Literature DB >> 25772598

Custodial Homes, Therapeutic Homes, and Parental Acceptance: Parental Experiences of Autism in Kerala, India and Atlanta, GA USA.

Jennifer C Sarrett1.   

Abstract

The home is a critical place to learn about cultural values of childhood disability, including autism and intellectual disabilities. The current article describes how the introduction of autism into a home and the availability of intervention options change the structure and meaning of a home and reflect parental acceptance of a child's autistic traits. Using ethnographic data from Kerala, India and Atlanta, GA USA, a description of two types of homes are developed: the custodial home, which is primarily focused on caring for basic needs, and the therapeutic home, which is focused on changing a child's autistic traits. The type of home environment is respondent to cultural practices of child rearing in the home and influences daily activities, management, and care in the home. Further, these homes differ in parental acceptance of their autistic children's disabilities, which is critical to understand when engaging in international work related to autism and intellectual disability. It is proposed that parental acceptance can be fostered through the use of neurodiverse notions that encourage autism acceptance.

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Year:  2015        PMID: 25772598     DOI: 10.1007/s11013-015-9441-z

Source DB:  PubMed          Journal:  Cult Med Psychiatry        ISSN: 0165-005X


  27 in total

1.  The medical home for children with autism spectrum disorders: parent and pediatrician perspectives.

Authors:  Paul S Carbone; Diane D Behl; Virgina Azor; Nancy A Murphy
Journal:  J Autism Dev Disord       Date:  2009-09-19

2.  Coping humor and family functioning in parents of children with disabilities.

Authors:  Alicja Rieger; J Patrick McGrail
Journal:  Rehabil Psychol       Date:  2013-02

3.  Challenges, coping strategies, and unmet needs of families with a child with autism spectrum disorder in Goa, India.

Authors:  Gauri Divan; Vivek Vajaratkar; Miraj U Desai; Luisa Strik-Lievers; Vikram Patel
Journal:  Autism Res       Date:  2012-03-30       Impact factor: 5.216

4.  Autism as a natural human variation: reflections on the claims of the neurodiversity movement.

Authors:  Pier Jaarsma; Stellan Welin
Journal:  Health Care Anal       Date:  2012-03

5.  Parenting a child with autism in India: narratives before and after a parent-child intervention program.

Authors:  Rachel S Brezis; Thomas S Weisner; Tamara C Daley; Nidhi Singhal; Merry Barua; Shreya P Chollera
Journal:  Cult Med Psychiatry       Date:  2015-06

6.  Deficit, difference, or both? Autism and neurodiversity.

Authors:  Steven K Kapp; Kristen Gillespie-Lynch; Lauren E Sherman; Ted Hutman
Journal:  Dev Psychol       Date:  2012-04-30

7.  Perceptions of disability among mothers of children with disability in Bangladesh: implications for rehabilitation service delivery.

Authors:  Priya K Maloni; Elisabeth R Despres; Joanna Habbous; Andrea R Primmer; Jeffrey B Slatten; Barbara E Gibson; Michel D Landry
Journal:  Disabil Rehabil       Date:  2010       Impact factor: 3.033

8.  Perceptions about intellectual disability: a qualitative study from Vellore, South India.

Authors:  S Edwardraj; K Mumtaj; J H Prasad; A Kuruvilla; K S Jacob
Journal:  J Intellect Disabil Res       Date:  2010-08

Review 9.  Costs of autism spectrum disorders in the United Kingdom and the United States.

Authors:  Ariane V S Buescher; Zuleyha Cidav; Martin Knapp; David S Mandell
Journal:  JAMA Pediatr       Date:  2014-08       Impact factor: 16.193

10.  The discovery of autism: Indian parents' experiences of caring for their child with an autism spectrum disorder.

Authors:  Miraj U Desai; Gauri Divan; Frederick J Wertz; Vikram Patel
Journal:  Transcult Psychiatry       Date:  2012-06-21
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  6 in total

1.  Introduction. Cross-cultural autism studies, neurodiversity, and conceptualizations of autism.

Authors:  M Ariel Cascio
Journal:  Cult Med Psychiatry       Date:  2015-06

2.  Listening to Bedouin Mothers of Children with Autism.

Authors:  Iris Manor-Binyamini; Avihu Shoshana
Journal:  Cult Med Psychiatry       Date:  2018-06

3.  Parenting a child with autism in India: narratives before and after a parent-child intervention program.

Authors:  Rachel S Brezis; Thomas S Weisner; Tamara C Daley; Nidhi Singhal; Merry Barua; Shreya P Chollera
Journal:  Cult Med Psychiatry       Date:  2015-06

4.  "Maybe at birth there was an injury": drivers and implications of caretaker explanatory models of autistic characteristics in Kerala, India.

Authors:  Jennifer C Sarrett
Journal:  Cult Med Psychiatry       Date:  2015-03

5.  Asperger's Syndrome, Subjectivity and the Senses.

Authors:  Ellen Badone; David Nicholas; Wendy Roberts; Peter Kien
Journal:  Cult Med Psychiatry       Date:  2016-09

6.  Buffering Effect of Spousal Support on Stress Levels in Mothers of Children with a Diagnosis of Autism Spectrum Disorder in Kerala, India.

Authors:  Prinu Jose; Soumya Sundaram; Ravi Prasad Varma
Journal:  J Neurosci Rural Pract       Date:  2021-06-16
  6 in total

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