Blerina Kellezi1, Kate Beckett2, Sarah Earthy3, Jo Barnes4, Jude Sleney3, Julie Clarkson5, Stephen Regel6, Trevor Jones7, Denise Kendrick8. 1. Division of Primary Care, School of Medicine, Nottingham University, University Park, Nottingham, UK. Electronic address: Blerina.kellezi@nottingham.ac.uk. 2. University of the West of England, Research and Innovation, University Hospitals Bristol NHS Foundation Trust, Education Centre, Bristol, UK. 3. Department of Sociology, Faculty of Arts and Human Sciences, University of Surrey, Guildford, Surrey, UK. 4. Loughborough Design School, Loughborough, UK. 5. Nottingham University Hospitals, Nottingham, UK. 6. Centre for Trauma, Resilience and Growth, Nottinghamshire Healthcare NHS Trust, Nottingham, UK. 7. Patient Representative, Collaboration for Leadership in Applied Health Research and Care (CLAHRC) East Midlands, Nottingham, UK. 8. Division of Primary Care, School of Medicine, Nottingham University, University Park, Nottingham, UK.
Abstract
OBJECTIVE: To explore information needs of unintentional injury patients and their carers over time, across services, and how such needs are met from the perspectives of patients, carers and service providers. METHODS: Qualitative nested study within a multi-centre longitudinal study quantifying psycho-social, physical, occupational outcomes and service use and costs following a range of unintentional injuries. Semi-structured interviews conducted with 45 patients during the first year post injury, 18 of their carers and 40 providers of services. RESULTS: Patients and carers needed information about the nature and severity of injury, prognosis, self-management and further services. Information needs changed over time with the biggest difficulties being during transfer from primary to secondary care. Barriers to information provision included service providers' time limitations and uncertainty around information provision, and patients' reluctance to ask for information or inability to process it. Suggested improvements included provision of reassurance as well as factual information, information about further services, earlier follow-up, increased appointment times and greater involvement of families where appropriate. CONCLUSIONS: The information needs of patients and carers post injury change with time and there are a number of ways to remove gaps and barriers in current provision to meet such needs. PRACTICE IMPLICATIONS: Providing information on injury management, prognosis and available services and reassurance at each stage of the recovery process in secondary care and when transferring to primary care would be helpful for patients and carers. A follow-up contact soon after discharge and the opportunity to ask questions could be beneficial. Better information about the patient's needs and ways they can help could help carers fulfil their caring role.
OBJECTIVE: To explore information needs of unintentional injurypatients and their carers over time, across services, and how such needs are met from the perspectives of patients, carers and service providers. METHODS: Qualitative nested study within a multi-centre longitudinal study quantifying psycho-social, physical, occupational outcomes and service use and costs following a range of unintentional injuries. Semi-structured interviews conducted with 45 patients during the first year post injury, 18 of their carers and 40 providers of services. RESULTS:Patients and carers needed information about the nature and severity of injury, prognosis, self-management and further services. Information needs changed over time with the biggest difficulties being during transfer from primary to secondary care. Barriers to information provision included service providers' time limitations and uncertainty around information provision, and patients' reluctance to ask for information or inability to process it. Suggested improvements included provision of reassurance as well as factual information, information about further services, earlier follow-up, increased appointment times and greater involvement of families where appropriate. CONCLUSIONS: The information needs of patients and carers post injury change with time and there are a number of ways to remove gaps and barriers in current provision to meet such needs. PRACTICE IMPLICATIONS: Providing information on injury management, prognosis and available services and reassurance at each stage of the recovery process in secondary care and when transferring to primary care would be helpful for patients and carers. A follow-up contact soon after discharge and the opportunity to ask questions could be beneficial. Better information about the patient's needs and ways they can help could help carers fulfil their caring role.
Authors: Blerina Kellezi; C Coupland; R Morriss; K Beckett; S Joseph; J Barnes; N Christie; J Sleney; D Kendrick Journal: Soc Psychiatry Psychiatr Epidemiol Date: 2016-11-01 Impact factor: 4.328
Authors: Kay Bridger; Blerina Kellezi; Denise Kendrick; Kate Radford; Stephen Timmons; Mike Rennoldson; Trevor Jones; Jade Kettlewell Journal: Int J Environ Res Public Health Date: 2021-02-19 Impact factor: 3.390