Literature DB >> 25394556

The experience of family carers of people with dementia who are hospitalised.

Melissa Bloomer1, Robin Digby2, Heather Tan2, Kimberley Crawford3, Allison Williams3.   

Abstract

Hospital admission of a person with dementia can have a significant impact on the family carer, who temporarily relinquishes caring to health professionals. A descriptive qualitative design using in-depth interviews with a conversational approach was used to elicit data. Adjusting to the change in the carer's role can be challenging and result in feelings of helplessness, loneliness, loss of control and being undervalued. Family support can assist with the transition but family conflict increases anxiety. Good communication between clinicians and the carer is vital. The carer should be included in decision-making as the 'expert' in the care of the person with dementia. This article discusses findings of a larger study specifically related to the emotional support required for the carers of people with dementia, who are admitted to hospital. The carer and the patient must be considered as a dyad in relation to discharge planning.
© The Author(s) 2014.

Entities:  

Keywords:  carer; dementia; emotional support; family carer; hospital

Mesh:

Year:  2014        PMID: 25394556     DOI: 10.1177/1471301214558308

Source DB:  PubMed          Journal:  Dementia (London)        ISSN: 1471-3012


  12 in total

1.  Falls and Hospitalizations Among Persons With Dementia and Associated Caregiver Emotional Difficulties.

Authors:  Amanda N Leggett; Courtney A Polenick; Donovan T Maust; Helen C Kales
Journal:  Gerontologist       Date:  2018-03-19

2.  Involvement of Hospitalized Persons With Dementia in Everyday Decisions: A Dyadic Study.

Authors:  Lyndsey M Miller; Christopher S Lee; Carol J Whitlatch; Karen S Lyons
Journal:  Gerontologist       Date:  2018-07-13

3.  Incongruent perceptions of the care values of hospitalized persons with dementia: a pilot study of patient-family caregiver dyads.

Authors:  Lyndsey M Miller; Carol J Whitlatch; Christopher S Lee; Karen S Lyons
Journal:  Aging Ment Health       Date:  2017-01-27       Impact factor: 3.658

4.  Stakeholder perspectives of care for people living with dementia moving from hospital to care facilities in the community: a systematic review.

Authors:  Angela Richardson; Alison Blenkinsopp; Murna Downs; Kathryn Lord
Journal:  BMC Geriatr       Date:  2019-07-31       Impact factor: 3.921

5.  Health care transitions for persons living with dementia and their caregivers.

Authors:  Jessica Ashbourne; Veronique Boscart; Samantha Meyer; Catherine E Tong; Paul Stolee
Journal:  BMC Geriatr       Date:  2021-04-29       Impact factor: 3.921

6.  Primary dementia care based on the individual needs of the patient: study protocol of the cluster randomized controlled trial, DemStepCare.

Authors:  Andreas Fellgiebel; Erik Farin; Isabella Bablok; Harald Binder; Dominikus Stelzer; Klaus Kaier; Erika Graf; Julian Wangler; Michael Jansky; Michael Löhr; Michael Schulz; Marie Kockläuner; Katharina Geschke; Alexandra Wuttke-Linnemann
Journal:  BMC Geriatr       Date:  2021-04-01       Impact factor: 3.921

7.  Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked primary, community and secondary care data.

Authors:  Javiera Leniz; Irene J Higginson; Deokhee Yi; Zia Ul-Haq; Amanda Lucas; Katherine E Sleeman
Journal:  Palliat Med       Date:  2021-05-31       Impact factor: 5.713

8.  Support needs of carers making proxy healthcare decisions for people with dementia: a systematic review based on the Noblit and Hare meta-ethnographic synthesis of qualitative studies.

Authors:  Victoria Hodges; Catherine Hynes; Samuel Lassa; Caroline Mitchell
Journal:  BMJ Open       Date:  2021-12-20       Impact factor: 2.692

Review 9.  Social networks, social capital and end-of-life care for people with dementia: a realist review.

Authors:  Joseph M Sawyer; Libby Sallnow; Nuriye Kupeli; Patrick Stone; Elizabeth L Sampson
Journal:  BMJ Open       Date:  2019-12-09       Impact factor: 2.692

10.  Using meta-ethnography to understand the care transition experience of people with dementia and their caregivers.

Authors:  Marianne Saragosa; Lianne Jeffs; Karen Okrainec; Kerry Kuluski
Journal:  Dementia (London)       Date:  2021-08-02
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