Literature DB >> 25641930

Family quality of life and ASD: the role of child adaptive functioning and behavior problems.

Gardiner Emily1, Iarocci Grace.   

Abstract

The family is the key support network for children with autism spectrum disorder (ASD), in many cases into adulthood. The Family Quality of Life (FQOL) construct encompasses family satisfaction with both internal and external dynamics, as well as support availability. Therefore, although these families face considerable risk in raising a child with a disability, the FQOL outcome is conceptualized as representative of a continuum of family adaptation. This study examined the role of child characteristics, including adaptive functioning and behaviour problems, in relation to FQOL. Eighty-four caregivers of children and adolescents (range = 6-18 years) with ASD participated, completing questionnaires online and by telephone. Adaptive functioning, and specifically daily living skills, emerged as a significant predictor of FQOL satisfaction, after accounting for behavioural and demographic characteristics, including child age, gender, perceived disability severity, and behavioural problems, as well as family income. Furthermore, there were significant differences across each domain of FQOL when groups were separated by daily living skill functioning level ('low,' 'moderately low,' and 'adequate'). The results suggest that intervention strategies targeting daily living skills will likely have beneficial effects for both individual and family well-being, and may reduce family support demands.
© 2015 International Society for Autism Research, Wiley Periodicals, Inc.

Entities:  

Keywords:  Family Quality of Life; adaptive functioning; autism spectrum disorder; behavior problems

Mesh:

Year:  2015        PMID: 25641930     DOI: 10.1002/aur.1442

Source DB:  PubMed          Journal:  Autism Res        ISSN: 1939-3806            Impact factor:   5.216


  12 in total

1.  Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder.

Authors:  Liezl Schlebusch; Shakila Dada; Alecia E Samuels
Journal:  J Autism Dev Disord       Date:  2017-07

2.  Exploring the profiles of children with autism spectrum disorder: association with family factors.

Authors:  Álvaro Mira; Carmen Berenguer; Belén Roselló; Inmaculada Baixauli; Ana Miranda
Journal:  Int J Dev Disabil       Date:  2019-10-25

3.  Elevated symptoms of executive dysfunction predict lower adaptive functioning in 3-year-olds with autism spectrum disorder.

Authors:  Kelly Powell; Suzanne Macari; Emma Brennan-Wydra; Hannah Feiner; Maureen Butler; Diogo Goncalves Fortes; Alexandra Boxberger; Mariana Torres-Viso; Chelsea Morgan; Megan Lyons; Katarzyna Chawarska
Journal:  Autism Res       Date:  2022-04-06       Impact factor: 4.633

4.  Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders.

Authors:  Leslie A Markowitz; Charina Reyes; Rebecca A Embacher; Leslie L Speer; Nancy Roizen; Thomas W Frazier
Journal:  Autism       Date:  2015-12-10

5.  Self-efficacy, relationship satisfaction, and social support: the quality of life of maternal caregivers of children with type 1 diabetes.

Authors:  Einar B Thorsteinsson; Natasha M Loi; Kylie Rayner
Journal:  PeerJ       Date:  2017-10-23       Impact factor: 2.984

6.  Research on Motion Behavior and Quality-of-Life Health Promotion Strategy Based on Bee Colony Optimization.

Authors:  Ruibi Chen
Journal:  J Healthc Eng       Date:  2022-03-04       Impact factor: 2.682

7.  Determinants of the evolutions of behaviours, school adjustment and quality of life in autistic children in an adapted school setting: an exploratory study with the International Classification of Functioning, disability and health (ICF).

Authors:  Stéphanie Schneider; Céline Clément; Marc-André Goltzene; Nicolas Meyer; Agnès Gras-Vincendon; Carmen M Schröder; Romain Coutelle
Journal:  BMC Psychiatry       Date:  2022-05-06       Impact factor: 4.144

8.  Study protocol of the multi-centre, randomised controlled trial of the Frankfurt Early Intervention Programme A-FFIP versus early intervention as usual for toddlers and preschool children with Autism Spectrum Disorder (A-FFIP study).

Authors:  Janina Kitzerow; Matthes Hackbusch; Katrin Jensen; Meinhard Kieser; Michele Noterdaeme; Ulrike Fröhlich; Regina Taurines; Julia Geißler; Nicole Wolff; Veit Roessner; Nico Bast; Karoline Teufel; Ziyon Kim; Christine M Freitag
Journal:  Trials       Date:  2020-02-24       Impact factor: 2.279

9.  State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review.

Authors:  Carmen Francisco Mora; Alba Ibáñez; Anna Balcells-Balcells
Journal:  Int J Environ Res Public Health       Date:  2020-10-02       Impact factor: 3.390

10.  Mental health and social support of caregivers of children and adolescents with ASD and other developmental disorders during COVID-19 pandemic.

Authors:  Chongying Wang
Journal:  J Affect Disord Rep       Date:  2021-09-22
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