Literature DB >> 25458105

Children with chronic conditions: perspectives on condition management.

Barbara L Beacham1, Janet A Deatrick2.   

Abstract

This qualitative study described children's (8-13 years old) perspectives of their chronic health conditions (e.g., asthma, diabetes, cystic fibrosis): how they perceived their condition, its management, and its implications for their future. The study used the family management style framework (FMSF) to examine child perspectives on the joint venture of condition management between the child and family. Children within this age group viewed condition management in ways similar to their parents and have developed their own routines around condition management. Future studies of this phenomenon comparing child and parent perspectives would further our understanding of the influence of family management.
Copyright © 2015 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Childhood; Chronic health conditions; Condition management; Family; Long-term conditions; Management; School-aged children

Mesh:

Year:  2014        PMID: 25458105      PMCID: PMC4291290          DOI: 10.1016/j.pedn.2014.10.011

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  20 in total

1.  Three approaches to qualitative content analysis.

Authors:  Hsiu-Fang Hsieh; Sarah E Shannon
Journal:  Qual Health Res       Date:  2005-11

2.  Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries.

Authors:  Gary M Bedell; Ellen S Cohn; Helene M Dumas
Journal:  Am J Occup Ther       Date:  2005 May-Jun

3.  The lived experience of fathers who have children with asthma: a phenomenological study.

Authors:  Geraldine H Cashin; Sandra P Small; Shirley M Solberg
Journal:  J Pediatr Nurs       Date:  2008-04-25       Impact factor: 2.145

4.  The impact of experience on children's understanding of illness.

Authors:  J Crisp; J A Ungerer; J J Goodnow
Journal:  J Pediatr Psychol       Date:  1996-02

5.  Stakeholder validation of a model of readiness for transition to adult care.

Authors:  Lisa A Schwartz; Lauren D Brumley; Lisa K Tuchman; Lamia P Barakat; Wendy L Hobbie; Jill P Ginsberg; Lauren C Daniel; Anne E Kazak; Katherine Bevans; Janet A Deatrick
Journal:  JAMA Pediatr       Date:  2013-10       Impact factor: 16.193

Review 6.  Medical adherence and childhood chronic illness: family daily management skills and emotional climate as emerging contributors.

Authors:  Barbara H Fiese; Robin S Everhart
Journal:  Curr Opin Pediatr       Date:  2006-10       Impact factor: 2.856

7.  Family asthma management routines: connections to medical adherence and quality of life.

Authors:  Barbara H Fiese; Frederick S Wamboldt; Ran D Anbar
Journal:  J Pediatr       Date:  2005-02       Impact factor: 4.406

8.  Parenting a child with a chronic medical condition.

Authors:  Jane Case-Smith
Journal:  Am J Occup Ther       Date:  2004 Sep-Oct

9.  Association of observed family relationship quality and problem-solving skills with treatment adherence in older children and adolescents with cystic fibrosis.

Authors:  Kirsten E DeLambo; Carolyn E Ievers-Landis; Dennis Drotar; Alexandra L Quittner
Journal:  J Pediatr Psychol       Date:  2004 Jul-Aug

10.  The relation between family factors and metabolic control: the role of diabetes adherence.

Authors:  Adam B Lewin; Amanda D Heidgerken; Gary R Geffken; Laura B Williams; Eric A Storch; Kenneth M Gelfand; Janet H Silverstein
Journal:  J Pediatr Psychol       Date:  2005-03-03
View more
  8 in total

1.  Exploring a broader context of the home environment and its relationship with asthma control in American Indian children.

Authors:  Jada L Brooks; Josephine Asafu-Adjei; Emily G Currin; Linda S Beeber
Journal:  Res Nurs Health       Date:  2020-04-09       Impact factor: 2.228

Review 2.  A Review of Psychosocial Factors of Marfan Syndrome: Adolescents, Adults, Families, and Providers.

Authors:  Cory Nielsen; Ileana Ratiu; Mitra Esfandiarei; Angela Chen; Elif Seda Selamet Tierney
Journal:  J Pediatr Genet       Date:  2019-07-25

3.  Family Management of Severe Obesity in Adolescents.

Authors:  Karyn J Roberts; Agatha M Gallo; Crystal L Patil; Catherine Vincent; Helen J Binns; Mary Dawn Koenig
Journal:  J Pediatr Nurs       Date:  2021-07-02       Impact factor: 2.523

4.  Relationship of family management with sociodemographic aspects and children's physical dependence in neurological disorders.

Authors:  Gisele Weissheimer; Verônica de Azevedo Mazza; Vanessa Ferreira de Lima; Maria de Fátima Mantovani; Márcia Helena de Souza Freire; Paulo Ricardo Bittencourt Guimarães
Journal:  Rev Lat Am Enfermagem       Date:  2018-11-14

5.  A concept analysis of children with complex health conditions: implications for research and practice.

Authors:  Rima Azar; Shelley Doucet; Amanda Rose Horsman; Patricia Charlton; Alison Luke; Daniel A Nagel; Nicky Hyndman; William J Montelpare
Journal:  BMC Pediatr       Date:  2020-05-26       Impact factor: 2.125

6.  The centrality of disclosure decisions to the illness experience for youth with chronic conditions: A qualitative study.

Authors:  Roberta Lynn Woodgate; Pauline Tennent; Sarah Barriage; Nicole Legras
Journal:  J Health Psychol       Date:  2020-09-28

Review 7.  Effectiveness of eHealth and mHealth Interventions Supporting Children and Young People Living With Juvenile Idiopathic Arthritis: Systematic Review and Meta-analysis.

Authors:  Sonia Butler; Dean Sculley; Derek Santos; Antoni Fellas; Xavier Gironès; Davinder Singh-Grewal; Andrea Coda
Journal:  J Med Internet Res       Date:  2022-02-02       Impact factor: 5.428

Review 8.  Self-Care in Pediatric Patients with Chronic Conditions: A Systematic Review of Theoretical Models.

Authors:  Immacolata Dall'Oglio; Giulia Gasperini; Claudia Carlin; Valentina Biagioli; Orsola Gawronski; Giuseppina Spitaletta; Teresa Grimaldi Capitello; Michele Salata; Valentina Vanzi; Gennaro Rocco; Emanuela Tiozzo; Ercole Vellone; Massimiliano Raponi
Journal:  Int J Environ Res Public Health       Date:  2021-03-28       Impact factor: 3.390

  8 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.