Literature DB >> 25614143

Incorporating the patient's voice into electronic health records through patient-reported outcomes as the "review of systems".

Arlene E Chung1, Ethan M Basch2.   

Abstract

Owing to lack of standardization for eliciting patient symptoms, the limited time available during clinical encounters, and the often-competing priorities of patients and providers, providers may not appreciate the full spectrum of the patient's symptom experience. Using electronically collected patient-reported outcomes to capture the review of system outside of the clinic visit may not only improve the efficiency, completeness, and accuracy of data collection for the review of system, but also provide the opportunity to operationalize incorporating the patient's voice into the electronic health record. While the necessary technology is already available, multiple stakeholders, including electronic health record vendors, clinicians, researchers, and professional societies, need to align their interests before this can become a widespread reality.
© The Author 2015. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For Permissions, please email: journals.permissions@oup.com.

Entities:  

Keywords:  electronic health records; patient engagement; patient-centered care; patient-reported outcomes; review of systems

Mesh:

Year:  2015        PMID: 25614143      PMCID: PMC5009898          DOI: 10.1093/jamia/ocu007

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  10 in total

1.  Adding the patient perspective to comparative effectiveness research.

Authors:  Albert W Wu; Claire Snyder; Carolyn M Clancy; Donald M Steinwachs
Journal:  Health Aff (Millwood)       Date:  2010-10       Impact factor: 6.301

2.  Assessing health-related quality of life in palliative care: comparing patient and physician assessments.

Authors:  Morten Aa Petersen; Henrik Larsen; Lise Pedersen; Nan Sonne; Mogens Groenvold
Journal:  Eur J Cancer       Date:  2006-04-18       Impact factor: 9.162

3.  Quality improvement in cancer symptom assessment and control: the Provincial Palliative Care Integration Project (PPCIP).

Authors:  Julie E Gilbert; Doris Howell; Susan King; Carol Sawka; Erin Hughes; Helen Angus; Deborah Dudgeon
Journal:  J Pain Symptom Manage       Date:  2012-04       Impact factor: 3.612

4.  Standards for patient-reported outcome-based performance measures.

Authors:  Ethan Basch; Phyllis Torda; Karen Adams
Journal:  JAMA       Date:  2013-07-10       Impact factor: 56.272

5.  The symptom burden of cancer: Evidence for a core set of cancer-related and treatment-related symptoms from the Eastern Cooperative Oncology Group Symptom Outcomes and Practice Patterns study.

Authors:  Charles S Cleeland; Fengmin Zhao; Victor T Chang; Jeff A Sloan; Ann M O'Mara; Paul B Gilman; Matthias Weiss; Tito R Mendoza; Ju-Whei Lee; Michael J Fisch
Journal:  Cancer       Date:  2013-09-24       Impact factor: 6.860

6.  How accurate is clinician reporting of chemotherapy adverse effects? A comparison with patient-reported symptoms from the Quality-of-Life Questionnaire C30.

Authors:  Erik K Fromme; Kristine M Eilers; Motomi Mori; Yi-Ching Hsieh; Tomasz M Beer
Journal:  J Clin Oncol       Date:  2004-09-01       Impact factor: 44.544

Review 7.  Recommendations for incorporating patient-reported outcomes into clinical comparative effectiveness research in adult oncology.

Authors:  Ethan Basch; Amy P Abernethy; C Daniel Mullins; Bryce B Reeve; Mary Lou Smith; Stephen Joel Coons; Jeff Sloan; Keith Wenzel; Cynthia Chauhan; Wayland Eppard; Elizabeth S Frank; Joseph Lipscomb; Stephen A Raymond; Merianne Spencer; Sean Tunis
Journal:  J Clin Oncol       Date:  2012-10-15       Impact factor: 44.544

Review 8.  Recommended patient-reported core set of symptoms to measure in adult cancer treatment trials.

Authors:  Bryce B Reeve; Sandra A Mitchell; Amylou C Dueck; Ethan Basch; David Cella; Carolyn Miller Reilly; Lori M Minasian; Andrea M Denicoff; Ann M O'Mara; Michael J Fisch; Cynthia Chauhan; Neil K Aaronson; Corneel Coens; Deborah Watkins Bruner
Journal:  J Natl Cancer Inst       Date:  2014-07-08       Impact factor: 13.506

9.  Measure once, cut twice--adding patient-reported outcome measures to the electronic health record for comparative effectiveness research.

