Literature DB >> 25833383

Patient experiences and outcomes following facial skin cancer surgery: A qualitative study.

Erica H Lee1, Anne F Klassen2, Jessica L Lawson3, Stefan J Cano4, Amie M Scott1, Andrea L Pusic1.   

Abstract

Early melanoma and non-melanoma skin cancer of the facial area are primarily treated with surgery. Little is known about the outcomes of treatment for facial skin cancer patients. The objective of the study was to identify concerns about aesthetics, procedures and health from the patients' perspective after facial skin surgery. Semi-structured in-depth interviews were conducted with 15 participants. Line-by-line coding was used to establish categories and develop themes. We identified five major themes on the impact of skin cancer surgery: appearance-related concerns; psychological (e.g., fear of new cancers or recurrence); social (e.g. impact on social activities and interaction); physical (e.g. pain and swelling) concerns and satisfaction with the experience of care (e.g., satisfaction with surgeon). The priority of participants was the removal of the facial skin cancer, as this reduced their overall worry. The aesthetic outcome was secondary but important, as it had important implications on the participants' social and psychological functioning. The participants' experience with the care provided by the surgeon and staff also contributed to their satisfaction with their treatment. This conceptual framework provides the basis for the development of a new patient-reported outcome instrument.
© 2015 The Australasian College of Dermatologists.

Entities:  

Keywords:  Mohs surgery; basal cell carcinoma; dermatological surgery; facial skin cancer; melanoma; patient-reported outcome; patients' satisfaction; skin cancer; squamous cell carcinoma

Mesh:

Year:  2015        PMID: 25833383      PMCID: PMC5461874          DOI: 10.1111/ajd.12323

Source DB:  PubMed          Journal:  Australas J Dermatol        ISSN: 0004-8380            Impact factor:   2.875


  15 in total

Review 1.  Qualitative research in health care. Analysing qualitative data.

Authors:  C Pope; S Ziebland; N Mays
Journal:  BMJ       Date:  2000-01-08

Review 2.  Visual disfigurement and depression.

Authors:  Sharon M Valente
Journal:  Plast Surg Nurs       Date:  2004 Oct-Dec

3.  The Skin Cancer Quality of Life Impact Tool (SCQOLIT): a validated health-related quality of life questionnaire for non-metastatic skin cancers.

Authors:  D Burdon-Jones; K Gibbons
Journal:  J Eur Acad Dermatol Venereol       Date:  2012-08-22       Impact factor: 6.166

4.  Quality of life in non-melanoma skin cancer--the skin cancer quality of life (SCQoL) questionnaire.

Authors:  Gabrielle Randskov Vinding; Karl Bang Christensen; Solveig Esmann; Anne Braae Olesen; Gregor B E Jemec
Journal:  Dermatol Surg       Date:  2013-11-14       Impact factor: 3.398

5.  Patient-reported problems after office procedures.

Authors:  Eleni Linos; Mackenzie R Wehner; Dominick L Frosch; Louise Walter; Mary Margaret Chren
Journal:  JAMA Intern Med       Date:  2013-07-08       Impact factor: 21.873

Review 6.  A systematic review of patient-reported outcome instruments of nonmelanoma skin cancer in the dermatologic population.

Authors:  Erica H Lee; Anne F Klassen; Kishwer S Nehal; Stefan J Cano; Janet Waters; Andrea L Pusic
Journal:  J Am Acad Dermatol       Date:  2012-10-24       Impact factor: 11.527

7.  Measuring health-related quality of life outcomes in head and neck reconstruction.

Authors:  Claudia R Albornoz; Andrea L Pusic; Patrick Reavey; Amie M Scott; Anne F Klassen; Stefan J Cano; Peter G Cordeiro; Evan Matros
Journal:  Clin Plast Surg       Date:  2012-11-26       Impact factor: 2.017

8.  Quality of life issues in nonmetastatic skin cancer.

Authors:  D Burdon-Jones; P Thomas; R Baker
Journal:  Br J Dermatol       Date:  2009-08-20       Impact factor: 9.302

9.  Patient reported facial scar assessment: directions for the professional.

Authors:  Cornelis J Hoogewerf; Margriet E van Baar; Esther Middelkoop; Nancy E van Loey
Journal:  Burns       Date:  2013-10-15       Impact factor: 2.744

Review 10.  Patients' needs, satisfaction, and health related quality of life: towards a comprehensive model.

