Mitsunori Miyashita1, Tatsuya Morita2, Kazuki Sato3, Satoru Tsuneto4, Yasuo Shima5. 1. Department of Adult Nursing/Palliative Care Nursing, School of Health Sciences and Nursing Sciences, Graduate School of Medicine, The University of Tokyo, Bunkyo-ku, Japan; Division of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan. Electronic address: miyasita-tky@umin.net. 2. Department of Palliative and Supportive Care, Palliative Care Team and Seirei Hospice, Seirei Mikatahara Hospital, Hamamatsu, Japan. 3. Department of Adult Nursing/Palliative Care Nursing, School of Health Sciences and Nursing Sciences, Graduate School of Medicine, The University of Tokyo, Bunkyo-ku, Japan; Division of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan. 4. Department of Palliative Medicine, Osaka University Graduate School of Medicine, Osaka, Japan. 5. Department of Palliative Medicine, Tsukuba Medical Center Hospital, Tsukuba, Japan.
Abstract
CONTEXT: End-of-life (EOL) cancer care in general hospitals and home care has not previously been evaluated in Japan. OBJECTIVES: This study aimed to evaluate EOL cancer care from the perspective of bereaved family members in nationwide designated cancer centers, inpatient palliative care units (PCUs), and home hospices in Japan. METHODS: We conducted a cross-sectional, anonymous, self-report questionnaire survey for bereaved family members of cancer patients in March 2008 for 56 designated cancer centers and in June 2007 for 100 PCUs and 14 home hospices. Outcomes were overall care satisfaction, structure and process of care (Care Evaluation Scale), and achievement of a good death (Good Death Inventory). RESULTS: In designated cancer centers, PCUs, and home hospices, 2794 (response rate 59%), 5312 (response rate 69%), and 292 (response rate 67%) bereaved family members participated, respectively. Mean scores for overall care satisfaction were high for all places of death, at 4.3 ± 1.2 for designated cancer centers, 5.0 ± 1.2 for PCUs, and 5.0 ± 1.0 for home hospices. Designated cancer centers showed significantly lower ratings than PCUs and home hospices for structure and process of care and achievement of a good death (P = 0.0001 each). Home hospices were rated significantly higher than PCUs for achievement of a good death (P = 0.0001). CONCLUSION: The main findings of this study were: (1) overall, bereaved family members were satisfied with end-of-life care in all three places of death; (2) designated cancer centers were inferior to PCUs and home hospices and had more room for improvement; and 3) home hospices were rated higher than PCUs for achieving a good death, although home hospices remain uncommon in Japan.
CONTEXT: End-of-life (EOL) cancer care in general hospitals and home care has not previously been evaluated in Japan. OBJECTIVES: This study aimed to evaluate EOL cancer care from the perspective of bereaved family members in nationwide designated cancer centers, inpatient palliative care units (PCUs), and home hospices in Japan. METHODS: We conducted a cross-sectional, anonymous, self-report questionnaire survey for bereaved family members of cancerpatients in March 2008 for 56 designated cancer centers and in June 2007 for 100 PCUs and 14 home hospices. Outcomes were overall care satisfaction, structure and process of care (Care Evaluation Scale), and achievement of a good death (Good Death Inventory). RESULTS: In designated cancer centers, PCUs, and home hospices, 2794 (response rate 59%), 5312 (response rate 69%), and 292 (response rate 67%) bereaved family members participated, respectively. Mean scores for overall care satisfaction were high for all places of death, at 4.3 ± 1.2 for designated cancer centers, 5.0 ± 1.2 for PCUs, and 5.0 ± 1.0 for home hospices. Designated cancer centers showed significantly lower ratings than PCUs and home hospices for structure and process of care and achievement of a good death (P = 0.0001 each). Home hospices were rated significantly higher than PCUs for achievement of a good death (P = 0.0001). CONCLUSION: The main findings of this study were: (1) overall, bereaved family members were satisfied with end-of-life care in all three places of death; (2) designated cancer centers were inferior to PCUs and home hospices and had more room for improvement; and 3) home hospices were rated higher than PCUs for achieving a good death, although home hospices remain uncommon in Japan.
Authors: Kelly M Trevino; Holly G Prigerson; Megan Johnson Shen; Daniel J Tancredi; Guibo Xing; Michael Hoerger; Ronald M Epstein; Paul R Duberstein Journal: Cancer Date: 2019-05-30 Impact factor: 6.860
Authors: Kelli Stajduhar; Richard Sawatzky; S Robin Cohen; Daren K Heyland; Diane Allan; Darcee Bidgood; Leah Norgrove; Anne M Gadermann Journal: BMC Palliat Care Date: 2017-11-25 Impact factor: 3.234
Authors: Dagny Faksvåg Haugen; Karl Ove Hufthammer; Christina Gerlach; Katrin Sigurdardottir; Marit Irene Tuen Hansen; Grace Ting; Vilma Adriana Tripodoro; Gabriel Goldraij; Eduardo Garcia Yanneo; Wojciech Leppert; Katarzyna Wolszczak; Lair Zambon; Juliana Nalin Passarini; Ivete Alonso Bredda Saad; Martin Weber; John Ellershaw; Catriona Rachel Mayland Journal: Oncologist Date: 2021-06-17