Literature DB >> 25626040

Moral concerns and the willingness to donate to a research biobank.

Tom Tomlinson1, Raymond De Vries2, Kerry Ryan2, Hyungjin Myra Kim3, Nicole Lehpamer4, Scott Y H Kim5.   

Abstract

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Year:  2015        PMID： 25626040      PMCID： PMC4443895          DOI： 10.1001/jama.2014.16363

Source DB:  PubMed          Journal:  JAMA        ISSN： 0098-7484            Impact factor:   56.272


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  4 in total

Review 1.  Biobanking: the foundation of personalized medicine.

Authors:  Robert E Hewitt
Journal:  Curr Opin Oncol       Date:  2011-01       Impact factor: 3.645

Review 2.  One-time general consent for research on biological samples.

Authors:  David Wendler
Journal:  BMJ       Date:  2006-03-04

3.  Do people care what's done with their biobanked samples?

Authors:  Tom Tomlinson; Stan A Kaplowitz; Meghan Faulkner
Journal:  IRB       Date:  2014 Jul-Aug

4.  Impact of non-welfare interests on willingness to donate to biobanks: an experimental survey.

Authors:  Michele C Gornick; Kerry A Ryan; Scott Y H Kim
Journal:  J Empir Res Hum Res Ethics       Date:  2014-08-11       Impact factor: 1.742
  4 in total
  23 in total

1.  Effect of deliberation on the public's attitudes toward consent policies for biobank research.

Authors:  Tom Tomlinson; Raymond G De Vries; H Myra Kim; Linda Gordon; Kerry A Ryan; Chris D Krenz; Scott Jewell; Scott Y H Kim
Journal:  Eur J Hum Genet       Date:  2018-01-18       Impact factor: 4.246

2.  Sources of Information and Beliefs About the Health Effects of Marijuana.

Authors:  Julie H Ishida; Alysandra J Zhang; Stacey Steigerwald; Beth E Cohen; Marzieh Vali; Salomeh Keyhani
Journal:  J Gen Intern Med       Date:  2019-10-21       Impact factor: 5.128

3.  Broad Consent for Research on Biospecimens: The Views of Actual Donors at Four U.S. Medical Centers.

Authors:  Teddy D Warner; Carol J Weil; Christopher Andry; Howard B Degenholtz; Lisa Parker; Latarsha J Carithers; Michelle Feige; David Wendler; Rebecca D Pentz
Journal:  J Empir Res Hum Res Ethics       Date:  2018-02-01       Impact factor: 1.742

4.  Pragmatic Randomized Trials Without Standard Informed Consent?: A National Survey.

Authors:  Rahul K Nayak; David Wendler; Franklin G Miller; Scott Y H Kim
Journal:  Ann Intern Med       Date:  2015-09-01       Impact factor: 25.391

5.  Current Status and Future Challenges of Biobank Research in Malaysia.

Authors:  Latifah Amin; Angelina Olesen; Zurina Mahadi; Maznah Ibrahim
Journal:  Asian Bioeth Rev       Date:  2021-03-31

6.  The moral concerns of biobank donors: the effect of non-welfare interests on willingness to donate.

Authors:  Raymond G De Vries; Tom Tomlinson; H Myra Kim; Chris D Krenz; Kerry A Ryan; Nicole Lehpamer; Scott Y H Kim
Journal:  Life Sci Soc Policy       Date:  2016-03-11

7.  The Geisinger MyCode community health initiative: an electronic health record-linked biobank for precision medicine research.

Authors:  David J Carey; Samantha N Fetterolf; F Daniel Davis; William A Faucett; H Lester Kirchner; Uyenlinh Mirshahi; Michael F Murray; Diane T Smelser; Glenn S Gerhard; David H Ledbetter
Journal:  Genet Med       Date:  2016-02-11       Impact factor: 8.822

8.  Understanding the Public's Reservations about Broad Consent and Study-By-Study Consent for Donations to a Biobank: Results of a National Survey.

Authors:  Raymond Gene De Vries; Tom Tomlinson; Hyungjin Myra Kim; Chris Krenz; Diana Haggerty; Kerry A Ryan; Scott Y H Kim
Journal:  PLoS One       Date:  2016-07-14       Impact factor: 3.240

Review 9.  Genes, cells, and biobanks: Yes, there's still a consent problem.

Authors:  Timothy Caulfield; Blake Murdoch
Journal:  PLoS Biol       Date:  2017-07-25       Impact factor: 8.029

10.  A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

Authors:  Nanibaa' A Garrison; Nila A Sathe; Armand H Matheny Antommaria; Ingrid A Holm; Saskia C Sanderson; Maureen E Smith; Melissa L McPheeters; Ellen W Clayton
Journal:  Genet Med       Date:  2015-11-19       Impact factor: 8.822
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