Literature DB >> 25606367

Parent-delivered touchscreen intervention for children with fragile X syndrome.

María Díez-Juan1, Andrea Schneider2, Tiffany Phillips3, Reymundo Lozano4, Flora Tassone5, Marjorie Solomon6, Randi J Hagerman2.   

Abstract

The use of touchscreen applications for the iPad(®) allows children with disabilities to improve their personal autonomy and quality of life. In light of this emerging literature and our clinical experience with toddlers and children with Fragile X syndrome (FXS), a randomized clinical trial pilot study was conducted of whether an interactive iPad(®)-based parent training program was efficacious for both individuals with FXS and autism spectrum disorder aged 2-to-12 compared to wait-listed controls. As a second goal, we assessed the difference between direct person-to-person therapy vs. online therapy sessions through telehealth. In this case series report it is presented preliminary results of four individuals with FXS enrolled in the study and described the innovative experience including qualitative and quantitative data analysis. Furthermore, we provide professionals with specific guidelines about the use of touchscreen devices as in-home learning tools and parent training strategies to actively involve families in educational treatments in conjunction with clinical guidance.

Entities:  

Keywords:  Touchscreen devices; educational applications; innovative therapy; parent training

Year:  2014        PMID: 25606367      PMCID: PMC4298647          DOI: 10.5582/irdr.2014.01026

Source DB:  PubMed          Journal:  Intractable Rare Dis Res        ISSN: 2186-3644


  29 in total

Review 1.  Computer-based interventions to improve social and emotional skills in individuals with autism spectrum disorders: a systematic review.

Authors:  Sathiyaprakash Ramdoss; Wendy Machalicek; Mandy Rispoli; Austin Mulloy; Russell Lang; Mark O'Reilly
Journal:  Dev Neurorehabil       Date:  2012       Impact factor: 2.308

2.  A pilot study of iPad-assisted cognitive training for schizophrenia.

Authors:  Jin Dang; Jiangtao Zhang; Zhongwei Guo; Weihong Lu; Jun Cai; Zhongying Shi; Chen Zhang
Journal:  Arch Psychiatr Nurs       Date:  2014-02-05       Impact factor: 2.218

3.  Autism spectrum disorders and attention-deficit/hyperactivity disorder in boys with the fragile X premutation.

Authors:  Faraz Farzin; Hazel Perry; David Hessl; Danuta Loesch; Jonathan Cohen; Susan Bacalman; Louise Gane; Flora Tassone; Paul Hagerman; Randi Hagerman
Journal:  J Dev Behav Pediatr       Date:  2006-04       Impact factor: 2.225

4.  Randomized, controlled trial of an intervention for toddlers with autism: the Early Start Denver Model.

Authors:  Geraldine Dawson; Sally Rogers; Jeffrey Munson; Milani Smith; Jamie Winter; Jessica Greenson; Amy Donaldson; Jennifer Varley
Journal:  Pediatrics       Date:  2009-11-30       Impact factor: 7.124

5.  Extending the Reach of Early Intervention Training for Practitioners: A Preliminary Investigation of an Online Curriculum for Teaching Behavioral Intervention Knowledge in Autism to Families and Service Providers.

Authors:  Charles D Hamad; Richard W Serna; Leslie Morrison; Richard Fleming
Journal:  Infants Young Child       Date:  2010-07-01

6.  Caregiver Burden in Fragile X Families.

Authors:  Ana-Maria Iosif; Andres F Sciolla; Khyati Brahmbhatt; Andreea L Seritan
Journal:  Curr Psychiatry Rev       Date:  2013-02-01

7.  Psychiatric symptoms in boys with fragile X syndrome: a comparison with nonsyndromic autism spectrum disorder.

Authors:  Angela John Thurman; Andrea McDuffie; Randi Hagerman; Leonard Abbeduto
Journal:  Res Dev Disabil       Date:  2014-03-12

8.  A quantitative homogeneous assay for fragile X mental retardation 1 protein.

Authors:  Gabi Schutzius; Dorothee Bleckmann; Sandra Kapps-Fouthier; Francesco di Giorgio; Bernd Gerhartz; Andreas Weiss
Journal:  J Neurodev Disord       Date:  2013-04-02       Impact factor: 4.025

9.  Telehealth for expanding the reach of early autism training to parents.

Authors:  Laurie A Vismara; Gregory S Young; Sally J Rogers
Journal:  Autism Res Treat       Date:  2012-11-22

10.  FMR1 CGG allele size and prevalence ascertained through newborn screening in the United States.

Authors:  Flora Tassone; Ka Pou Iong; Tzu-Han Tong; Joyce Lo; Louise W Gane; Elizabeth Berry-Kravis; Danh Nguyen; Lisa Y Mu; Jennifer Laffin; Don B Bailey; Randi J Hagerman
Journal:  Genome Med       Date:  2012-12-21       Impact factor: 11.117

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  4 in total

1.  Evaluating the Feasibility of a Play-Based Telehealth Intervention Program for Children with Prader-Willi Syndrome.

Authors:  Anastasia Dimitropoulos; Olena Zyga; Sandra Russ
Journal:  J Autism Dev Disord       Date:  2017-09

2.  Trajectories of Change in the Behavioral and Health Phenotype of Adolescents and Adults with Fragile X Syndrome and Intellectual Disability: Longitudinal Trends Over a Decade.

Authors:  Lauren V Usher; Leann S DaWalt; Jinkuk Hong; Jan S Greenberg; Marsha R Mailick
Journal:  J Autism Dev Disord       Date:  2020-08

3.  Normal Performance of Fmr1 Mice on a Touchscreen Delayed Nonmatching to Position Working Memory Task.

Authors:  Prescott T Leach; Jane Hayes; Michael Pride; Jill L Silverman; Jacqueline N Crawley
Journal:  eNeuro       Date:  2016-03-15

4.  A trial of an iPad™ intervention targeting social communication skills in children with autism.

Authors:  Sue Fletcher-Watson; Alexandra Petrou; Juliet Scott-Barrett; Pamela Dicks; Catherine Graham; Anne O'Hare; Helen Pain; Helen McConachie
Journal:  Autism       Date:  2015-10-26
  4 in total

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