Literature DB >> 28612246

Evaluating the Feasibility of a Play-Based Telehealth Intervention Program for Children with Prader-Willi Syndrome.

Anastasia Dimitropoulos1, Olena Zyga2, Sandra Russ2.   

Abstract

Here we report the feasibility and acceptability of telehealth for direct intervention in children with Prader-Willi syndrome (PWS). Children with PWS have social-cognitive challenges that are similar to children with ASD. However, developing behavioral interventions for individuals with PWS is faced with the significant challenge of enrolling enough participants for local studies where multiple visits per week are indicated for effective intervention. This study delivered a 6-week play-based intervention via telehealth directly to eight children with PWS (6-12 years). Participants completed the program with minimal behavioral or technological difficulty (#sessions M = 11.875/12). Behavioral Intervention Rating Scale results indicate good acceptability (M = 5.54/6.00). These findings support using telehealth in rare disorders and delivering intervention directly to children with developmental delays through this modality.

Entities:  

Keywords:  Play-based intervention; Prader–Willi syndrome; Telehealth; Video conferencing

Mesh:

Year:  2017        PMID: 28612246     DOI: 10.1007/s10803-017-3196-z

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  30 in total

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2.  Pervasive developmental disorders in Prader-Willi syndrome: the Leuven experience in 59 subjects and controls.

Authors:  Mie-Jef Descheemaeker; Veerle Govers; Peter Vermeulen; Jean-Pierre Fryns
Journal:  Am J Med Genet A       Date:  2006-06-01       Impact factor: 2.802

3.  An integrated telehealth system for remote administration of an adult autism assessment.

Authors:  Bambang Parmanto; I Wayan Pulantara; Jamie L Schutte; Andi Saptono; Michael P McCue
Journal:  Telemed J E Health       Date:  2012-12-11       Impact factor: 3.536

Review 4.  Using videoconferencing to provide psychological services to rural children and adolescents: a review and case example.

Authors:  Angela Banitt Duncan; Sarah E Velasquez; Eve-Lynn Nelson
Journal:  J Clin Child Adolesc Psychol       Date:  2013-09-30

Review 5.  Cognition in people with Prader-Willi syndrome: Insights into genetic influences on cognitive and social development.

Authors:  Joyce Whittington; Anthony Holland
Journal:  Neurosci Biobehav Rev       Date:  2016-11-09       Impact factor: 8.989

Review 6.  The socio-economic impact of telehealth: a systematic review.

Authors:  P A Jennett; L Affleck Hall; D Hailey; A Ohinmaa; C Anderson; R Thomas; B Young; D Lorenzetti; R E Scott
Journal:  J Telemed Telecare       Date:  2003       Impact factor: 6.184

7.  Behavioural phenotypes associated with specific genetic disorders: evidence from a population-based study of people with Prader-Willi syndrome.

Authors:  A J Holland; J E Whittington; J Butler; T Webb; H Boer; D Clarke
Journal:  Psychol Med       Date:  2003-01       Impact factor: 7.723

8.  Maladaptive behavior differences in Prader-Willi syndrome due to paternal deletion versus maternal uniparental disomy.

Authors:  E M Dykens; S B Cassidy; B H King
Journal:  Am J Ment Retard       Date:  1999-01

9.  Early Language Intervention Using Distance Video-Teleconferencing: A Pilot Study of Young Boys With Fragile X Syndrome and Their Mothers.

Authors:  Andrea McDuffie; Ashley Oakes; Wendy Machalicek; Monica Ma; Lauren Bullard; Sarah Nelson; Leonard Abbeduto
Journal:  Am J Speech Lang Pathol       Date:  2016-02       Impact factor: 2.408

10.  Social responsiveness and competence in Prader-Willi syndrome: direct comparison to autism spectrum disorder.

Authors:  Anastasia Dimitropoulos; Alan Ho; Benjamin Feldman
Journal:  J Autism Dev Disord       Date:  2013-01
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  3 in total

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Journal:  J Telemed Telecare       Date:  2021-04-12       Impact factor: 6.344

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Review 3.  A scoping review of feasibility, cost, access to rehabilitation services and implementation of telerehabilitation: Implications for low- and middle-income countries.

Authors:  Eugene Nizeyimana; Conran Joseph; Nicola Plastow; Gouwa Dawood; Quinette A Louw
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  3 in total

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