Literature DB >> 25528986

NIH policy supports broader sharing of genomic data, strengthens informed-consent rules: research participants must give consent for secondary sharing, even if data are de-identified.

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Year:  2015        PMID： 25528986     DOI： 10.1002/ajmg.a.36919

Source DB:  PubMed          Journal:  Am J Med Genet A        ISSN： 1552-4825            Impact factor:   2.802


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  3 in total

1.  Privacy and security in the era of digital health: what should translational researchers know and do about it?

Authors:  Barbara L Filkins; Ju Young Kim; Bruce Roberts; Winston Armstrong; Mark A Miller; Michael L Hultner; Anthony P Castillo; Jean-Christophe Ducom; Eric J Topol; Steven R Steinhubl
Journal:  Am J Transl Res       Date:  2016-03-15       Impact factor: 4.060

2.  An Integrated, Scalable, Electronic Video Consent Process to Power Precision Health Research: Large, Population-Based, Cohort Implementation and Scalability Study.

Authors:  Clara Lajonchere; Arash Naeim; Sarah Dry; Neil Wenger; David Elashoff; Sitaram Vangala; Antonia Petruse; Maryam Ariannejad; Clara Magyar; Liliana Johansen; Gabriela Werre; Maxwell Kroloff; Daniel Geschwind
Journal:  J Med Internet Res       Date:  2021-12-08       Impact factor: 5.428

3.  Acquisition, Analysis, and Sharing of Data in 2015 and Beyond: A Survey of the Landscape: A Conference Report From the American Heart Association Data Summit 2015.

Authors:  Elliott M Antman; Emelia J Benjamin; Robert A Harrington; Steven R Houser; Eric D Peterson; Mary Ann Bauman; Nancy Brown; Vincent Bufalino; Robert M Califf; Mark A Creager; Alan Daugherty; David L Demets; Bernard P Dennis; Shahram Ebadollahi; Mariell Jessup; Michael S Lauer; Bernard Lo; Calum A MacRae; Michael V McConnell; Alexa T McCray; Michelle M Mello; Eric Mueller; Jane W Newburger; Sally Okun; Milton Packer; Anthony Philippakis; Peipei Ping; Prad Prasoon; Véronique L Roger; Steve Singer; Robert Temple; Melanie B Turner; Kevin Vigilante; John Warner; Patrick Wayte
Journal:  J Am Heart Assoc       Date:  2015-11-05       Impact factor: 5.501
  3 in total

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