Literature DB >> 25488934

"United We Stand": Framing Myalgic Encephalomyelitis in a Virtual Symbolic Community.

Olaug S Lian1, Sarah Nettleton2.   

Abstract

In this article, we report on a study that seeks to explore how the contested chronic condition myalgic encephalomyelitis (ME), one of the current medical diagnoses for medically unexplained long-term exhaustion, is negotiated within the context of Norwegian internet sites. From an analysis of discussions on 14 internet forums sustained by and for people living with ME, we seek to understand how their online activity sustains a virtual symbolic community (VSC). After exploring the content on these sites, we identified four discursive domains, or fields of conversation, that are demarcated by a discursive frame, or norms, values, and goals that define and reinforce the boundaries of the community. Interpreting discursive domains and their discursive frame provides insight not only to the culture of the ME VSC but also to its role in an international social health movement, including its potential for becoming politically influential.
© The Author(s) 2014.

Entities:  

Keywords:  chronic illness; discourse analysis; fatigue / exhaustion; health care users’ experiences; internet communication; knowledge construction; lay concepts and practices; power / empowerment; social construction of illness and disease

Mesh:

Year:  2014        PMID: 25488934     DOI: 10.1177/1049732314562893

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  8 in total

1.  Generating a Social Movement Online Community through an Online Discourse: The Case of Myalgic Encephalomyelitis.

Authors:  Olaug S Lian; Jan Grue
Journal:  J Med Humanit       Date:  2017-06

2.  Qualitative Research in Clinical Epidemiology.

Authors:  Stephanie Thompson; Kara Schick-Makaroff
Journal:  Methods Mol Biol       Date:  2021

3.  Making and managing medical anomalies: Exploring the classification of 'medically unexplained symptoms'.

Authors:  Erik Børve Rasmussen
Journal:  Soc Stud Sci       Date:  2020-07-15       Impact factor: 3.885

4.  Electronic Support Groups: An Open Line of Communication in Contested Illness.

Authors:  Michael Murphy; Nicholas Kontos; Oliver Freudenreich
Journal:  Psychosomatics       Date:  2016-04-29       Impact factor: 2.386

5.  Cancer-related fatigue in post-treatment cancer survivors: application of the common sense model of illness representations.

Authors:  Teresa Corbett; AnnMarie Groarke; Jane C Walsh; Brian E McGuire
Journal:  BMC Cancer       Date:  2016-11-25       Impact factor: 4.430

6.  Experiences of general practitioner continuity among women with chronic fatigue syndrome/myalgic encephalomyelitis: a cross-sectional study.

Authors:  Anne Helen Hansen; Olaug S Lian
Journal:  BMC Health Serv Res       Date:  2016-11-14       Impact factor: 2.655

7.  How do women with chronic fatigue syndrome/myalgic encephalomyelitis rate quality and coordination of healthcare services? A cross-sectional study.

Authors:  Anne Helen Hansen; Olaug S Lian
Journal:  BMJ Open       Date:  2016-04-04       Impact factor: 2.692

8.  "It´s incredible how much I´ve had to fight." Negotiating medical uncertainty in clinical encounters.

Authors:  Olaug S Lian; Catherine Robson
Journal:  Int J Qual Stud Health Well-being       Date:  2017
  8 in total

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