peace |
| Emotional support | Hope, hug, glad, sorry, best, luck |
| Routine/schedule | Today, night, sleep, work |
| Hair loss/appearance | Hair, wig, grow, head |
| Postsurgery problems | Pain, blood, tamoxifen, symptom |
Mapping of language features onto language usage domains.
| Language features and usage domains | LIWC | LDA topics | Syntax |
| Body | Biology processes, death | Prediagnosis, treatment plan, adjusting to diagnosis, lymphedema, diet, surgery, chemo radiation, family history, tumor treatment, hairloss and appearance, postsurgery problems | Drug |
| Positive/negative emotions and events | Sentiment, cognitive mechanism | Financial concerns, positive life events, thoughts and feelings, emotional reaction, emotional support | State, subjectivity |
| Social | Pronouns | Forum communication, family and friends | — |
| Spiritual | Religion | Spiritual | — |
| Time | Time | Routine and schedule | — |
| Language structure | Tense | — | Length, negation, part-of-speech, advice pattern, question pattern |
Accuracy and features for 7 machine learning models.
| Machine learning model and top 10 features | Accuracy (Pearson | Feature weight of SMOregb | |
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| .44 |
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| Positive emotion |
| 0.32 |
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| Word count per sentence |
| 0.28 |
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| Religion |
| 0.25 |
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| <Please + VERB> |
| –0.21 |
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| Sentence count |
| 0.16 |
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| <SUBJECT_I + positive_ADJECTIVE> |
| 0.13 |
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| Negation |
| –0.10 |
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| We |
| 0.07 |
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| Financial concerns |
| –0.07 |
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| Strong subjectivity |
| 0.07 |
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| .59 |
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| Anxiety |
| 1.18 |
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| Anger |
| 0.51 |
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| <SUBJECT_I> |
| 0.40 |
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| Sadness |
| 0.28 |
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| <SUBJECT_I + negative_ADJECTIVE> |
| 0.27 |
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| Death |
| 0.23 |
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| Negation |
| 0.18 |
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| Strong subjectivity |
| 0.17 |
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| Word count per sentence |
| 0.14 |
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| Sentence count |
| 0.14 |
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| .45 |
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| Positive emotion |
| 0.31 |
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| Religion |
| 0.27 |
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| Sadness |
| –0.25 |
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| Sentence count |
| 0.25 |
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| Word count per sentence |
| 0.23 |
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| <Please + VERB> |
| –0.20 |
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| <SUBJECT_I + positive_ADJECTIVE> |
| 0.16 |
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| Routine and schedule |
| 0.13 |
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| Biological processes |
| –0.13 |
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| Auxiliary verb |
| –0.12 |
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| .64 |
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| Anxiety |
| 0.42 |
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| Sentence count |
| 0.41 |
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| Any |
| 0.32 |
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| Biological processes |
| 0.28 |
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| Tumor treatment |
| 0.26 |
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| <SUBJECT_I> |
| 0.26 |
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| <SUBJECT_I + positive_ADJECTIVE> |
| –0.25 |
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| Anger |
| 0.24 |
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| I |
| 0.23 |
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| Lymphedema |
| 0.21 |
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| .78 |
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| Sentence count |
| –0.82 |
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| Religion |
| –0.72 |
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| Word count per sentence |
| –0.64 |
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| Positive emotion |
| –0.59 |
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| Question marks |
| 0.52 |
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| Any |
| 0.50 |
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| Proper nouns |
| –0.40 |
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| <Please + VERB> |
| 0.36 |
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| Spiritual |
| –0.30 |
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| Negation |
| 0.27 |
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| .81 |
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| Sentence count |
| 0.55 |
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| Emotional support |
| 0.46 |
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| We |
| 0.45 |
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| She/He |
| –0.44 |
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| You |
| 0.37 |
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| Question marks |
| –0.33 |
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| Strong subjectivity |
| 0.24 |
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| Adjusting to diagnosis |
| 0.23 |
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| Be verbs |
| 0.23 |
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| Positive life events |
| –0.23 |
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| .85 |
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| Sentence count |
| 1.13 |
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| Word count per sentence |
| 0.38 |
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| Question marks |
| –0.33 |
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| Spiritual |
| –0.26 |
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| Postsurgery problems |
| 0.22 |
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| I |
| –0.20 |
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| <If + you> |
| 0.20 |
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| Strong subjectivity |
| –0.19 |
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| Forum communication |
| –0.17 |
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| Tumor treatment |
| 0.16 |
a The accuracy correlation is the Pearson product moment correlation between the average of 10 human judgments and the output of the machine learning model.
b The output feature weight of the support vector machine regression model shows the strength of the association between the presence of a feature in a message and human judgments of that message.
Descriptive statistics and correlations among constructs using machine learning (N=58,357 discussion threads).
| Variablea | Mean (SD) | 1 | 2 | 3 | 4 | 5 | 6 |
| 1. Positive emotional disclosure | 1.27 (0.26) | 1 |
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| 2. Negative emotional disclosure | 2.29 (1.08) | .19 | 1 |
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| 3. Positive informational disclosure | 1.67 (0.41) | .83 | .14 | 1 |
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| 4. Negative informational disclosure | 3.69 (1.26) | –.05 | .67 | .04 | 1 |
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| 5. Question | 5.26 (1.29) | –.53 | .16 | –.48 | .50 | 1 |
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| 6. Provide emotional support | 2.64 (1.06) | .24 | .23 | .24 | .17 | –.13 | 1 |
| 7. Provide informational support | 2.95 (1.18) | –.22 | .08 | –.20 | .21 | .36 | –.16 |
a All variables were estimates from machine learning models predicting the amount a message contained the constructs in the first column, rated on a 7-point Likert scale where 1=not at all and 7=very much. The self-disclosure and question measures were based on the thread-starting message, whereas the measures of emotional and informational support were based on the first reply received in the thread.
Figure 4Path model showing the analysis of the social support communication process based on machine-coded data. ε1 and ε2 indicate error terms. All P values <.001.
Results of the survival analysis.
| Predictor variables | Hazard ratio | SE |
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| Has a profile | 0.511 | 0.010 | <.001 |
| % Thread starters | 0.853 | 0.010 | <.001 |
| Post count exposure | 0.343 | 0.012 | <.001 |
| Emotional support exposure | 0.665 | 0.008 | <.001 |
| Informational support exposure | 1.048 | 0.012 | <.001 |
| Post count exposure × emotional support exposure | 0.493 | 0.011 | <.001 |
| Post count exposure × informational support exposure | 0.953 | 0.020 | .02 |
In interpreting the hazard ratio, the comparison consisted of members with no profiles who were exposed to an average number of messages containing average levels of emotional and informational support. The hazard ratio value of .51 for has a profile meant that members with a profile were 49% more likely to continue to participate than those without a profile (100%–[100%*0.51]). Those who started more threads in a week were 15% more likely to continue participating than those who merely responded to others’ posts.
Figure 5Survival curves for members exposed to different numbers of posts and type of social support. Note: although receiving more informational support was reliably associated with lower longevity on the site, the effect was small and the lines representing high informational support cannot be visually distinguished from the lines representing average informational support.