Authors:  Mohsen Asadi-Lari; Marcello Tamburini; David Gray
Journal:  Health Qual Life Outcomes       Date:  2004-06-29       Impact factor: 3.186

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  19 in total

1.  FACE-Q Skin Cancer Module for measuring patient-reported outcomes following facial skin cancer surgery.

Authors:  E H Lee; A F Klassen; S J Cano; K S Nehal; A L Pusic
Journal:  Br J Dermatol       Date:  2018-05-23       Impact factor: 9.302

2.  Nasal skin reconstruction: Time to rethink the reconstructive ladder?

Authors:  Inge J Veldhuizen; Philip Brouwer; Abdullah Aleisa; Nicholas R Kurtansky; Stephen W Dusza; Kishwer S Nehal; Maarten M Hoogbergen; René R W J van der Hulst; Erica H Lee
Journal:  J Plast Reconstr Aesthet Surg       Date:  2021-11-14       Impact factor: 2.740

3.  Cancer worry after facial nonmelanoma skin cancer resection and reconstruction: A 1-year prospective study.

Authors:  Lucy J van Hensbergen; Inge J Veldhuizen; Erica H Lee; Saskia Houterman; Tjinta Brinkhuizen; René R W J van der Hulst; Maarten M Hoogbergen
Journal:  Psychooncology       Date:  2021-09-14       Impact factor: 3.955

4.  Factors contributing to cancer worry in the skin cancer population.

Authors:  Nima Khoshab; Toral S Vaidya; Stephen Dusza; Kishwer S Nehal; Erica H Lee
Journal:  J Am Acad Dermatol       Date:  2019-10-01       Impact factor: 11.527

5.  Modernizing the Mohs Surgery Consultation: Instituting a Video Module for Improved Patient Education and Satisfaction.

Authors:  Emily Newsom; Erica Lee; Anthony Rossi; Stephen Dusza; Kishwer Nehal
Journal:  Dermatol Surg       Date:  2018-06       Impact factor: 3.398

6.  To see or not to see: Impact of viewing facial skin cancer defects prior to reconstruction.

Authors:  Inge J Veldhuizen; Erica H Lee; Nicholas R Kurtansky; Lucy J van Hensbergen; Stephen W Dusza; Marleen C Hölscher; René R W J van der Hulst; Maarten J Ottenhof; Andrea L Pusic; Maarten M Hoogbergen
Journal:  Arch Dermatol Res       Date:  2021-01-30       Impact factor: 3.017

7.  Comparison of the Skin Cancer Quality of Life Impact Tool and the Skin Cancer Index Questionnaire in Measurement of Health-Related Quality of Life and the Effect of Patient Education Brochures in Patients with Actinic Keratosis, Non-melanoma, and Cutaneous Melanoma.

Authors:  Sam El Abbadi; Laura Susok; Egger Stockfleth; Falk Georges Bechara; Thilo Gambichler; Swetlana Herbrandt; Lisa Goldschmidtböing; Michael Sand
Journal:  Dermatol Ther (Heidelb)       Date:  2021-04-13

8.  UK-based prospective cohort study to anglicise and validate the FACE-Q Skin Cancer Module in patients with facial skin cancer undergoing surgical reconstruction: the PROMISCR (Patient-Reported Outcome Measure in Skin Cancer Reconstruction) study.

Authors:  Thomas Dobbs; Hayley A Hutchings; Iain S Whitaker
Journal:  BMJ Open       Date:  2017-09-24       Impact factor: 2.692

9.  Measuring Outcomes of Mohs Defect Reconstruction Using Eye-Tracking Technology.

Authors:  Jacob K Dey; Lisa E Ishii; Kofi D O Boahene; Patrick J Byrne; Masaru Ishii
Journal:  JAMA Facial Plast Surg       Date:  2019-12-01       Impact factor: 4.611

10.  Sun Protection Behavior Following Skin Cancer Resection and Reconstruction.

Authors:  I J Veldhuizen; E Schroen; E H Lee; N R Kurtansky; S W Dusza; R R W J van der Hulst; A L Pusic; M M Hoogbergen
Journal:  J Cancer Educ       Date:  2021-02-21       Impact factor: 1.771

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