Literature DB >> 25703897

Patient-reported outcomes in heart failure: existing measures and future uses.

Lauren E Thompson1, David B Bekelman, Larry A Allen, Pamela N Peterson.   

Abstract

Patient-reported outcomes (PROs) are any report obtained directly from a patient about how they feel or function in relation to their health condition and its therapies. Strong support for PROs exists at multiple levels of the health-care community from regulatory boards to clinical researchers. PROs are particularly important in heart failure because it is a common chronic illness marked with acute exacerbations, often requiring hospitalization, and significant symptom burden. Use of PROs to understand patient perspectives will help providers deliver more patient-centered care, and thus improve the quality of care. This review provides a contemporary overview of the current state of PROs in heart failure and suggests future directions and opportunities to advance PRO use to provide more comprehensive care. Advancing PRO measurement along with incorporating longitudinal measures in national databases and local electronic health records will serve to improve patient-centered care for patients with heart failure.

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Year:  2015        PMID: 25703897     DOI: 10.1007/s11897-015-0253-9

Source DB:  PubMed          Journal:  Curr Heart Fail Rep        ISSN: 1546-9530


  91 in total

1.  Beliefs about medication and dietary compliance in people with heart failure: an instrument development study.

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Journal:  Heart Lung       Date:  1997 Jul-Aug       Impact factor: 2.210

2.  Changes in the functional status measures of heart failure patients with mechanical assist devices.

Authors:  Evan S Leibner; Joshua Cysyk; Kimber Eleuteri; Aly El-Banayosy; John P Boehmer; Walter E Pae
Journal:  ASAIO J       Date:  2013 Mar-Apr       Impact factor: 2.872

3.  The PHQ-9: validity of a brief depression severity measure.

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Journal:  J Gen Intern Med       Date:  2001-09       Impact factor: 5.128

4.  A cross-cultural study of spirituality, religion, and personal beliefs as components of quality of life.

Authors: 
Journal:  Soc Sci Med       Date:  2005-09-13       Impact factor: 4.634

5.  Validity and reliability of the caregiver contribution to self-care of heart failure index.

Authors:  Ercole Vellone; Barbara Riegel; Antonello Cocchieri; Claudio Barbaranelli; Fabio D'Agostino; Dale Glaser; Gennaro Rocco; Rosaria Alvaro
Journal:  J Cardiovasc Nurs       Date:  2013 May-Jun       Impact factor: 2.083

6.  Development and testing of a new measure of health status for clinical trials in heart failure.

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Journal:  J Gen Intern Med       Date:  1989 Mar-Apr       Impact factor: 5.128

7.  Clinical outcome endpoints in heart failure trials: a European Society of Cardiology Heart Failure Association consensus document.

Authors:  Faiez Zannad; Angeles Alonso Garcia; Stefan D Anker; Paul W Armstrong; Gonzalo Calvo; John G F Cleland; Jay N Cohn; Kenneth Dickstein; Michael J Domanski; Inger Ekman; Gerasimos S Filippatos; Mihai Gheorghiade; Adrian F Hernandez; Tiny Jaarsma; Joerg Koglin; Marvin Konstam; Stuart Kupfer; Aldo P Maggioni; Alexandre Mebazaa; Marco Metra; Christina Nowack; Burkert Pieske; Ileana L Piña; Stuart J Pocock; Piotr Ponikowski; Giuseppe Rosano; Luis M Ruilope; Frank Ruschitzka; Thomas Severin; Scott Solomon; Kenneth Stein; Norman L Stockbridge; Wendy Gattis Stough; Karl Swedberg; Luigi Tavazzi; Adriaan A Voors; Scott M Wasserman; Holger Woehrle; Andrew Zalewski; John J V McMurray
Journal:  Eur J Heart Fail       Date:  2013-06-19       Impact factor: 15.534

8.  Impact of symptom prevalence and symptom burden on quality of life in patients with heart failure.

Authors:  Cheryl Hoyt Zambroski; Debra K Moser; Geetha Bhat; Craig Ziegler
Journal:  Eur J Cardiovasc Nurs       Date:  2005-09       Impact factor: 3.908

9.  Relationship between literacy, knowledge, self-care behaviors, and heart failure-related quality of life among patients with heart failure.

