Literature DB >> 25876766

The Help-Seeking Experiences of Parents of Children with a First-Episode of Psychosis.

David Skubby1, Natalie Bonfine2, Hattie Tracy3, Kristen Knepp2, Mark R Munetz2.   

Abstract

The objective was to understand the experiences of parents as they sought psychological and specialized medical services for a loved one having a first episode of psychosis. The research method was qualitative and the data gathering was done through semi-structured interviews. Eleven parents of eight adolescent or young adult children consented to be interviewed. Data from these interviews were coded and sorted. Parents reported that many of their encounters resulted in delays in accessing treatment. These encounters were characterized by misattributions of the child's behavior, poor advice, misdiagnosis, disbelief in the seriousness of the child's condition, and an unwillingness to share information. But parents also reported that encounters with other individuals were characterized by helpful advice, emotional support, and suggestions as to how to access early intervention services. Encounters with many professionals were generally not helpful to parents. These encounters served as roadblocks to accessing proper treatment for their child. More publicity, outreach, and education are recommended in the professional community.

Entities:  

Keywords:  Adolescents and young adults; Families; First episode psychosis; Parents; Pathways to treatment

Mesh:

Year:  2015        PMID: 25876766     DOI: 10.1007/s10597-015-9877-1

Source DB:  PubMed          Journal:  Community Ment Health J        ISSN: 0010-3853


  17 in total

1.  Correlates of insight in first episode psychosis.

Authors:  Matcheri S Keshavan; Jonathan Rabinowitz; Goedele DeSmedt; Phillip D Harvey; Nina Schooler
Journal:  Schizophr Res       Date:  2004-10-01       Impact factor: 4.939

2.  Pathways to care and ethnicity. 2: Source of referral and help-seeking. Report from the AESOP study.

Authors:  C Morgan; R Mallett; G Hutchinson; H Bagalkote; K Morgan; P Fearon; P Dazzan; J Boydell; K McKenzie; G Harrison; R Murray; P Jones; T Craig; J Leff
Journal:  Br J Psychiatry       Date:  2005-04       Impact factor: 9.319

3.  Family perspectives on pathways to mental health care for children and youth in rural communities.

Authors:  Katherine M Boydell; Raymond Pong; Tiziana Volpe; Kate Tilleczek; Elizabeth Wilson; Sandy Lemieux
Journal:  J Rural Health       Date:  2006       Impact factor: 4.333

4.  Mode of onset of psychosis and family involvement in help-seeking as determinants of duration of untreated psychosis.

Authors:  Michael T Compton; Victoria H Chien; Amy S Leiner; Sandra M Goulding; Paul S Weiss
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2008-07-05       Impact factor: 4.328

5.  Family strengths: a potential determinant of the duration of untreated psychosis among hospitalized African-American first-episode patients.

Authors:  Sandra M Goulding; Amy S Leiner; Nancy J Thompson; Paul S Weiss; Nadine J Kaslow; Michael T Compton
Journal:  Early Interv Psychiatry       Date:  2008-08       Impact factor: 2.732

6.  Stigma in families of individuals in early stages of psychotic illness: family stigma and early psychosis.

Authors:  Celine Wong; Larry Davidson; Deirdre Anglin; Bruce Link; Ruth Gerson; Dolores Malaspina; Thomas McGlashan; Cheryl Corcoran
Journal:  Early Interv Psychiatry       Date:  2009-05       Impact factor: 2.732

7.  Observations on parent/family factors that may influence the duration of untreated psychosis among African American first-episode schizophrenia-spectrum patients.

Authors:  Michael T Compton; Nadine J Kaslow; Elaine F Walker
Journal:  Schizophr Res       Date:  2004-06-01       Impact factor: 4.939

8.  Families' experience with seeking treatment for recent-onset psychosis.

Authors:  Ruth Gerson; Larry Davidson; Andrew Booty; Thomas McGlashan; Dolores Malespina; Harold Alan Pincus; Cheryl Corcoran
Journal:  Psychiatr Serv       Date:  2009-06       Impact factor: 3.084

9.  Trajectory to a first episode of psychosis: a qualitative research study with families.

Authors:  Cheryl Corcoran; Ruth Gerson; Rachel Sills-Shahar; Connie Nickou; Thomas McGlashan; Dolores Malaspina; Larry Davidson
Journal:  Early Interv Psychiatry       Date:  2007-11       Impact factor: 2.732

10.  Clinical and social determinants of duration of untreated psychosis in the AESOP first-episode psychosis study.

Authors:  Craig Morgan; Rudwan Abdul-Al; Julia M Lappin; Peter Jones; Paul Fearon; Morven Leese; Tim Croudace; Kevin Morgan; Paola Dazzan; Tom Craig; Julian Leff; Robin Murray
Journal:  Br J Psychiatry       Date:  2006-11       Impact factor: 9.319

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  5 in total

1.  Understanding Pathways to Care of Individuals Entering a Specialized Early Intervention Service for First-Episode Psychosis.

Authors:  Leopoldo J Cabassa; Sarah Piscitelli; Morgan Haselden; Rufina J Lee; Susan M Essock; Lisa B Dixon
Journal:  Psychiatr Serv       Date:  2018-03-01       Impact factor: 3.084

2.  Family Experiences Prior to the Initiation of Care for First-Episode Psychosis: A Meta-Synthesis of Qualitative Studies.

Authors:  Oladunni Oluwoye; Sunny Chieh Cheng; Elizabeth Fraser; Bryony Stokes; Michael G McDonell
Journal:  J Child Fam Stud       Date:  2019-12-25

3.  Where to seek help? Barriers to beginning treatment during the first-episode psychosis.

Authors:  Isabela Dos Santos Martin; Bianca Cristina Ciccone Giacon; Kelly Graziani Giacchero Vedana; Ana Carolina Guidorizzi Zanetti; Lorena Fendrich; Sueli Aparecida Frari Galera
Journal:  Int J Nurs Sci       Date:  2018-06-30

4.  Feasibility of Text Messages for Enhancing Therapeutic Engagement Among Youth and Caregivers Initiating Outpatient Mental Health Treatment: Mixed Methods Study.

Authors:  Susan Jerrott; Sharon Clark; Jill Chorney; Aimee Coulombe; Lori Wozney
Journal:  JMIR Form Res       Date:  2022-08-02

Review 5.  Experiences of pathways to mental health services for young people and their carers: a qualitative meta-synthesis review.

Authors:  Kathleen MacDonald; Manuela Ferrari; Nina Fainman-Adelman; Srividya N Iyer
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2020-11-18       Impact factor: 4.328

  5 in total

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