Authors:  Albert W Wu; Hadi Kharrazi; L Ebony Boulware; Claire F Snyder
Journal:  J Clin Epidemiol       Date:  2013-08       Impact factor: 6.437

Review 10.  Patient-reported outcomes in randomized clinical trials: development of ISOQOL reporting standards.

Authors:  Michael Brundage; Jane Blazeby; Dennis Revicki; Brenda Bass; Henrica de Vet; Helen Duffy; Fabio Efficace; Madeleine King; Cindy L K Lam; David Moher; Jane Scott; Jeff Sloan; Claire Snyder; Susan Yount; Melanie Calvert
Journal:  Qual Life Res       Date:  2012-09-18       Impact factor: 4.147

  10 in total
  18 in total

1.  Overcoming barriers to implementing patient-reported outcomes in an electronic health record: a case report.

Authors:  Christopher A Harle; Alyson Listhaus; Constanza M Covarrubias; Siegfried Of Schmidt; Sean Mackey; Peter J Carek; Roger B Fillingim; Robert W Hurley
Journal:  J Am Med Inform Assoc       Date:  2015-07-09       Impact factor: 4.497

2.  Potential and challenges of patient-generated health data for high-quality cancer care.

Authors:  Arlene E Chung; Ethan M Basch
Journal:  J Oncol Pract       Date:  2015-04-07       Impact factor: 3.840

3.  Overview of Patient-Facing Systems in Patient-Reported Outcomes Collection: Focus and Design in Cancer Care.

Authors:  Roxanne E Jensen; Scott P Gummerson; Arlene E Chung
Journal:  J Oncol Pract       Date:  2016-10       Impact factor: 3.840

4.  Clinical Informatics Researcher's Desiderata for the Data Content of the Next Generation Electronic Health Record.

Authors:  Timothy I Kennell; James H Willig; James J Cimino
Journal:  Appl Clin Inform       Date:  2017-12-21       Impact factor: 2.342

5.  Patient-Reported Toxicities During Chemotherapy Regimens in Current Clinical Practice for Early Breast Cancer.

Authors:  Kirsten A Nyrop; Allison M Deal; Shlomit S Shachar; Ethan Basch; Bryce B Reeve; Seul Ki Choi; Jordan T Lee; William A Wood; Carey K Anders; Lisa A Carey; Elizabeth C Dees; Trevor A Jolly; Katherine E Reeder-Hayes; Gretchen G Kimmick; Meghan S Karuturi; Raquel E Reinbolt; JoEllen C Speca; Hyman B Muss
Journal:  Oncologist       Date:  2018-12-14

6.  Prevalence of patient-reported gastrointestinal symptoms and agreement with clinician toxicity assessments in radiation therapy for anal cancer.

Authors:  Ashlyn Tom; Antonia V Bennett; Diana Rothenstein; Ethel Law; Karyn A Goodman
Journal:  Qual Life Res       Date:  2017-09-07       Impact factor: 4.147

7.  PRO-ONKO-selection of patient-reported outcome assessments for the clinical use in cancer patients-a mixed-method multicenter cross-sectional exploratory study.

Authors:  Heike Schmidt; Daniela Merkel; Michael Koehler; Hans-Henning Flechtner; Jörg Sigle; Bernd Klinge; Karin Jordan; Dirk Vordermark; Margarete Landenberger; Patrick Jahn
Journal:  Support Care Cancer       Date:  2015-12-16       Impact factor: 3.603

8.  Feasibility and clinical impact of sharing patient-reported symptom toxicities and performance status with clinical investigators during a phase 2 cancer treatment trial.

Authors:  Ethan Basch; William A Wood; Deborah Schrag; Camelia S Sima; Mary Shaw; Lauren J Rogak; Mark G Kris; Marwan Shouery; Antonia Bennett; Thomas Atkinson; M Catherine Pietanza
Journal:  Clin Trials       Date:  2015-11-04       Impact factor: 2.486

9.  Electronically captured, patient-reported physical function: an important vital sign in obesity medicine.

Authors:  J Fleming; G C Wood; C Seiler; A Cook; M R Lent; C D Still; P N Benotti; B A Irving
Journal:  Obes Sci Pract       Date:  2016-09-20

10.  Provider perspectives on the integration of patient-reported outcomes in an electronic health record.

Authors:  Renwen Zhang; Eleanor R Burgess; Madhu C Reddy; Nan E Rothrock; Surabhi Bhatt; Luke V Rasmussen; Zeeshan Butt; Justin B Starren
Journal:  JAMIA Open       Date:  2019-01-30
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.