Literature DB >> 25479777

Transition to adult care for patients with spina bifida.

Joan T Le1, Shubhra Mukherjee2.   

Abstract

More individuals with spina bifida are living into adulthood, and unique challenges arise as they age. These patients have multiple organ system involvement in addition to physical impairments, disabilities, cognitive involvement, and psychosocial challenges. There is a growing need for transitional care for adults with spina bifida. This article explores the 5 key elements for a transition program to adult care: preparation, flexible timing, care coordination, transitional clinic visits, and health care providers who are interested in taking care of adults with disabilities.
Copyright © 2015 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Adult; Myelomeningocele; Spina bifida; Transition

Mesh:

Year:  2015        PMID: 25479777     DOI: 10.1016/j.pmr.2014.09.007

Source DB:  PubMed          Journal:  Phys Med Rehabil Clin N Am        ISSN: 1047-9651            Impact factor:   1.784


  7 in total

1.  The development of a lifetime care model in comprehensive spina bifida care.

Authors:  Betsy Hopson; Brandon G Rocque; David B Joseph; Danielle Powell; Amie B Jackson McLain; Richard D Davis; Tracey S Wilson; Michael J Conklin; Jeffrey P Blount
Journal:  J Pediatr Rehabil Med       Date:  2018

2.  Spinal cord issues in adult patients with MPS: transition of care survey.

Authors:  Kemel A Ghotme; Fernando Alvarado-Gomez; Christina Lampe; Klane K White; Martha Solano-Villareal; Roberto Giugliani; Paul R Harmatz
Journal:  Childs Nerv Syst       Date:  2018-05-27       Impact factor: 1.475

3.  Evaluation of spina bifida transitional care practices in the United States.

Authors:  Maryellen S Kelly; Judy Thibadeau; Sara Struwe; Lisa Ramen; Lijing Ouyang; Jonathan Routh
Journal:  J Pediatr Rehabil Med       Date:  2017-12-11

4.  The basics of transition in congenital lifelong urology.

Authors:  Matthieu Peycelon; Rosalia Misseri
Journal:  World J Urol       Date:  2020-02-19       Impact factor: 4.226

5.  The Impact of Vocational Interventions on Vocational Outcomes, Quality of Life, and Community Integration in Adults with Childhood Onset Disabilities: A Systematic Review.

Authors:  Zechen Ma; Priya Dhir; Laure Perrier; Mark Bayley; Sarah Munce
Journal:  J Occup Rehabil       Date:  2020-03

6.  Neurogenic bowel treatments and continence outcomes in children and adults with myelomeningocele.

Authors:  Maryellen S Kelly; John S Wiener; Tiebin Liu; Priya Patel; Heidi Castillo; Jonathan Castillo; Brad E Dicianno; Joan Jasien; Paula Peterson; Jonathan C Routh; Kathleen Sawin; Eileen Sherburne; Kathryn Smith; Asma Taha; Gordon Worley
Journal:  J Pediatr Rehabil Med       Date:  2020

7.  Utility estimation for neurogenic bowel dysfunction in the general population.

Authors:  Kirsten L Simmons; Leah G Davis; Jonathan C Routh; Maryellen S Kelly
Journal:  J Pediatr Urol       Date:  2021-01-30       Impact factor: 1.921

  7 in total

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