Authors:  Aurelia Macabasco-O'Connell; Darren A DeWalt; Kimberly A Broucksou; Victoria Hawk; David W Baker; Dean Schillinger; Bernice Ruo; Kirsten Bibbins-Domingo; George M Holmes; Brian Erman; Morris Weinberger; Michael Pignone
Journal:  J Gen Intern Med       Date:  2011-03-03       Impact factor: 5.128

10.  The Caregiver Burden Questionnaire for Heart Failure (CBQ-HF): face and content validity.

Authors:  Louise Humphrey; Karoly Kulich; Celine Deschaseaux; Steven Blackburn; Laura Maguire; Anna Strömberg
Journal:  Health Qual Life Outcomes       Date:  2013-05-25       Impact factor: 3.186

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  10 in total

1.  Development and Initial Validation of the PROMIS®-Plus-HF Profile Measure.

Authors:  Faraz S Ahmad; Michael A Kallen; Karen E Schifferdecker; Kathleen L Carluzzo; Susan E Yount; Jill M Gelow; Peter A McCullough; Stephen E Kimmel; Elliot S Fisher; David Cella
Journal:  Circ Heart Fail       Date:  2019-06-05       Impact factor: 8.790

2.  Psychometric Evaluation of the Kansas City Cardiomyopathy Questionnaire in Men and Women With Heart Failure.

Authors:  Vittal Hejjaji; Yuanyuan Tang; Theresa Coles; Philip G Jones; Bryce B Reeve; Robert J Mentz; Erica S Spatz; Shannon M Dunlay; Brittany Caldwell; Anindita Saha; Michelle E Tarver; Andy Tran; Krishna K Patel; Debra Henke; Ileana L Piña; John A Spertus
Journal:  Circ Heart Fail       Date:  2021-09-01       Impact factor: 10.447

3.  Temporal Trends and Factors Associated With the Inclusion of Patient-Reported Outcomes in Heart Failure Randomized Controlled Trials: A Systematic Review.

Authors:  Yousif Eliya; Tauben Averbuch; NhatChinh Le; Feng Xie; Lehana Thabane; Mamas A Mamas; Harriette G C Van Spall
Journal:  J Am Heart Assoc       Date:  2021-10-23       Impact factor: 5.501

4.  Physician adherence and patient-reported outcomes in heart failure with reduced ejection fraction in the era of angiotensin receptor-neprilysin inhibitor therapy.

Authors:  In-Cheol Kim; Jong-Chan Youn; Se Yong Jang; Sang Eun Lee; Hyun-Jai Cho; Jin-Oh Choi; Ju-Hee Lee; Kyung-Hee Kim; Sun Hwa Lee; Kye Hun Kim; Jong Min Lee; Byung-Su Yoo
Journal:  Sci Rep       Date:  2022-05-11       Impact factor: 4.379

5.  The impact of a targeted education package on the knowledge, attitudes, and utilisation of patient reported outcome measures amongst chiropractors in Australia.

Authors:  Natalie Clohesy; Anthony Schneiders; Gaery Barbery; Steven Obst
Journal:  Chiropr Man Therap       Date:  2022-10-14

Review 6.  Heart Failure in Minority Populations - Impediments to Optimal Treatment in Australian Aborigines.

Authors:  Pupalan Iyngkaran; Nadarajan Kangaharan; Hendrik Zimmet; Margaret Arstall; Rob Minson; Merlin C Thomas; Peter Bergin; John Atherton; Peter MacDonald; David L Hare; John D Horowitz; Marcus Ilton
Journal:  Curr Cardiol Rev       Date:  2016

7.  Incorporating development of a patient-reported outcome instrument in a clinical drug development program: examples from a heart failure program.

Authors:  Ingela Wiklund; Milena Anatchkova; Hafiz Oko-Osi; Robyn von Maltzahn; Dina Chau; Fady I Malik; Donald L Patrick; John Spertus; John R Teerlink
Journal:  Health Qual Life Outcomes       Date:  2016-09-15       Impact factor: 3.186

8.  Interpretability of the European Heart Failure Self-care Behaviour scale.

Authors:  Kim P Wagenaar; Berna Dl Broekhuizen; Frans H Rutten; Anna Strömberg; Henk F van Stel; Arno W Hoes; Tiny Jaarsma
Journal:  Patient Prefer Adherence       Date:  2017-10-26       Impact factor: 2.711

9.  CHF-PROM: validation of a patient-reported outcome measure for patients with chronic heart failure.

Authors:  Jing Tian; Jiangping Xue; Xiaojuan Hu; Qinghua Han; Yanbo Zhang
Journal:  Health Qual Life Outcomes       Date:  2018-03-20       Impact factor: 3.186

10.  Pulmonary Arterial Hypertension-Symptoms and Impact Questionnaire: feasibility of utilizing one-day versus seven-day symptom reporting.

Authors:  Robert P Frantz; Kelly M Chin; Carol Zhao; Megan Flynn; David Badesch
Journal:  Pulm Circ       Date:  2020-05-14       Impact factor: 3.017

  10 in total

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